1. OpenNotes Community Meeting April 5th, 2016 Update
4/5/16

2. Why is records access a safety issue?
MAPS Extensive focus group work to identify solutions for safer transitions
Patients under-engaged
Assume “the system” has everything covered
Rarely told they matter in the caregiving process
Care providers end up under-informed
Misdiagnoses, mistreatments, delayed treatments
4/5/16

3. Safety is Personal
“Engaging Patients and families in improving health care safety means creating effective partnerships between those who provide care and those who receive it – at every level...”
Why Engage Patients for safety?
Extra set of eyes,
Know their symptoms
Highly invested
Always “present”
Provide insights about care and care processes

4. 4/5/16

5. NPSF Recommendations
“At its core, patient engagement is about the free flow of information to and from the patient”
4/5/16

6. IOM Report on Diagnostic Error
Estimated that 5 percent of U.S. adults who seek outpatient care each year experience a diagnostic error.
Postmortem examination research… has shown that diagnostic errors contribute to approximately 10 percent of patient deaths, and
Medical record reviews suggest that they account for 6 to 17 percent of adverse events in hospitals.
Recommendations
Health care professionals and organizations should partner with patients and their families as diagnostic team members …To accomplish this, they should…
Ensure patient access to electronic health records (EHRs), including clinical notes and diagnostic testing results, to facilitate patient engagement in the diagnostic process and patient review of health records for accuracy

7. MAPS goals for the day
Learn more about how providing access to patient records can improve patient safety,
Understand how OpenNotes can help provide this access, and
Learn how we can work with patients, employers, providers and health systems in our community to prioritize patient access to records.

8. OpenNotes Update
35+ participants; Purchasers, Health System CMOs, CMIOs, patients, MAPS member orgs, MN eHealth Initiative
Good media follow up – Star Tribune, NPR, TPT
Purchaser call for implementation
Safety research opportunities
Need to move quickly from
ACCESS Meaningful Engagement

9. Diagnostic Error in Medicine Community Dialogue

10. Convening the Community – Diagnostic Error
Goal: To develop an informal coalition of Minnesota leaders and organizations interested in addressing misdiagnosis in medicine, through collaborative efforts building from the 2015 IOM report, "Diagnostic Error in Health Care.”
Conveners: Minnesota Alliance for Patient Safety (MAPS), MMIC, and Stratis Health
Invitees:
Minnesota Medical Association
Minnesota Hospital Association
Minnesota Academy of Family Physicians
University of Minnesota Medical School/ UMP
Minnesota Department of Health
Minnesota Board of Medical Practice
Minnesota Board of Nursing
Minnesota Health Action Group
Jefferson Center
Mayo
Patient rep.
Health Partners
Blue Cross Blue Shield
Care Providers
Leading Age
Assess level of interest and commitment among attendees, and discuss a range/continuum of possibilities from least to most intense

11. 2 meetings held to date – January & March
There was great energy and enthusiasm from attendees, representing a broad array of stakeholders in health care, to continue the conversation around a coordinated effort to address diagnostic error.
Initial thoughts for action coalesced around:
shared communication and awareness building strategy
prioritization of one collaborative project to pursue - Reviewed IOM report recommendations to help prioritize ideas

12. A. High feasibility/ B. High feasibility/ Feasibility
Low impact
B. High feasibility/
High impact
Feasibility
C. Low feasibility/
Low impact
D. Low feasibility/
High impact
Impact

13. Synthesis
This is an optimistic group – very few projects had any scores in the low feasibility/low impact (C) quadrant
Two project areas emerge:
Patient/family and provider education and engagement
Role of technology and EHRs (use cases, EHR interfaces, health information exchange)
Considering for future exploration:
Awareness and Knowledge building
Collaborative project perhaps around test result communication