1. NAACCR and caBIG® Interoperability
Lewis J. Frey, PhD

2. Objectives Provide an overview caBIG® and interoperability
Show a specific caBIG case with NAACCR standards
Discuss the implications of caBIG interoperable NAACCR standards

3. Information tsunami and the tower of Babel
The Information Tsunami
The ever increasing and overwhelming
volume of data
Multitude of data sources
(clinical, genetic, epidemiologic, etc…)
Material from: and caBIG Nursing Overview.ppt
Tsunami: This image (or other media file) is in the public domain because its copyright has expired.
Tower of Babel: This image (or other media file) is in the public domain because its copyright has expired.
A Research Tower of Babel
Each research community speaks its own scientific “dialect” resulting in a confusion of tongues
Integration is critical to achieve understanding & synthesizing
findings for discovery
Material adapted from:

4. National Cancer Institute (NCI)’s cancer Biomedical Informatics Grid (caBIG®)
“Connect scientists and practitioners through a shareable and interoperable infrastructure”
“Develop standard rules and a common language to more easily share information”
“Build or adapt tools for collecting, analyzing, integrating, and disseminating information associated with cancer research and care. “
“The mission of caBIG™ is to develop a truly collaborative information network that accelerates the discovery of new approaches for the detection, diagnosis, treatment, and prevention of cancer, ultimately improving patient outcomes.”
caBIG is an initiative to connect scientists and practitioners with standards based tools and services to ultimately improve patient outcomes.
1. About caBIG™ accessed July 25, 2008 4

5. caBIG® Interoperability
Reciprocal use of system resources through models and services
Models express the meaning of communication
Stravinsky’s “Rite of Spring” causes a riot at premiere
Services express the means of communication
Beatles’ “I want to hold your hand” on 8-track tape

6. Why caBIG® Interoperability?
Addresses information tsunami and the tower of Babel
Transmit cancer surveillance data
Secure
Efficient
Timely
Avenue to expand registry information
Clinical
Biological
Genetic

7. caBIG Resources

8. NAACCR CancerID in caDSR
NAACCR standards in the cancer Data Standards Repository (caDSR) - Beth Schmidt and Lori Havener

9. NAACCR CancerID in caDSR

10. CancerID Enterprise Architect (EA)

11. CancerID Enterprise Architect (EA)

12. CanerID caAdapter

13. CanerID caAdapter

14. CanerID caAdapter

15. CancerID Elements on Grid

16. Utah NAACCR Data Services

17. Benefits of caBIG® Interoperability
Latency
Services to pass data between providers and registries on the grid
Bypasses “sneaker net”
Quality
Services to assess data quality while it is still at the provider’s site
Goal is to reduce follow-back

18. Conclusion
caBIG provides a process to converge on a common understanding for efficient information exchange.
Through reciprocal use, you can use the work of others to advance your work.
NAACCR standards are already part of caBIG.
Latency and quality of NAACCR data can be improved by building on the caBIG system.

19. Funded in part by the NCI caBIG Initiative caBIG Community
Acknowledgements
Funded in part by the NCI caBIG Initiative
caBIG Community
Dianne Reeves
Mary Cooper
Many others
NAACCR Community
Beth Schmidt
Lori Havener
University of Utah
Antoinette Stroup (Utah Cancer Registry)
Martin Cryer
Ron Price