1. ANZDATA session ANZSN-ASM 2017
Matthew Jose ANZDATA Overview
Andy Salmon (NZ) Patient-reported Outcomes
Matthew Sypek Transplant wait listing and organ utilisation
Carmel Hawley Examination of centre-effects using ANZDATA registry

2. ANZDATA Working Groups: Advanced trainee membership 2017
Paediatrics – Jean Koh
PROMs – Nicole Lioufas
Indigenous Health – no nomination 4 Female: 1 Male
HD – Emily See
PD – Jenny Chen
Transplant – Eric Au

3. ANZDATA Working Group Chairs
Paediatrics – Amelia Le Page
PROMs – Rachael Morton
Indigenous Health – Jaqui Hughes (Aust) & Suetonia Palmer (NZ)
HD – Matthew Roberts
PD – Neil Boudville Female: 3 Male
Transplant – Wai Lim

4. ANZDATA overview Matthew D. Jose Chair, ANZDATA Steering Committee
Professor of Medicine, University of Tasmania
Renal Physician, Royal Hobart Hospital

5. Stock and Flow Last full-year’s data = 2015 calendar year
Datalock for 2016 data expected in November 2017

6. RRT AUS & NZ – 31 Dec 2014 Transplant 11,702 Dialysis 14,852
RRT Dec 2014
26,554

7. RRT AUS & NZ 2015 3,186 new starts Transplant 11,702 126
pre-emptive Tx
4.0%
3,060
new dialysis
96.0%
Dialysis
14,852

8. RRT AUS & NZ 2015 3,186 new starts Transplant 11,702 126
pre-emptive Tx
3,060
new dialysis
979 Tx
from dialysis
Dialysis
14,852
298
Graft fail

9. RRT AUS & NZ 2015 3,186 new starts 2,305 deaths Transplant 11,702 265
deceased Tx recipients
2040
deceased dialysis pts
126
pre-emptive Tx
3,060
new dialysis
979 Tx
from dialysis
Dialysis
14,852
298
Graft fail

10. RRT AUS & NZ 31 Dec 2015 3,186 new starts 2,305 deaths Transplant
12,245
(+4.6%)
265
deceased Tx recipients
2,040
deceased dialysis pts
126
pre-emptive Tx
3,060
new dialysis
979 Tx
from dialysis
Dialysis
15,135
(+2.6%)
298
Graft fail
RRT 2015
27,380
(+3.3%)

13. Growth in prevalence: Australia

14. Growth in prevalence: New Zealand

19. New Zealand Chapter

20. For consumers

21. Figure 13.8 Overall number of patients treated with renal replacement therapy in New Zealand

22. Kidney Transplant

31. ANZDATA Registry 39th Annual Report Chapter 10: Cancer Report on Melanoma
Data to 31-Dec-2015
Thanks to: Angela Webster
Germaine Wong
Jonathan Craig
& many members of the Cancer working group

32. ANZDATA Working Groups: Advanced trainee membership 2017
 HD – Emily See
 PD – Jenny Chen
Transplant – Eric Au
Paediatrics – Jean Koh
PROMs – Nicole Lioufas
Indigenous Health– no nomination

33. Heads of Unit survey
January 2017

34. answered question 54
skipped question 1
Answer was N/A 2

36. answered question 53
skipped question 2

38. ANZDATA – data governance
Data in
Data out
Considerations
Indigenous Governance
Non-competition time period
Non-contributor access
Electronic entry
XML, CSV – yes
HL7 - soon
Web access to your data

39. Data in: 2017
ANZDATA.org.au/data management

40. Review of data submitted

41. ANZDATA – Clinical Quality registry
Mortality
Dialysis/Tx
Vascular access
Cancer
Current
Acknowledge John McNeil for schema

42. ANZDATA – Clinical Quality registry
Mortality
Dialysis/Tx
Vascular access
Cancer
Registry Clinical trials
Safety – preventable deaths
Patient-reported outcomes
Unit resources
Indigenous – relevant data
Water Quality
Nutritional information
Linkage to other databases
SONG Outcomes
Current
Future ?
Acknowledge John McNeil for schema

43. Review of ANZDATA Review of ANZDATA (Oct –Dec 2017) Funding ANZSN
AOTA (Australian Govt)
NZ Ministry of Health
KHA

44. Acknowledgements Units – patients, doctors, nurses, allied health
Data and time
Interest and attendance
Enquiries - >2000 per annum
Feedback
Funders:
Australian & NZ Governments, KHA, Amgen, pharma
ANZSN
ANZDATA stand, ANZDATA Session
Staff & Volunteers within ANZDATA
Executive, Office, Steering Committee and Working Groups