1. Sharing experience in treating with EHL product , Banjarmasin
Wulandewi Marhaeni
SMF IKA RSUD Ulin / FK Universitas Lambung Mangkurat Banjarmasin

2. Indonesia
Banjarmasin South Kalimantan , 38, km2

3. Demographic of South Kalimantan
The population of Banjarmasin city is people
The population of South Kalimantan Province is 4,119,794 people
The numbers of hospital in the province of South Kalimantan :
22 government hospitals
19 private hospitals
Centre haemophilia in RSUD Ulin (3rd level) in Banjarmasin

4. Population of patients served by haemophilia centre
Children and adult
Patient numbers
Haemopilia A : 24 Patients ( children 21, adult 3 )
Haemophilia B : 5 Patients (children 4, adult 1)
VWD : 1 patient

5. Staff working with haemophilia at Ulin General Hospital Banjarmasin
Patients have access to hospital 24 hours at the centre
Staff Medic
2 haematologist pediatrician
1 haematologist internis
14 nurses in haematology ward
1 urologist
1 pediatric surgery
1 orthopedic surgery
4 doctor physiotherapist
2 dentist

6. Cases number per year Hemarthrosis 40 Gum bleeding 17 Haematoma 87
Circumcision 6/4
Intracranial haemorrhage 3
Melena 2
Bleeding from another site 5

7. Coagulation products used
Haemohilia A
Plasma
pdFVIII
Haemophilia B
PCC
Human coagulation FIX

8. Treatment methode
100 % on demand

9. Experience with EHF By Donation 10 patients received donation
9 patients haemophilia A
1 patient haemophilia B

10. Procedure for obtaining donation
Indonesian Hemophilia Society announcement for donation
Indonesian Hemophilia Society South Kalimantan branch propose request for donation
Application be considered by the board
Application approved
Branch  received a letter of acceptance
The Branch taking EHL donation from Jakarta after coordination with the board

11. Prepare before propose donation
Consolidation with hemophiliacs family and the team of doctor at the centre of hemophilia ( Ulin Hospital)
Select Patients
Procedures
Schedule for implementation of the action
Told member to take AHF from Jakarta

12. Donation receipt schedule
In May 2016 for 4 children
In November 2016 for 3 children
In March for 3 children

13. List of patients receiving EHLno
Patients
Action
Level F VIII / F IX
hemophilia
vial
Total I Unit 1
M (15 yo/35 kg)
circumcision
1.83% A 10
10,000 2
F (9 yo/23kg) 2% 3
RAS ( 8 yo/23kg)
1.99% 4
MRF(6,7 yo/22kg)
7,500 5
MNA(6,7yo/17kg)
0.83% 8
6,000 6
SW (11 yo/27kg) 5% 7
AG (5.5 yo/21 kg) 20
15,000
MAM(8 yo/20kg) 9
MF(7.7 yo/19kg)
ICL (8 yo/25 kg)
hemarthrosis 3% B
2,000

14. Preparation for circumcision in patients with hemophilia used EHL product in ulin Hospital
Coordination with urologist / pediatric surgery/ anesthetist
Laboratory check
Patients were given AHF until coagulation test normal
Patients were given EHL before and after circumcision
Patients were given EHL once a day until the wound is healed

15. Donation for patients with haemophilia A
We accept donation for 9 patients
Prepare for circumcision
The average length of stay 9 days
No side effect
2 patients got re bleeding after discharge

17. Donation for patients with hemophilia B
1 hemophilia B patient receive donation
Hemarthrosis on knee joints
Receive 2 vials EHL ( 2000 IU)
No side effect
Haemarthrosis heal properly

18. thank you