1. A Decade of Community-Based Participatory Research to Reduce Cancer Health Disparities in Southern California The study was supported by the National Institutes of Health, National Cancer Institute, Center to Reduce Cancer Health Disparities. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NCI CRCHD.

2. WHEN WE BEGAN IN 2004…

3. There were 221,458 Pacific Islanders in California (2000) 2000 California Population* AloneInclusive % < HS deg < 100% FPL** < 200% FPL % Pub Assist % LEP *** Native Hawaiian20,57160,04814%11%27%5%3% Samoan37,49849,80422%20%45%12%17% Chamorro/ Guamanian20,91833,84920%10%29%6%9% Tongan12,11115,25240%18%44%10%32% NH Whites15,816,79016,538,49110%8%20%3% * US Census 2000 ** Federal Poverty Line *** Limited English Proficient

4. Pacific Islanders had the highest death rates from lung cancer in California (1991-2001) Denotes Healthy People 2010 Target (44.9 per 100,000) * Data from the California Department of Health Services, Sentinel Health Indicators for California’s Multicultural Populations, 1991-2001, CA: Center for Health Statistics, May 2004.

5. Pacific Islanders had the second highest death rates from breast cancer in California (1991-2001) Denotes Healthy People 2010 Target (22.3 per 100,000) * Data from the California Department of Health Services, Sentinel Health Indicators for California’s Multicultural Populations, 1991-2001, CA: Center for Health Statistics, May 2004.

6. Stage at diagnosis of colorectal cancer, by race/ethnicity, California, 1994-2000* * Estimates are unstable for Guamanian/Chamorro and Tongan, and are not shown; data from the California Cancer Registry.

7. Kickoff Timeline April-May, 2004: meetings with community leaders and university researchers May-June, 2004: development of the WINCART name June, 2004: submission of a U01 proposal to NCI to establish the WINCART network April, 2005: NCI award to WINCART May-June, 2005: community subcontracts July-August, 2005: WINCART logo and community kick-off event Nov-Dec, 2005: community IRB review and approval

8. WINCART Weaving an Islander Network for Cancer Awareness, Research, and Training (WINCART) is a Community Network Program funded by the National Cancer Institute’s Center to Reduce Cancer Health Disparities (NCI CRCHD) to promote cancer education, research and training among Pacific Islanders in Southern California.  2005-2010 (U01CA114591)  2010-2015 (U54CA153458)

9. Community Organizations University Researchers Ainahau O Kaleponi Hawaiian Civic Club California Chamorro Breast Cancer Survivors Alliance Empowering Pacific Island Communities Guam Communications Network Orange County Asian and Pacific Islander Community Alliance Orange County Health Care Agency Pacific Islander Community Council Pacific Islander Health Partnership Samoan National Nurses Association St. Joseph Hospital of Orange Sons and Daughters of Guam Club Tongan Community Service Center/SSG Union of Pan Asian Communities California State University, Fullerton California State University, Northridge Claremont Graduate University University of California, Irvine University of California, Los Angeles University of California, Riverside University of Southern California 2005-2015

10. Top 5 Pacific Islander Cancers in California PI MalesPI Females ProstateBreast LungUterus ColorectalLung StomachColorectal LeukemiaCervix * Pacific Islanders, ACS California Facts and Figures (2007) ** Native Hawaiians & Samoans, Los Angeles Cancer Registry, Cockburn & Liu (2008)

11. Top 5 Pacific Islander Cancers in California PI MalesPI Females ProstateBreast LungUterus ColorectalLung StomachColorectal LeukemiaCervix Yellow highlights indicate cancers that WINCART focused on from 2005-2015 * Pacific Islanders, ACS California Facts and Figures (2007) ** Native Hawaiians & Samoans, Los Angeles Cancer Registry, Cockburn & Liu (2008)

12. WINCART’s Research Activities

13. WINCART CBPR Research Projects Physical Activity & Nutrition Incidence of cancer among PIs Creating the PI physical activity questionnaire Correlates of cancer screening Lymphedema and breast cancer HIV & HPV Breast cancer navigation Behavior and beliefs related to diet in Native Hawaiians Smoking cessation for young adults Promoting Pap testing Biospecimen donation beliefs and behaviors http://wincart.fullerton.edu

14. Research Projects (2005-2010) HIV/HPV comorbidity (DiStefano) Physical activity & nutrition among PI youth (Tanjasiri) Breast cancer health navigation project (Tanjasiri) (Names in parentheses indicate principal investigator(s) for each project)

15. Pilot Research Projects (2005-2010) Incidence of cancer among PIs (Panapasa) Creaing the PI physical activity questionnaire (Moy) Behavior and beliefs related to diet in Hawaiians (McEligot) Correlates of cancer screening for PIs (Sripipatana) Lymphedema and PI breast cancer survivors (Sgambelluri)

16. Research Projects (2010-2015) Biospecimen beliefs and behaviors (Kwan) MPACT Smoking cessation for young adults (Palmer) Pap test intervention among PI women (Tanjasiri)

