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What are the barriers for medical oncologists to initiate a palliative care discussion to their incurable patients? A qualitative interview study in Flanders, Belgium Melissa Horlait
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Context Specialised palliative care (SPC) SPC for advanced cancer
Positive effect on QoL (quality of life) Positive effect on survival time SPC for advanced cancer Oncologists refer their advanced cancer patients (too) late in their disease course Before referring patients to SPC open en realistic discussion about disease stage, prognosis, treatment options and advantages of SPC
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Research Question What are possible barriers for (Flemish) medical oncologists to initiate SPC (for the first time) to their advanced cancer patients?
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Methods Qualitative interview study
Explorative, open, face-to-face interviews Grounded Theory approach
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Results 82 letters of invitation
15 certified medical oncologists from academic and non-academic hospitals in Flanders 11 male and 4 female 5 from an academic hospital and 10 from a non-academic hospital Age range: 37 to 70 years Work experience: 8 to 44 years Average duration of the interviews: minutes
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Categories Oncologist related barriers Patient related barriers
Family related barriers Barriers related to the referring physician Barriers related to disease or treatment Institutional/organisational barriers Societal/policy barriers
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Oncologist related barriers
Lack of training and education In communciation skills In palliative care Feeling of failure Fear of depriving hope
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Patient related barriers
Emotions (sadness/anger) Unrealistic expectations Unrealistic trust and faith in medicine Giving up hope
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Family related barriers
Protection of the patient Unrealistic expectations/disagreement about goals of care and treatment Emotional reactions
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Barriers related to the referring physician
Lack of agreement for referral to the medical oncologist Late referral Reluctance to discuss disease stage
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Barriers related to disease or treatment
Therapeutic options/phase 1 trails Inability to estimate prognosis Unexpected/unpredictable progression
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Institutional/organisational barriers
Availibility of palliative care Practical organisation Workload Lack of support/coaching for oncologists
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Societal and policy barriers
Palliative care stigma Negative connotation palliative care Misunderstandig concept palliative care Education and training Lack of integration of palliative care in medical education Lack of CST for medical oncology Predominance of the curative model
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Conclusions Oncologists still entertain the ‘old’ concept of palliative care This concept of palliative care is still predominant among patients, families and on societal level Lack of training in communication skills during their medical training Lack of support and coaching for medical oncologists
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Conclusions
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Contact mhorlait@vub.ac.be End-of-life Care Research Group
Vrije Universiteit Brussel & Ghent University Faculty of Medicine Laarbeeklaan 103 B-1090 Brussels (Belgium)
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Thank you for your attention!
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