1. Personal Experiences of Progressive Multiple Sclerosis (MS)
Have you been diagnosed with primary progressive MS within the last 5 years or have you transitioned to secondary progressive MS within the 5 years?
Are you over 18 years old?
Are you interested in taking part in a study which may help improve services for people with progressive MS by sharing your experiences?
We would like to speak to 444 people newly diagnosed with primary or secondary progressive MS in order to identify helpful and not so helpful ways of managing your MS.
Taking part in the project would involve completing some questionnaires about your experiences of MS on two occasions 12 months apart. The questionnaire assessment will take about 1 hour to complete. You will receive £10 each time for your participation (£20 in total). The questionnaires can be completed online, at home and returned by post, or with a researcher at City University.
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REC No: 16/WA/0034; PSYETH (S/F) 15/16 101; 02/06/16; Version 2