1. The Care Act and UNCRPD - Experiences of Disabled People
Sue Bott, DR UK WinWin Alliance

2. Being informed by Disabled People
Independent living helpline
Member organisations
Personal experience of staff and trustees
Views collected via our website
Engagement events
Survey of views regarding the extent to which the UK is implementing the UN Convention of Rights of Disabled People

3. Experiences of the Care Act
Assessment – rigid approach allowing no flexibility, only concerned with personal care and eating and drinking
Charging for social care – charging more than can be afforded, disability related expenditure not taken into account
Use of pre-payment cards

4. Experiences of the Care Act
Employing PAs – actively discouraging having direct payments and employing PAs, no information on being a good employer
Hourly rate for direct payment holders – rarely reviewed, does not cover all costs
Integration – endless arguments between Las and CCGs

5. What we are doing?
An accessible Guide to the Care Act from a user of services perspective
With others produced a report on people’s experiences of personal budgets
Shaping Our Lives have worked with social workers

6. UNCRPD
United Nations convention on the Rights of People with Disabilities
Formal examination of UK implementation takes place in 2017
Article 10 Right to Life
Article 14 Liberty and Security of the Person – Disabled People are not deprived of their liberty simply because they are Disabled People
Article 19 Living Independently and being Included in the Community
Article 25 Health - The Right to enjoy the best possible health, and to have the same access to health care services as everyone else

7. Issues to be Raised 1
Amongst mental health service users. A sharp rise in the number of unexpected deaths
No independent system for investigating the deaths of people with learning disabilities
Mental Health Act 1983 and Mental Capacity Act 2005 not compliant with the UNCRPD

8. Issues to be raised 2
Rapid rise in the number of compulsory community and detention orders
No right to independent living in English law only ‘wellbeing’
Care packages inadequate to enable inclusion in the community
Restriction on Choice
Some CCGs have policies making residential care compulsory for people with high support needs

9. Issues to be raised 3
Premature deaths of people with learning disabilities
75% of people with mental health issues do not receive treatment compared with 25% of physical health issues
Disabled people have difficulties accessing routine health screening programmes

10. CRPD Process Report submitted to UN committee
Committee receives other reports including from government
Committee decides on its issues of concern
UK response
Conclusion and recommendations