1. Charting the Course to Your Good Life
People First of Missouri Statewide Self-Advocacy Conference, April 2017

2. Welcome Introductions
Introduce speakers and if the group is small enough, do introductions with the participants

3. Nice to meet you I’m Rachel Communications & Design Specialist
Missouri Family to Family at the UMKC IHD, UCEDD
MPA with an emphasis in Nonprofit Management
Calvin’s friend and advocate
Barbara’s granddaughter

4. Nice to meet you I’m David
Advocacy Specialist at the Springfield Regional Office
Likes to write
Artist
Creative soul

5. Goals for this Session
Define what is important to you and your key support needs using the One Page Profile.
Describe his/her “good life” and
List positive and negative experiences that impacted his/her trajectory using the LifeCourse Trajectory.
RACHEL:
Our goals for our time together this afternoon are to

6. Charting the LifeCourse Framework
RACHEL:
So, now let’s get started learning about the LC Framework.
Building Blocks

7. 100% Focus on “ALL” 25% 75% National % Receiving State DD Services
Only 1 in 4 people with DD receive services
75%
National % Receiving State DD Services
25%
All 4,900,000 people with developmental disabilities
RACHEL: The LifeCourse Framework was made for ALL people.
You might not know this but a lot of your friends might not be getting the same supports and services that you are.
When we are talking about all people, we’re talking about all 4,900,000 people with developmental disabilities. A lot of times when we talk about what people with disabilities need, we’re only focusing on those who receive paid services from their state system.
Only 25% of all people with developmental disabilities in America receive paid services. That means only 1 person in 4 with a DD actually receives paid services!
This specific training was developed for people receiving services from the Division, the green part of the triangle
** Based on national definition of developmental disability with a prevalence rate of 1.49%

8. All people have the right to live, love, work, play and pursue their dreams in their community.
This is our core belief that guides all of the work that we do at Missouri Family to Family.
Let’s all read the blue box. All people have the right to live, love, work, play and pursue their dreams in their community.

9. What Life Looks Like
Think about

10. What Life Looks Like

11. What Life Looks Like

12. History of People with I/DD

13. History of People with I/DD

14. History of People with I/DD

15. History of People with I/DD

16. What We Want to See…

17. What We Want to See…

18. What We Want to See…

19. What We Want to See…

20. NOTHING ABOUT US WITHOUT US!
People with I/DD and their families need seats at the table so they can be involved in the changes we want to see and make our vision for a good life for all possible

21. Vision
RACHEL:
Now we’re going to talk about our visions for a good life.
Hold up their portfolio and show inside

22. David’s Good Life Being independent Published author
Own my own house in Springfield
Simple life
David, tell me what your vision for a good life is
Tell me….
Live with my parents or anyone else
Relying on other people ($$)
Not being listened to or understood

23. What is YOUR Vision for a Good LIFE?
Step 1: Groupversation: we’re going to ask the group – let them give their answers
Step 2: We want you to write some of the things that make up your good life in the purple box. (2 minutes)

24. What
DON’T
you want??
RACHEL: Now that we’ve talked about the your vision for a good life… let’s talk about the not so good stuff.
DAVID:
Step 1: Groupversation: we’re going to ask the group – let them give their answers
Step 2: We want you to write some of the things that you don’t want/or that drives you crazy or makes you unhappy in the red box. (2 minutes)

25. Trajectory Life Experiences RACHEL:
Now we’re going to talk about the trajectory.
Hold up their portfolio and show inside

26. Truh-jehk-ter-ee Say it with us! First, let’s all say it together.
Some people believe that this word is too hard for self-advocates and they can’t understand it. So we’re going to teach you about it today.

27. Vision of What I Don’t Want
What is a trajectory?
Friends, family, job, fun things to do, independence, your own place, happiness
Trajectory toward a good life
RACHEL:
A trajectory is the path your life takes toward the future. It can change based on the choices you make, other peoples’ actions, and events that might be out of your control. The goal is the good life, so we want the trajectory to go up.
Vision of What I Don’t Want
Trajectory towards things you don’t want

28. Life Experiences Learning to say “no” Learning to say “no”
David: Along the trajectory we have life experiences.
Life experiences are the stepping stones that you take on your trajectory to the good life.
Example: about saying no

29. Life Experiences Getting a Job Chores and allowance
Rachel: Life experiences are really important. Experiences that you have when you are younger help you when you are older.
David: say Chores & allowance will prepare you for getting a job (talk about mom’s chore chart)
Different work is worth different amounts of money
We have positive experiences and sometimes we have negative experiences, and we learn lessons from all of them.

30. David’s Stepping Stones
Moving into my apartment
Supportive family
Bought my mustang convertible!
Job at Worlds of Fun
Accident
Leaving college
Bad break-up
Bad student job experience

31. Life Experiences
Now let’s think about last, year, 5 years ago what are some things that happened to you that were totally awesome?
Okay, now we want you to write down the things that happened that were awesome above trajectory. (2 minutes)
Now let’s think about last, year, 5 years ago what are some things that happened to you that bad things weren’t so great or totally sucked?
Okay, so let’s take a couple minutes and write down some of those bad things weren’t so great or totally sucked

32. CLIFFHANGER
LET’S PLAY CLIFFHANGER!!!!
Rachel – say instructions

33. Meet Frank. Frank is an eligible bachelor in his ‘40’s.
Currently he lives by himself and pays his own bills.
Frank enjoys drinking coffee, making friends, listening to music, and talking on the phone.
He lives in a small suburb close to the main drag in town.
Frank uses a wheelchair to get around.
RACHEL

34. Frank’s Vision for a Good Life
FRANK DOES WANT
A girlfriend or wife???
Good health
A place to live
Plenty of coffee
Make his own decisions
Frank DOESN’T want
To be lonely
To not have control over where he lives
To not be able to get out and get around town
RACHEL read what Frank does want
Katie will read WHAT FRANK DOES WANT

35. Doctor says his cholesterol is too high.
FRANK DOES WANT
to be healthy and live a long time.
Rachel: read the slide
Katie ASK What’s the problem with having high cholesterol?
Well… Frank might have a heart attack…. His arteries might get all clogged up and he might have a stroke…
Katie read what Frank doesn’t want
Rachel read what Frank does want
Frank DOESN’T want
to get fat and unhealthy so the ladies won’t like him.

36. Frank starts swimming 3x’s a week.
KATIE
Frank starts swimming 3x’s a week.

37. Frank eats McDonald’s every day.
RACHEL
Frank eats McDonald’s every day.

38. RACHEL
Frank quits smoking.

39. Frank drinks Pepsi Cola with every meal.
KATIE
Frank drinks Pepsi Cola with every meal.

40. Frank switches to drinking water.
RACHEL
Frank switches to drinking water.

41. to have to ask someone else for permission about
Frank’s nephew has filed for guardianship because he is worried that Frank is becoming more forgetful as he gets older.
FRANK DOES WANT
be able to make his own decisions about his life, like who to date, and keep his right to vote.
Frank DOESN’T want
to have to ask someone else for permission about
how to spend his money
or where to live.
ASK
What happens when you get a guardian? Do you get to makes choices?
Katie read what Frank doesn’t want
Rachel read what Frank does want

42. Frank has good credit and a long history of paying bills on time.
RACHEL
Frank has good credit and a long history of paying bills on time.

43. KATIE
Frank doesn’t know that Missouri Protection & Advocacy offers free support in guardianship matters.

44. RACHEL
Frank calls Jenny at Missouri Family to Family and finds out Missouri Protection & Advocacy can help him.

45. RACHEL
Frank forgets to pay his electric bill for three months in a row and his lights get cut off.

46. RACHEL
Frank and his support staff are learning how he can use apps and his Google account to set reminders for himself.

47. Frank loves coffee and wants to meet people that live nearby.
Frank uses a wheelchair and cannot get into the coffee shop down the street from his house.
WHAT FRANK DOES WANT
Frank loves coffee and wants to meet people that live nearby.
KATIE: read what Frank doesn’t want,
Rachel read what Frank does want
Frank DOESN’T want
He does not have a ride
across town to get coffee
at a different place.

48. Frank lives in a small town that does not have public transportation.
RACHEL
Frank lives in a small town that does not have public transportation.

49. KATIE
Frank has two neighbors that also have mobility issues that also have trouble getting into the coffeeshop.

50. KATIE
Frank doesn’t know about the Americans with Disabilities Act and how it applies to local businesses.

51. KATIE
Frank goes to his local People First meeting and tells his fellow self-advocates about the problem. They talk to the owners and work on a solution together.

52. Your LifeCourse Portfolio
Bringing it All Together
RACHEL: Now, let’s turn your portfolio over and fold it back up and we’re going to work on the front page.

53. Hints and tips on filling it out
Your One Page Profile
Hints and tips on filling it out
People, places and things that are important to you.
Hobbies, belongings, rituals, routines, family culture.
What do you care about most?

54. David’s One Page Profile
Independence
Family
Art
Apartment
My job
Being taken seriously
Star Wars
Give them 2 minutes to write it down

55. Hints and tips on filling it out
Your One Page Profile
Hints and tips on filling it out
Specific kinds of support that are helpful, and what is not.
Support you need to be calm and comfortable and accomplish your goals.
Pet peeves

56. David’s One Page Profile
Patience
Sometimes need help to stay focused
Sometimes I need space
Can’t stand people clipping their nails

57. Hints and tips on filling it out
Your One Page Profile
List positive strengths, talents and qualities.
Things people give you compliments on.
Ask your family or others who know you well for ideas.
People, places and things that are important to you.
Hobbies, belongings, rituals, routines, family culture.
What do you care about most?
Specific kinds of support that are helpful, and what is not.
Support you need to be calm and comfortable and accomplish your goals.
Pet peeves
Hints and tips on filling it out

58. David’s One Page Profile
Creative
Personable and helpful
Good writer
Cheerful
Funny
Independence
Family
Art
Apartment
My job
Being taken seriously
Star Wars
Patience
Sometimes need help to stay focused
Sometimes I need space
Can’t stand people clipping their nails

59. Using your LifeCourse Portfolio
to Advocate for your Good Life
You can use your LifeCourse Portfolio a million different ways.
Rachel – show her raggedy portfolio
DAVID: Even just putting it on paper can help you – you might discover you didn’t know about yourself, can make you understand yourself better, build your confidence to say these things out loud to another person

60. When to use your LifeCourse Portfolio
Use the One-page profile when you have a new staff or support coordinator or are meeting someone for the first time
Use your Trajectory to share the good and bad things that have happened to you over the past year or so person-centered plan meeting
Use your Vision for a Good Life and What You Don’t Want at your planning meeting when you’re talking about your goals for the future
You can literally hand your completed portfolio to your support coordinator and tell her to put in your plan.
Take turns reading bullets

61. Wrapup

62. Reflection What have we learned? What are your next steps?
What was your favorite part?

63. LifeCourse Drawing
Bring your portfolio back for an extra ticket

64. Questions & Discussion

65. Rachel Hiles hilesr@umkc.edu
If you need to get in touch with me……. Thank you for coming!

66. David Forbes david.forbes@dmh.mo.gov
If you need to get in touch with me……. Thank you for coming!

67. If you need help along the way….
(800) | mofamilytofamily.org

68. Visit us online at lifecoursetools.com