1. Transforming Aftercare Pathways: Your Voice
Greater Manchester Cancer
Vanguard Innovation
Transforming Aftercare Pathways: Your Voice
Tuesday, 29th November, 2016
9:30am-12:30am
The Auditorium, The Education Centre, The Christie NHS Foundation Trust

2. Welcome and introduction
Greater Manchester Cancer
Welcome and introduction
Vanguard Innovation
Mike Thorpe, Former prostate cancer patient and user representative for Manchester Cancer
Dr Wendy Makin, Executive Medical Director & Responsible Officer at The Christie NHS Foundation Trust, Greater Manchester Cancer Vanguard Innovation Lead for Living with and Beyond Cancer

3. Agenda Greater Manchester Cancer
Vanguard Innovation
9:30am-10am: Registration & refreshments
10am-10:10am: Welcome & introduction to the day
Co-chairs Dr Wendy Makin and Mike Thorpe
10:10am-10:30am: What is cancer aftercare?
Dr Wendy Makin
10:30am-11am: Our story: experience of cancer aftercare
Patrick Fahy
Julie Orell Davies
Vanessa Denvir
11am-12pm: Breakout sessions
Attendees
12pm-12:30pm: Feedback, discussion and next steps
12:30pm-1pm
Lunch and close

4. From Cancer ‘Follow up’ to ‘Aftercare’: what is changing and why?
Greater Manchester Cancer
Vanguard Innovation
From Cancer ‘Follow up’ to ‘Aftercare’: what is changing and why?
Dr Wendy Makin
Executive Medical Director & Responsible Officer at The Christie NHS Foundation Trust, Greater Manchester Cancer Vanguard Innovation Lead for Living with and Beyond Cancer

5. What’s follow up for? To report any problems
Greater Manchester Cancer
What’s follow up for?
Vanguard Innovation
To report any problems
Keep in touch with my specialist
A check up
To reassure me I’m doing OK

6. But does follow up always do what you hope?
Greater Manchester Cancer
Vanguard Innovation
But does follow up always do what you hope?
Busy clinic
Different face – they don’t know me
I’m not sure what the plan is for tests
Do I know what I should ask ?
Do I mention this?
Big build up, long wait

7. Isn’t it about picking up cancer relapse early?
Greater Manchester Cancer
Vanguard Innovation
Isn’t it about picking up cancer relapse early?

8. Cancer recurrence Most happen between hospital visits!
Greater Manchester Cancer
Cancer recurrence
Vanguard Innovation
Most happen between hospital visits!
In people without symptoms, very few relapses are discovered through clinic checks
Specialists know the likelihood of recurrences over time for a particular type of cancer
Protocols for follow up tests are based on probabilities and the best way of picking up a problem before symptoms arise
Too many scans can be harmful (radiation dose)

9. So what could better look like?
Greater Manchester Cancer
So what could better look like?
Vanguard Innovation
A clear plan: my tests, what to look out for and to report
Tests are efficiently organised and I get the results without delay
A way of keeping in touch with my cancer team, at any time
I know what to expect after treatment has finished
I know what I can do for my well-being and future health
If I need help, I get advice and can be seen quickly

10. What about the on-going and later effects for the treatment?
Greater Manchester Cancer
Vanguard Innovation
What about the on-going and later effects for the treatment?
Not well recognised in the past
Often not asked about in follow up clinics
Patient and GP may not realise the connection
Can add to other health problems
We need:
Better information for patients and GPs
A process where people can report, and get advice and assessment of problems
Ways to collect data so we pick up on problems as treatments change

11. Greater Manchester Cancer
Vanguard Innovation
A move from ‘routine’ clinic visits to a more flexible model in low risk groups

12. The Cancer Vanguard: an opportunity to do things differently
Greater Manchester Cancer
Vanguard Innovation
The Cancer Vanguard: an opportunity to do things differently
Work is underway to design a different model following treatment for early breast, bowel and prostate cancers
This is drawing on experiences in Manchester and other parts of the UK:
Fewer face to face appointments, but easier contact with team
A clear plan for tests and health monitoring
Roll out of the ‘Recovery Package’ as treatment finishes
Patients are well informed, and prepared and equipped

13. Greater Manchester Cancer
Promoting Recovery
Vanguard Innovation

14. Example: Macmillan - Manchester early breast cancer project 2016-
Greater Manchester Cancer
Vanguard Innovation
Example: Macmillan - Manchester early breast cancer project 2016-
During treatment preparation starts
At 12 months post surgery
HNA - ‘general check’
Treatment summary and plan for monitoring
tests shared and explained, signposts to support
Care plan made
Health and well being event- groups of patients
Cancer care review with GP
Contacts with test results and responding to concerns

15. Over to you! Sharing experiences, Shaping the future
Greater Manchester Cancer
Vanguard Innovation
Over to you!
Sharing experiences,
Shaping the future

16. Our story: experience of aftercare
Greater Manchester Cancer
Our story: experience of aftercare
Vanguard Innovation
Patrick Fahy
Julie Orell Davies
Vanessa Denvir

17. Breakout sessions Auditorium: breast cancer aftercare pathway
Greater Manchester Cancer
Breakout sessions
Vanguard Innovation
Auditorium: breast cancer aftercare pathway
Foyer: prostate cancer aftercare pathway
Seminar room 3: colorectal cancer aftercare pathway
For those affected by different cancer types – feel free to join any group!

18. Feedback and discussion
Greater Manchester Cancer
Feedback and discussion
Vanguard Innovation
Led by:
Dr Wendy Makin, Executive Medical Director & Responsible Officer at The Christie NHS Foundation Trust, Greater Manchester Cancer Vanguard Innovation Lead for Living with and Beyond Cancer
Mike Thorpe, Former prostate cancer patient and user representative for Manchester Cancer