1. Promoting Inclusive Development: A CBR strategy in Tribal Location
Shibu George
GLRA India
19th International Leprosy Congress, Beijing 18th – 21st September 2016

2. Background
Project ‘Support to People with Disabilities’ is being implemented across predominantly tribal communities in Sendhwa block, Madhya Pradesh, India from November 2013
Project is co-financed by Ministry of Economic Cooperation & Development (BMZ) and DAHW Germany.
St. Augustine Social Service Society is the implementing
organization of this Community Based Rehabilitation
project with monitoring by GLRA India.
19th International Leprosy Congress, Beijing 18th – 21st September 2016

3. Background - Location & Demography
Sendhwa is an administrative sub-district in Madhya Pradesh in Central India
287,803 population spread across in 190 villages & one Municipality
80 % of population are Tribals living in interior hamlets
Literacy rate 52 %
Agriculture is the main livelihood
Estimated 20,940 People with Disabilities in the district (1.51 PR)
Sendhwa contributes 5,035 People with Disabilities (1.78% PR) in the district
19th International Leprosy Congress, Beijing 18th – 21st September 2016

4. Objectives
To improve the quality of life of People with Disabilities and enable them to play an active role in their social and economic life with family and community
To help the People with Disabilities to gain equal rights in the society and to participate equally in the community by establishing bridge between the individuals, family and the community
Project attempts to remove the barriers of People with Disabilities for accessing various services provided by the Government departments and civil society organizations
19th International Leprosy Congress, Beijing 18th – 21st September 2016

5. Methods
The project works in all the 5 domains of Community Based Rehabilitation
Health
Education
Social
Livelihood
Empowerment
Project envisioned, through inclusive effort and collective advocacy People with Disabilities including leprosy accessing entitlement's and social security benefits
19th International Leprosy Congress, Beijing 18th – 21st September 2016

6. Methods – Interventions
Baseline survey to identify and assess the real life situation of People with Disabilities
Formation of inclusive Self-Help Groups & Disabled People Organizations (DPO)
Vocational training
Disability screening, prevention, disability certification camps
Seed money support to SHGs & DPOs for income generation and Linking to National Rural Livelihood Mission
Facilitation to avail social welfare schemes & Provision of assistive devices
Home based self care – self esteem training to affected & their care givers
Sensitization of civil body leaders involving government departments / authorities
Information, education & advocacy campaigns on rights
Constitution of Disabled People Federation (DPF) as an independent society for sustenance of activities
19th International Leprosy Congress, Beijing 18th – 21st September 2016

7. Findings - Baseline Survey
5135 people with disabilities living in Sendhwa
36.4 % loco motor disability
26% Multiple disability
14.5% with visual impairment
6% hearing impairment
4.4% Gr. II Leprosy disability
13.7% other disabilities
19th International Leprosy Congress, Beijing 18th – 21st September 2016

8. Findings - Socio Economic Status
73% are illiterate and 7% have not completed primary education
60.4% are male population and majority are between age group years
35% children with disability only have access to education
6% are participated in the social programs
4% only have membership in the Self-Help Group.
12% only have the National Disability Certificate
25% do not have the ration card to get their food grains
19th International Leprosy Congress, Beijing 18th – 21st September 2016

9. Results- Screening, Prevention and need based services
Prevention programme offered
33 new Leprosy cases detected and referred to PHC for treatment
316 cataract surgeries
Provision of 15 hearing aids
21 leprosy affected people referred for ulcer management and Re-constructive surgery
1707 PWDS obtained disability certificate
Disability Prevention & Detection camps
No. of Eye Camp
No. of Screen Camp
No. of School Camp
Attendence 16 14 8
6200
Screening camps & disability certification
19th International Leprosy Congress, Beijing 18th – 21st September 2016

10. Results – Supply of Assistive devices
Aids & equipment
Beneficiaries
Tricycle
132
Crutches
166
Wheel chair 13
MCR foot wear 88
Sitting Mover/ others
130
Hearing aids 18
Total
547
19th International Leprosy Congress, Beijing 18th – 21st September 2016

11. Result - Social Security
Disability Pension
Educational Scholarship
Health Insurance
Housing Scheme
Train Travel Concession
Marriage Support
Total
1171
211
285
195
130 10
2002
A detailed list of people with disabilities who are not availing social security schemes has been submitted to the government
19th International Leprosy Congress, Beijing 18th – 21st September 2016

12. Result - Self care & Self Esteem training for PwDs
Target
No. of PWD’s trained
No. Care givers Trained
Total
14400
3000
10734
13734
Self-care kits were distributed, with assistive/supportive materials, for mentally challenged persons
Improving self-esteem
19th International Leprosy Congress, Beijing 18th – 21st September 2016

13. Result - Skill Development
Tailoring
Spices
grinding
Vermin
Compost
Carpentry
Weaving unt
Pickle Making
Total
142 21 18 12 16 17
226
Weaving loom
Tailoring training
Vermin compost making
19th International Leprosy Congress, Beijing 18th – 21st September 2016

14. Results - IEC & Advocacy
Materials/ activities
Purpose
Status
Brochure
Stigma reduction
15000 distributed in 191 villages
Scheme Booklet
Educating SHGs & caregivers on various services offered by GOI & Go MP
Discussed and shared in all SHG’s, DPO’s & civil body meeting
Wall writings
Stigma reduction & Prevention
Major 35 locations in the block
Public announcements
Prevention program
Done in all major 60 village locations in the Block
Survey finding booklets
Sensitizing the government & local bodies about the actual situation of PWD in the block
Distributed and shared through individual advocacy & meetings with Govt dept.
19th International Leprosy Congress, Beijing 18th – 21st September 2016

15. Result – Formation of SHGs & DPOs
154 SHGs formed (each SHG have members), 1800 members
30 DPO's (20-35 members each) were formed with 964 members.
Selected leaders among the mobilized group
Initial training with DPO Leaders & Project staff completed
Capacity building of DPO’s is progressing
Disability People’s Federation is registered
Self Help Group meeting
19th International Leprosy Congress, Beijing 18th – 21st September 2016

16. Result - DPO Constitution
DPF
Block level
30 DPO’s
GP level
Cluster 1
4-5 SHG
Cluster 2
4-5 SHG
150 SHG’s
Village level
19th International Leprosy Congress, Beijing 18th – 21st September 2016

17. Conclusion
Confidence and awareness about the rights among People with Disabilities and family members need to be increased while promoting inclusive rehabilitation
Motivation of People with Disabilities to access to entitlements in the forms of Education, Scholarship, Mobility aid & appliance, Travel concession, Housing scheme, Health insurance and Disability certificate is important to provide a quality life
Social mobilization in the form of SHG, DPO with the involvement of their family members enhances the access of entitlements.
For Disability inclusive development, liaison with local government and affected people participation to be ensured to reach larger population in remote locations
19th International Leprosy Congress, Beijing 18th – 21st September 2016

18. Thank You Co-authors Sr. Julia OSA 2 Roland Muller 3
G. Srinivas1
J. Ravichandran1
V. Kanagasabapathy1
1 &3 German Leprosy & TB Relief Association
2- St. Augustine Social Service Society, Sendhwa, India
19th International Leprosy Congress, Beijing 18th – 21st September 2016