1. Person centred research
Manchester Clinical Dementia Research Group Division of Neuroscience and Experimental Psychology Francine Jury

2. Dementia Clinical Research: Detection and Intervention
Theme:
‘Treatment and Management’

3. Participation in clinical research
Age
Medications
Carers
Co-morbidities
Mental capacity
Life expectancy for males age 65 is 80.9 years and females 83.8 years
Mobility
Diagnosis
Location

4. GM Dementia 5 year strategy
5 domains of dementia care
Preventing well
Diagnosing well
Living well
Supporting well
Dying well

5. Dementia strategy assistive technologies
Preventing well
Diagnosing well
Living well
Supporting well
Dying well
Dementia friendly technology charter

6. Treating and managing well
Dementia Strategy
Preventing well
Diagnosing well
Treating and managing well
Living well
Supporting well
Dying well

7. Options for patients
Current medications have some effect for a short period of time
Clinical trials of new drugs failing
Stage of dementia too advanced
Availability of participants
Psychosocial interventions
Outcome measures

8. Early diagnosis
Before cognitive impairment recognised by patient /carer
Amyloid deposits
Behavioural changes
Gait analysis
Voice changes
Changes in computer use
Sleep patterns

9. Exploring both the feasibility of collecting data from patients and carers, and the potential of the dataset to inform the care of people with memory problems.
The dataset includes the recently published ICHOM Standard Set for Dementia and information about the patient’s pathway through the memory assessment services and the care interventions provided, such as different therapies and support services.
Sub studies
Mobile data collection: using a web/mobile app to collect self-reported data on a weekly basis from home
Wearable device: using a wearable device that looks like a watch to collect information on activity and sleep over a 12 weeks period

10. Wearable devices Issues
Withings Activité Pop
Sleep and activity tracker
Battery life 8 months
Focus group choice
Wear for 3 months
Issues
Tolerance /acceptability / availability of tech
Enablers - children, carers, partner
22/260 participants
Commercial device- not raw data / algorithms
Sleep activity
REM sleep disorders – thrashing about
Parkinsons – tremors

11. Change of device AX Axivity 3 Sleep and activity tracker
Battery life 2 weeks
Closed system storage
No need for app
Raw data accelerometer data