1. Disclosure of speaker’s interests
No conflict of interest

2. Informal PrEP use among MSM in Europe – first results from the EU Flash PrEP survey
Kai J. Jonas
Maastricht University
Sascha Duken
University of Amsterdam
Richard Stranz, Adeline Bernier, Vincent Schlegel
AIDES, Paris, France

3. Informal PrEP use in Europe
Denmark 6
UK 65
France 19
Germany 149
Greece 4
Netherlands 16
Italy 1
Portugal 3
Romania 0
Spain 6
Switzerland 9
Ireland 13
Other 21
EU Flash PrEP Survey, conducted Summer in 12 European countries N=
N=312 informal PrEP users, 1.96% of total population
Mean age 39, range 18-66
Gender
303 male
5 transgender
4 female

4. Types of use: Daily, intermittent and recreational
Duration
N (%)
I’m no longer using it
116 (37.5)
Less than 3 months
65 (21)
3-6 months
59 (19.1)
7-12 months
40 (12.9)
More than a year
29 (9.4)
Regimen
N (%)
Daily
155 (50.8)
Intermittent/on-demand
129 (42.3)
Other
21 (6.9)
Intermittent Regimen
N (%)
Every time you have sex
38 (26.8)
Just when you think it is risky
104 (73.2)
Intermittent regimen
N (%)
Several times a week
19 (13.3)
Once or twice a week
10 (7)
Less than once a week
22 (15.4)
Once a month
21 (14.7)
Less than once a month
71 (49.7)
Type of medication
N (multiple answers possible)
Truvada ®
192
Generic Truvada ®
113
Other 24

5. Adherence
Missing a dose
Yes / No
Daily
59 / 96
Intermittent/on-demand
75 / 53
Other
9 / 10
More individuals on an intermittent scheme of PrEP use miss a dose
Main reasons for missing a dose were:
Forgetting
Running out of tablets
No more sex
Not being able to obtain it anymore

6. Sourcing of PrEP Main sources of PrEP were:
Doctor‘s prescription (own payment)
Via PEP
Via HIV positive friends
Online purchase
Purchase generics in other countries
Costs of PrEP were:
0€ for 29.7% of the informal users
Mean = 113€ (SD = 280, range 0.1 – 2000)

7. Medical Check-ups Creatine use and informal PrEP use: 17.7%
Prior (kidney/liver)
N (%)
Yes
150 (48.1) No
162 (51.9)
During use
overall
N (%)
Daily
Interm.
Once before start
27 (18.2)
16 (16.2)
9 (25)
Every three months
96 (64.9)
71 (71.7)
16 (44.4)
Irregularly
25 (16.9)
12 (12.1)
11 (30.6)
Creatine use and informal PrEP use: 17.7%
HIV testing
A lot lower than before
N (%)
Lower than before
The same
Higher than before
A lot higher than before
Daily
2 (1.3)
4 (2.6)
69 (45.4)
51 (33.6)
26 (17.1)
Intermittent
2 (1.4)
3 (2.1)
90 (63.4)
39 (27.5)
8 (5.6)

8. Medical Check-ups: HIV testing
Past HIV testing
Past 12 months N
More than a year ago
Never
Daily
148 7
Intermittent
141 6 3
HIV test frequency/
12 month 1 N 2 3 4 5+
Daily 8 30 40 35
Intermittent 23 37 29 32 18

9. Condom use and HIV risk assessment
A lot lower than before
N (%)
Lower than before
The same
Higher than before
A lot higher than before
Daily
44 (28.9)
42 (27.6)
56 (36.8)
4 (2.6)
6 (3.9)
Intermittent
34 (23.8)
42 (29.4)
67 (46.9)
HIV risk assessment
A lot lower than before
N (%)
Lower than before
The same
Higher than before
A lot higher than before
Daily
83 (55.7)
38 (25.5)
22 (14.8)
3 (2.0)
Intermittent
53 (36.8)
47 (32.6)
37 (25.7)
7 (4.9)

10. Informal use intention
Intention to start PrEP use (excl. Romania)
No, definitely not
N (%)
No, probably not
Maybe
Yes, probably
Yes, definitely
When it becomes officially available
1281 (9.0)
2153 (15.2)
3712 (26.1)
3904 (27.5)
2885 (20.3)
Before it becomes officially available
4878 (34.3)
4345 (33.6)
2606 (18.9)
1136 (8.2)
550 (3.9)
„Yes probably“ and „Yes definitely“ percentages do not differ by country for informal use, but do differ for formal use intentions.

11. Questions and feedback:
Thanks a lot!
Questions and feedback: