1. Managing Health Information: We’re In It Together
Nordic Baltic EAHIL Workshop
June 25-28, 2003
Oslo, Norway
Eve-Marie Lacroix
National Library of Medicine
National Institutes of Health
U.S. Dept. of Health and Human Services

2. Global Internet – Local Reach
Internet – Global look
E-Health today
Collaboration
Go Local – Health Information
MEDLINEplus
PubMed Links
PubMedCentral

3. Internet Growth Trends
1977: 111 hosts on Internet
1981: 213 hosts
1983: 562 hosts
1984: 1,000 hosts
1986: 5,000 hosts
1987: 10,000 hosts
1989: 100,000 hosts
1992: 1,000,000 hosts
2001: 150 – 175,000,000 hosts
2002: over 200,000,000 hosts
By 2020, about 80% of the planet will be on the Internet
Source: Internet Society

4. Global Internet-Language
Global Reach.biz 2003

5. US Internet Use 178 million current Internet users
122 million active Internet users
The active user:
Visits 98 domains per month
Spends 25 hours per month on the Net
Source: Nielsen/NetRatings May 2003

6. Broadband
Source: Neilson/Ratings May 2003

7. Active eHealth Consumers Online
Millions of U.S. Adults (18+)
Q M
Online = Monthly or More
Q M 65% of The
Online Segment
MID-YEAR
Source: Cybercitizen Health v2.0
Manhattan Research, LLC 2002

8. Health-Related Activities Online (Past Three Months)
Significant Growth in the Connectivity Continuum
Source: Cybercitizen Health v2.0
Manhattan Research, LLC 2002

9. Looking Forward Larry Ellison, CEO
“It’s just the dawn of the Information Age. You ain’t seen nothing yet.”
Larry Ellison, CEO
Oracle Corp.
July 19, 2002

10. The Potential Internet – unrealized potential
Access to health information
Reach every person in the world
Internet – tremendous challenges
Many interfaces,developers,sponsors
Quality, currency, appropriateness
Language

11. Working Together Librarians – medical, public, all
Physicians & Health Care Providers
Publishers
Patients, general public
Educators
Engineers, technologists

12. “Go Local” Linking MEDLINEplus and Local Resources

14. MEDLINEplus Go Local Model

15. NC Health Info Funded by NLM Partnership at University of North
Carolina at Chapel Hill
Health Sciences Library
School of Information and Library Science
Launch at NC site in December

16. Pittsboro Memorial Library

17. Linking to local health resources on the web
Community resources
Health classes, support groups, home health care providers, hospices
Healthcare providers
Dentists, counselors, breastfeeding consultants, massage therapists
NOT: medical or disease information
Provided by MEDLINEplus

18. NC Health Info Partners
Public libraries and librarians
Health educators - county public health departments
AHEC libraries and librarians
State health professional associations (physicians, dentists, nurses, etc)

19. Health information & local resources
Example - Breast Cancer
MEDLINEplus
NIH Info
News
Overviews
Treatment
Coping
Research
MEDLINE search
ClinicalTrials.gov
etc.
NC Health Info
Health screening services
Cancer care facilities
Support groups
Exercise and yoga classes
Providers of wigs and prostheses
Oncologists
etc.

24. MEDLINEplus en español

25. MEDLINEplus en español
Over 550 health topics
4,000 encyclopedia articles
150 interactive tutorials
Coming: drugs, news
> 3 million page views in May by 350, unique visitors
120 countries – Mexico, Spain, Latin America, Switzerland, Portugal, Finland…

26. MEDLINEplus Survey – February 2003
Intercept/Survey Process:
1) MEDLINEplus visitors were randomly intercepted on the site and asked to take part in the survey. Visitors had the option to take the survey in either English or Spanish.
2) Visitors who agreed to take part in the survey were temporarily redirected to take the survey in a separate browser window.
3) After completing the survey, visitors continued searching.

27. Country of Residence * -
- No respondents
* Less than .5%

28. Key findings
Most find MEDLINEplus from a search engine or web page – 68%
Most use MEDLINEplus from home – 60%
Most users are female – 70%
Over 95% said they are “likely to return” – 98% for the English site.

29. Health Information Prescription
Partners:
American College of Physicians
American Society of Internal Medicine Foundation
Medical Libraries

30. Prescription Pad

31. Linkout - Libraries

32. HINARI - LinkOut

34. WISER Wireless Information System for Emergency Responders
Hot zone
HAZMAT
Specialists
Incident Command
Local Incident Server
(Laptop)
Warm zone
First
Responders
LAN
Connected
Disconnected
WAN
LOCAL INCIDENT AREA
Wireless
PDA to
local server
PDA to PDA
HSDB
Local Fire and
Rescue Unit
WISER system concept

35. PubMed on TAP
For more info:

36. Click for even larger text
Click for audio of text
Click for even larger text

37. Additional topics Hearing - NIDCD Balance disorders - NIDCD
Arthritis - NIAID
Breast cancer - NCI
Colorectal cancer - NCI
Lung cancer - NCI
Prostate Cancer - NCI

38. PubMed Central

39. PubMedCentral Backfiles
Publishers & Associations
Scan and uncorrected OCR
High volume scanning of guillotined volumes, not NLM’s archival copy
Quality review and link images to PubMed

40. PMC Journals
Journals published by the American Society for Microbiology
Proceedings of the National Academy of Sciences
British Medical Association ( )
Canadian Medical Association Journal ( )
Bulletin of the Medical Library Association ( )
Annals of Internal Medicine - ACP

41. Internet: http://www.nlm.nih.gov