1. Kidney Community Advocacy Day 2017 Advocate Pre-Training
Zach Kribs
Government Affairs Specialist
American Society of Nephrology

2. Kidney Community Advocacy Day 2017 Advocate Pre-Training Goals
Become familiar with KCAD messages
Learn what to except in a meeting with your Congressional delegation
Introduction
Messages
Meeting Tips
How To Prepare

3. Kidney Community Advocacy Day 2017 Training Session
Advocate training is scheduled for Monday, September 18 at 5 pm
During training, we will group you into a meetings team made up of 3-6 individuals from your state or region
Handouts will be provided to help you stay on message
Introduction
Messages
Meeting Tips
How To Prepare

4. Kidney Community Advocacy Day 2017 Messaging Goals
Advocate for issues of importance to the patients and health professionals our organizations represent:
More robust kidney research funding
Living Donor Protection Act of 2017
Introduction
Messages
Meeting Tips
How To Prepare

5. Kidney Community Advocacy Day 2017 Messaging Goals
Remember, your story is the most important message of KCAD!
Think of ways your story can connect to these messages
Introduction
Messages
Meeting Tips
How To Prepare

6. Message #1: Kidney research funding
Introduction
Messages
Meeting Tips
How To Prepare

7. Kidney Research Funding Background
A January 2017 Government Accountability Office (GAO) report on Kidney Disease Research Funding and Priority Setting underscores the need for increased investment in kidney research
The report confirms gap between cost of kidney diseases to federal government and federal investment in research
Investing in research leads to breakthroughs
Consistent, dedicated funds for research of kidney diseases critical
Introduction
Messages
Meeting Tips
How To Prepare

8. Kidney Research Funding Ask:
$2 billion increase in National Institutes of Health (NIH) funding for 2018
At-least proportional increase for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Recognize the need for increased funding for kidney and kidney transplant research, underscored by the January GAO report
Create a “Special Kidney Program”
$150 million per year for 10 years of dedicated funding for kidney research at NIDDK
Modeled after the Special Diabetes Program
Introduction
Messages
Meeting Tips
How To Prepare

9. Kidney Research Funding Ask:
Special Diabetes Program
Authorized in 1997 by bipartisan leadership of U.S. House Speaker Newt Gingrich and Clinton White House Chief of Staff Erskine Bowles
Formed after a Congressional Diabetes Research Working Group reported limitations in diabetes research due to inadequate funding
$150 million in dedicated funding per year
Has resulted in the development of the first artificial pancreas
Introduction
Messages
Meeting Tips
How To Prepare

10. Kidney Research Funding Ask Notes
The NIH has broad bipartisan support
Be sure to thank your Congressional office for their support
The $2 billion increase is necessary to keep pace with medical inflation
Most NIH funding goes back directly to individual states in the form grants
For every $1 invested by the NIH, it returns $8 of economic impact to the local economy
Introduction
Messages
Meeting Tips
How To Prepare

11. Message #2: Cosponsor the Living Donor Protection Act of 2017
Introduction
Messages
Meeting Tips
How To Prepare

12. Living Donor Protection Act Background
Transplantation
provides best outcomes for many patients
least expensive therapy
Not enough organs to meet waitlist demand
The Living Donor Protection Act of 2017(LDPA):
Eliminates barriers to living organ donation
Protects insurance of living donors
Protects the employment of living donors
Introduction
Messages
Meeting Tips
How To Prepare

13. Living Donor Protection Act Ask
House of Representatives
LDPA sponsored by:
Rep. Jamie Herrera Buetler (R-WA)
Rep. Jerry Nadler (D-NY)
Please cosponsor the LDPA
Senate
Bill has not been introduced
Please sponsor the LDPA
Introduction
Messages
Meeting Tips
How To Prepare

14. Understanding a Congressional Office: Tips for a Successful Meeting
Introduction
Messages
Meeting Tips
How To Prepare

15. Tips for a Successful Meeting-Start
Confirm which advocate is taking the lead for the meeting ahead of time
Allow everyone to introduce themselves
Introduce yourself, where you are from, and your organization
Emphasize if you are a constituent
State what you are here to discuss
Kidney research funding
Living Donor Protection Act
Introduction
Messages
Meeting Tips
How To Prepare

16. Tips for a Successful Meeting
Share personal anecdotes about how today’s asks would help you, a loved one, or a patient you know
Use provided handouts to help guide your conversation
If you do not have an answer to a question, say that you will have your organization’s staff follow up
Remember that regardless of your political affiliation or that of your Congressional delegation, they and their staff are serving you and want to ensure a positive meeting
Introduction
Messages
Meeting Tips
How To Prepare

17. Tips for a Successful Meeting- Finish
Thank the staff and/or member again
Ask if they need your organization’s staff to follow up
Keep track of the following:
Were there any questions we need to follow up on?
Did the office request more information?
What was their position on our messages?
Introduction
Messages
Meeting Tips
How To Prepare

18. Don’t be surprised if…. Your meeting lasts only five or ten minutes
You meet with an intern or young staff member
Your meeting occurs in a hallway or the office lobby
Introduction
Messages
Meeting Tips
How To Prepare

19. How To Prepare For Your Meeting
We want to ensure you feel prepared going into your KCAD meetings
Several helpful resources can be found on the participant website, including
Talking points
Tough questions and responses
Leave behinds
Please familiarize yourself, and remember you can always fall back on having your organization’s staff follow up after your meeting
Introduction
Messages
Meeting Tips
How To Prepare

20. How To Prepare For Your Meeting
We will provide several materials at the training session on Monday, September 18, including:
Meeting schedules
Bios for your Congressional delegation
Copies of meeting handouts
Introduction
Messages
Meeting Tips
How To Prepare

21. How To Prepare For Your Meeting
Preliminary schedule for Kidney Community Advocacy Day 2017
Date
Time
Event
Location
Monday, September 18
5:00 p.m. – 6:00 p.m.
Welcome Reception
Marriott at Metro Center
Washington, D.C.
6:00 p.m. – 9:00 p.m.
Advocacy Training and Dinner
Tuesday, September 19
7:00 a.m. – 8:00 a.m.
Advocacy Information Session and Breakfast
9:00 a.m. – 5:00 p.m.
Hill Visits – Individual schedules with meeting details will be distributed at the Sept. 18th Training Session
Capitol Hill Washington, D.C.
Introduction
Messages
Meeting Tips
How To Prepare

22. Questions? Please contact Zach Kribs ator