1. The Principles for Effective Engagement/Collaboratio n 04/05/2016 Presenters: Sarah Yiannoullou sarah.yiannoullou@nsun.org..uksarah.yiannoullou@nsun.org..uk Anne Beales anne.beales@sussexpartnership.nhs.ukanne.beales@sussexpartnership.nhs.uk Louise Patmore louise.patmore@sussexpartnership.nhs.uklouise.patmore@sussexpartnership.nhs.uk Diana Byrne dianabyrne@sky.comdianabyrne@sky.com

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3. 04/05/2016Mental Health in Partnership Conference3 Governance and oversight: By no later than Summer 2016, NHS England, the Department of Health and the Cabinet Office should confirm what governance arrangements will be put in place to support the delivery of this strategy. This should include arrangements for reporting publicly on how progress is being made against recommendations for the rest of government and wider system partners, the appointment of a new equalities champion for mental health to drive change and creating an independent external advisory board to provide independent scrutiny and challenge to the programme. Priority 1: A 7 day NHS – right care, right time, right quality Priority 2: An integrated approach to mental and physical health care Priority 3: Promoting good mental health and preventing poor mental health Priority 4: ‘Hard-wiring’ mental health across the NHS

4. 04/05/2016Mental Health in Partnership Conference4 Principles Purpose Presence Process Impact

5. Mental Health in Partnership Conference History of Service User Voice Duty to Ourselves – Know our History 1985: Service Users Contribute to: WFMH Conference, Brighton hosted by MIND Stand on a Platform Build by our Leaders: Peter Campbell Judi Chamberlin Frank Bangay Andrew Roberts 1997: Capital Project – Service User Led www.capitalproject.org www.capitalproject.org www.studymore.org.uk Interrelate www.interrelate.info www.interrelate.info

6. Mental Health in Partnership Conference Service User Leadership “Nothing is a waste of time if you use the experience wisely” Auguste Rodin Let’s talk about mental health Service user leadership is about being able to share what works using the experience from “self” SPFT is currently treating 5,000 people with psychosis and 5,000 children and young people started treatment in Sussex alone - Imagine the wealth of solutions that can be found amongst this number – solutions that can work within the internal health economy and externally Involvement in co-production is just a mechanism to release lived experience it is not an end in itself – should improve wellbeing The support must also come from external independent direct service user voices for example the initiative of community based service users who are carrying out focus group on wards in Hellingly

7. Mental Health in Partnership Conference People troubled and distressed Get involved individually collectively - harness insight of experience – what works what hurts Provides influence internally e.g. CAGs CDSs, external - anti stigma Provides a lead/leadership Few definites or absolutes Quality standards are key Service User Leadership Service User Led Organisations

8. Louise Patmore 04/05/2016Mental Health in Partnership Conference8 Collaboration in action: When Collaboration Works – a personal perspective

9. Going Co-Pro… Symbiosis Active listening with actions Voices heard from the ground up as well as top down Paradigm shift Hope for the future for individuals and services in hard times. 04/05/2016Mental Health in Partnership Conference9

10. Partnership working scope Service use & Knowledge from self and others Networking through partners, engagement events & conferences Holding a holistic and knowledgeable approach through education & experience Supplying cogent and formative outcomes on the ground for people who need services & staff. 3 rd Sector Local Engagement Forums Recovery College National and International Policy Engagement 04/05/2016Mental Health in Partnership Conference10

11. What is it like? Challenging Overcoming entrenched ways Maintaining momentum Funding Pioneering Very Rewarding 04/05/2016Mental Health in Partnership Conference11

12. 04/05/2016Mental Health in Partnership Conference12 Change is happening…

13. 2 Cups Hope 2 Cups Lived Experience 2 Cups Insight and Self Awareness 2 Cups Self Management 2 Cups Confidence 1 Cup Discovery 1 Cup Reflection 1 Cup Knowledge 2 Cups Meaningful Life 2 Cups Goals and Dreams

14. “Recovery is not about waiting for the storm to pass, it is about learning to dance in the rain” and a shared experience is a powerful tool in the learning experience.

15. Why co-facilitate with Peer and Professionals?  Inspiration  Role model  Help others through empathy  Hope  Engagement  Greater understanding  By being courageous – provide opportunities to explore and experience increasingly challenging work.  Being able to use positive interactions pointing out growth and success  Create hope so person learns through positive feedback for their participation.

16. Quote by Michelangelo “The greater danger for most of us lies not in setting our aims too high and falling short; but in setting our aim too low, and achieving our mark” I hope that I may always desire more than I can accomplish

17. I believe today we are planting an acorn – The Recovery College Tree which will have many different branches for our students to choose from. It is our role to water and nurture it so it grows to develop strong roots and flourishing vibrant leaves.

18. It reminded us a bit of this… Mental Health in Partnership Conference

19. The authority of service user leadership equates directly to the diversity of voices within their collective. We must therefore build our collective over the next five years… and beyond.