1. Developing e-Infrastructure for wellbeing research
Dermot O’Reilly
Director ADRC-NI

2. CHaRMS main themes
Health
Employee wellbeing
Population science
ChaRMS

3. Map of health and care data sources
Audit databases
Care home
Registration
B.S.O.
GP PRACTICE
Patient
Register
Registers
Spatial data
Dental
E.P.D
Screening
Census
N.I.L.S.
28%
NI Biobank
Honest Broker Service
DATA
WAREHOUSE
Child Health
Primary care
Social services
Hospitals
Laboratory
Maternity
Psychiatry

4. The Northern Ireland Longitudinal Study

5. Examples of NILS-based studies
Area factors and health:
Segregation and mental health
Teenage pregnancies
Change of address and mental health in children
Admission to nursing homes
Informal caregiving and volunteering
Mixed marriage and divorce risk
Social mobility
Long-working hours and mortality risk
Occupations and mental health
A comparison of denomination and mortality risk in Scotland and Northern Ireland
Effects of bereavement on mental health
Factors related to uptake of breast screening

6. Administrative Data Research Centre – Northern Ireland
Education
Census & vital events
H.M.R.C.
Criminal Justice System
Social Security
Benefits
ADRC
Environment
Housing
Local authority
Agriculture

7. The Farr institute ADRN Southampton London Belfast Manchester Swansea
Dundee
ADRN
Southampton
Belfast
Swansea
Edinburgh
Essex (ADS)

8. Examples of ADRC-NI based studies
Health of farmers and their families
Social mobility and factors related to educational attainment
Migrants: mental health and health needs
Accuracy of health service address information
Psychotropic medication and completed suicide
Variation in glaucoma treatment compliance
Variation in uptake of eye test for older people
Health and uptake of social security benefits
Effect of airport noise on mental health of residents

9. Stakeholders engagement and KTE
Government and policy makers:
Stormont launch Dec 2014
NI Assembly Research & information Services
Senior statisticians all departments
Masterclass
KESS seminars
Collaborating with…
Dept of Health
Dept of Education
Dept for Communities
Dept for the Economy
Dept Agriculture, environment and rural affairs
PSNI

10. Stakeholder Engagement
Academia
NI-wide:
Invited talks to Schools, Departments, interest groups
Seminars
User group
Data workshops
Research awayday
UK-wide:
Web-based
Research events (ADRN, ESRC,MRC etc)
Visits to other centres
Outreach events (ex. ESRC Festival of Social Science)
International:
Project linkages
International Population Data Linkage Network Conference 2016
Rainbow Project: Conversations at the start of the same-sex marriage project (Martina Casey). [Note: I am not sure what further conversations Martina may have had subsequently]
National Children’s Bureau: Meeting to discuss research possibilities and interests (at that point relevant data was not yet available, will be following up). Interested in using data and research to develop evidence for policy recommendations to improve children’s lives in Northern Ireland
NICVA: Detail Data project focusing on Open Data and supporting CVSEs to use available data to strengthen evidence base. Conversations around how our projects could be complementary, holding joint training/seminars, etc.
Trade unions: Presentation at conference on using research to make a persuasive argument and how data accessible through the ADRC-NI could support this
ESRC FoSS: event specifically aimed at CVSE groups looking to make better use of data and research; building research partnerships with academics

11. Stakeholder Engagement: the public
Organisational
Principles of openness and transparency
Citizen panels
Lay representative
Population surveys:
UK-wide: ‘Dialogue on Data’
NI: Module on Life & Times Survey
Specific groups
Privacy Advisory Committee
National Children’s Bureau (NI)
NICVA
The Rainbow Project
Trade Unions
Presentations at sector-specific conferences
Outreach events
ESRC Festival of Social Science
Imagine Belfast: a conversation on Big Data
Showcasing event Stormont Jan 2017
Rainbow Project: Conversations at the start of the same-sex marriage project (Martina Casey). [Note: I am not sure what further conversations Martina may have had subsequently]
National Children’s Bureau: Meeting to discuss research possibilities and interests (at that point relevant data was not yet available, will be following up). Interested in using data and research to develop evidence for policy recommendations to improve children’s lives in Northern Ireland
NICVA: Detail Data project focusing on Open Data and supporting CVSEs to use available data to strengthen evidence base. Conversations around how our projects could be complementary, holding joint training/seminars, etc.
Trade unions: Presentation at conference on using research to make a persuasive argument and how data accessible through the ADRC-NI could support this
ESRC FoSS: event specifically aimed at CVSE groups looking to make better use of data and research; building research partnerships with academics

12. Building capacity General: NILS: x2 Studentships; MPH dissertations
AM & JM STATA course
Support research teams (PHA, other Schools) in HBS
NILS: x2 Studentships; MPH dissertations
ADRC:
Trained 67; (Academics, Government)
Trained the trainers
15 Postdocs
X5 Studentships
ESRC studentships
Seminar series
Data workshops
ESRC Methods Festival 5-7th July Bath
RoI:
HRB Data linkage initiative

13. Where are we going with this?
Putting NI on the map: Data, projects, dissemination
Extending our reach:
Community, Voluntary and Social Enterprise (CVSE)
MQ Mental health and Big data
SHELs
Intra UK projects: greater than the sum of the parts
International
Strategic capacity building: disciplines, focus - benefits
Methodological Innovation:
Synthetic data
POD(s)
Survey linkage without consent
Technical solutions to resource constraints
Investment: building on existing investments
SDAI
Programme grants

14. The future will be better tomorrow.
Thank you: Questions?
The future will be better tomorrow.
Dan Quayle
ADRC-NI