1. Voluntary Sector Care Partnerships
New Models of Care
Voluntary Sector Care Partnerships

2. Current Care Providers for the NHS
Patient care is organised and delivered by a
number of providers:
Primary Care
Community Care
Secondary Care
Local Authority 2

3. Future Care Providers for the NHS
Recognising and utilising the voluntary
sector as another care provider:
Primary Care
Community Care
Secondary Care
Local Authority
Voluntary Sector Care
- providing sickle cell and thalassaemia care and support services 3

4. Activities of the Sickle Cell Society
Health education - Public and patient education to increase awareness of sickle cell
Training and Development – mentoring, professional placements, prison officer training
Health Promotion - Information, advice and counselling
Outreach Care - Regional care services
Respite Services - Children’s holiday, volunteering support
Continued…. 4

5. Activities of the Society
Advocacy Services - lobbying for improved services, support in accessing services
Welfare Services - Educational and welfare grants
Research and Development – Projects, studies, health impact workshops and assessments
Referral Service – referring people to screening and care centres
Expert patient development – scholarships, building support group networks

6. Sickle Cell Society ‘Services’
Activities/services confirm the contribution to health and social care by the Society
Activities/services are delivered usually via community engagement or community development model (‘bottoms up’)
Society is solely responsible for its own funding stream and its own sustainability.
Anecdotal evidence of ‘savings’ to NHS from the services provided by the Society

7. Voluntary Sector Care Provider
The Sickle Cell Society and Thalassaemia Society has
major strength in community engagement which is an
important factor in service design and commissioning for
sickle cell and thalassaemia:
NICE (Feb 08) ‘Different levels of community engagement
could directly and indirectly affect health in both the
intermediate and long term’
National Institute for Health and Clinical
Excellence, public health guidance 9, Issue date February 2008
Continued…….

8. Health Impact Community Engagement
Some approaches used for consultation with
communities -such as a workshop –may have a
marginal impact on health, but may impact on the
appropriateness, accessibility and uptake of
services.
National Institute for Health and Clinical
Excellence, public health guidance 9, Issue date February 2008

9. Society and Health Impact
Regional Care Advisers’ outreach programme – providing advice and advocacy in the home.
Standards for the clinical care of adults with sickle cell disease in the UK - nationwide consultation with support groups
Doctors /patients engagement workshop – working together on issues to improve services (Appendix 1)
…These examples are having/will possibly have intermediate and long term positive health outcomes

10. Other Levers The momentum for close collaboration with
voluntary sector is also supported by:
Tackling health inequalities: A Programme for Action (2003)
Local government white paper (2006)-Strong and prosperous communities
The White Paper: Our Health, Our Care, Our Say (2006) 10

11. Society as Care Partner
Good track record of working with NHS
professionals, professional bodies and
organisations:
The NHS Sickle Cell and Thalassaemia Screening Programme
UK Forum on Haemoglobin Disorders  
Sickle Cell and Thalassaemia Counselling Centres
Regional Antenatal Teams 
Evidence of activities /services for users  
Continued….. 11

12. Society as Care Partner
Good/ improving track record of political
lobbying:
An All Party Political Group (APPG) is in and
Sickle Cell Society is working alongside the UK
Thalassaemia Society, the NHS Sickle Cell and
Thalassaemia Screening Programme and MPs to
advance care and awareness of screening. 12

13. Key Driver for Voluntary Sector Care
The NHS Constitution sets out six principles
‘enduring high-level rules’ governing how the
NHS works:
Principle 6 –’ The NHS is committed to providing best value for tax payers’ money and the most effective and fair use of finite resources.’
DH (2008) A Consultation on The NHS Constitution:

14. The Way Forward Explore applying NICE recommendations to
Sickle Cell and Thalassaemia. Nice recommends
and sets outs prerequisites on four groups who
should take action:
Group A – People involved in planning, design funding
and evaluation of national , regional and local initiatives
Group D – People who commission, plan, design, deliver
and manage community engagement activity
NICE, public health guidance 9,
Issue date February 2008
Continued…….

15. The Way Forward Group B – Commissioners and providers in
public sector organisations….and the voluntary
sector who seek to involve communities in
planning, designing, delivering, improving, managing and the governance of:
health promotion activities
activities which aim to address the wider social determinants of health
area-based initiatives
NICE, public health guidance 9,
Issue date February 2008
Continued…….

16. The Way Forward Group C – Members of community organisations
and groups and community representatives
involved in health promotion, activities to
address the wider social determinants of health
and area based initiatives.
NICE, public health guidance 9,
Issue date February 2008

17. Some Possible Outcomes
Wider collaboration and networking among stakeholders
Increased involvement of the wider community in service planning and delivery
Wider and ongoing consultation with patients and stakeholders
Extension of care providers to include voluntary care provider for ‘grass roots’ care services
Cont’d…. 17

18. Some Possible Outcomes
Opportunity/forum for stakeholders to share ideas and best practices and audit outcomes
Core funding and resources to support and sustain the Sickle Cell Society and the Thalassaemia Society as health care partner provider
A cost effective ‘bottoms up’ model for community engagement and community care 18

19. A Community Engagement Master- Lessons for Sickle Cell

20. Taking a position within the community

21. Connecting with the Community

22. Communicating at the right level

23. I see friends shakin' hands,
Still Reaching your Target Audience

24. Outreach to get into local communities

25. Replicate local efforts nationally
Are also on the faces
Replicate local efforts nationally

26. Value the importance of relationships
sayin' "How do you do?"
Value the importance of relationships

27. Reaching out to individuals and families
what a wonderful world
Reaching out to individuals and families

28. Putting individuals and families at the centre
I watch them grow
Putting individuals and families at the centre

29. Recognising and valuing teamwork
They'll learn much more
Recognising and valuing teamwork

30. Keeping the objectives in sight

31. Achieving the objective