17. MPACT was a culturally tailored quit smoking program for young adult Pacific Islanders (PI) Cell phones and a Facebook App delivered quit smoking messages and education to participants Over 20% of PIs who used MPACT quit smoking vs. only 13.3% who used a standard non- tailored online program

18. MPACT’s Community and Academic Researchers

19. WINCART’S Community Education Activities

20. Flipchart Bookmark Video Key Messages: Ask your doctor about colorectal cancer screening Do it for your family and yourself YouTube - Wincart CRC PSA Colorectal Education

21. Let’s Move! Program

22. http://www.youtube.com/watch?v=UC2h72XnhuE Let’s Move! Video

23. - 4 Four Waves - Wave 1 Finding an Organizational Champion Wave 2 Setting a Policy Wave 3 Making Environmental Changes Wave 4 Leading Exercise Regularly WINCART Let’s Move! Implementation Phases Let’s Move! Program

24. Materials and messages –Brochure –PowerPoint –Video –Booster/reminder –Magnet calendar Thank you baskets Pap Test Education

25. http://youtu.be/0fX4M2OMKF8 Pap Test video

26. Biospecimen Program Recruitment Flyer Educational Brochure FAQ Sheet Educational Video https://youtu.be/Ze_gITbnBlM

27. WINCART Education Toolkits

28. WINCART’S Researcher Training Activities

29. WINCART Training High school students: Pacific Islander Pipeline Program (OCAPICA) Community partners: bimonthly trainings and core meetings with Scientific Advisory Board/researchers Masters-level students: Minority Training Program in Cancer Control Research (UCLA) PhD-level: Mentoring of pilot and early investigators

30. WINCART Trainees Mohammed Aftab2013-2016 Kristina Beasley, BS2013-2014 Lizette Blanco, MPH, PhD2011-2012 Ashley Cheri, MS2011-2013 Harold Custodio, MPH2014-2016 Jocelyn Delfino2009-2010 Jan Eichenauer, MS2006-2008 Caroline Fifita2009-1020 Ualani Ho`opai, MPH2012-2014 Sandy Hu, MPH2012-2013 Patty Kwan, PhD*2011-2016 Cindy Lin, MPH2011-2012 Karen Llave, BS2013-2014 Heather Maynard, BS2011-2012 Archana McEligot, PhD*2007-2009 Falelima Miller2009-2010 Karen Moy, PhD*2007-2009 Daisy Nguyen, MPH2009-2010 Don Nguyen, MPH2009-2010 Dung Nguyen, MPH2012-2014 Hanh-Tien Nguyen, MPH2011-2013 Mandy Nguyen, BS2013-2014 Lianne Nacpil, MPH2007-2010 Rebekkah Ngewa, MPH, DrPH2007-2009 Ciara Paige, MA2012-2014 Sela Panapasa, PhD*2007-2009 Cayla Patel, BS2013-2014 Cheng Peng, MPH2012-2014 Nicole Porter, PhD2012-2013 Seumaninoa Puaina, MPH2005-2007 Nicole Robello, MA2011-2012 Melanie Sabado, MPH, PhD2007-2009 Charles San Nicolas2009-2010 Leilua Satele, MS2005-2007 Nellie Sgambelluri MD*2008-2010 Rochelle Sino, MPH2013-2014 Christina Speck, BS2012-2013 Alek Sripipatana, PhD*2007-2009 Roger Sur, MPH2011-2013 Melody Swen, BA2012-2014 Nasya Tan, MPH2012-2016 Jacqueline Tran, DrPH2005-2009 Toaono Vaifale, BA2009-2010 Helen Yandall2009-2010 Mona Wase2009-2010 * pilot project leader

31. 12 funded research projects 22 peer-reviewed publications 56 conference presentations Total Outreach Events: 826 Total Individuals Impacted: 67,235 WINCART Outcomes (2005-2010)

32. Breast and cervical cancer patient navigation services to more than 264 PI adults Over 40 culturally tailored cancer health education materials developed Reached over 100,000 community members with outreach, education and research 39 peer-reviewed publications and 66 conference & meeting presentations Biospecimen education and collection project MPACT Tobacco cessation project 23 WINCART trainees WINCART Outcomes (2010-2015)

33. Power of community-university collaborations Importance of addressing cancer prevention and early detection Need to continue the pipeline of researchers in Pacific Islander health Need to disseminate our materials, publications, toolkits and lessons learned around the world! Lessons Learned

34. Thank You! For more information on WINCART’s research and programs: http://wincart.fullerton.edu www.youtube.com/wincartcenter www.facebook.com/WINCARTnetwork

35. Thank you ~ Si yu’us ma’ase ~ Komol tata ~ Mahalo nui loa ~ Fa’afetai tele lava ~ Malo ‘aupito Sora Park Tanjasiri, DrPH, MPH Professor, California State University, Fullerton Email: stanjasiri@fullerton.edustanjasiri@fullerton.edu (657) 278-4592