1. Cystic Fibrosis Educational Curriculum.
Cystic Fibrosis Educational Curriculum
Sofhia Ytuarte
University of Arizona Pediatric Pulmonary Center
Nursing Trainee
June, 2015

2. About the Project
Request from a parent to provide education during the spirit week
CF Education given at Pomerene Elementary School
Power Point Presentation with visual aids & demonstrations
Handouts & videos for bell work
Needs assessment and presentation evaluation developed after the presentation was delivered

3. Needs Assessment
UAPPC Needs Assessment with logo (1).docx

4. Needs Assessment Results
Unsure who provides care for student with CF
Requested method of education for faculty
power point
Requested method of education for students
power point, presentation, games, materials
How to provide education
entire school and address the particular grade

5. Results of Presentation Assessment
Overall presentation was helpful, beneficial for school, students, and faculty
Faculty did not know what CF was prior to presentation
Gained an understanding of what CF is after presentation, learned something new about CF
Educational tools were appropriate
Students gained an understanding of what CF is after presentation
Most beneficial results of the presentation
Better understanding of CF and long term effects
Compassion and patience for the student with CF

6. Cystic Fibrosis Educational Curriculum
UAPPC Cystic Fibrosis Educational Curriculum.docx

7. Parent Survey
CFParent Survey.docx

8. Parent Survey Results 1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th
PreK/K
1st
2nd
3rd
4th
5th
6th
7th
8th
9th
10th
11th
12th
Total
Public/ Charter 4 1 3 2 16
Private
Want education 15
Do not want education
Unsure on education

9. Parent Survey Results Information parents want included in curriculum
Educating teachers about CF
Do not confuse CF with asthma
Life long disease
How to handle/react to students with CF
Infection control for the classroom
Educating students about CF (What it is)
Importance of medications & the need to leave the classroom
CF and cough are not contagious/they are not sick
How kids with CF stay healthy
Children with CF are not different

10. Parent Survey Results
Information parents do not want included in curriculum
Discussion about death

11. Moving Forward
 CF newsletter: If you have a child or children with CF, what is the most important thing(s) that you would want to see in a curriculum presented to students and teachers? 
Distribution of survey to school nurses.

12. References
Center for Disease Control and Prevention. (1995). Facts about cystic fibrosis. (NIH Publication No ). Retrieved from rosis/Cystic_Fibrosis_Fact_Sheet.pdf
Chilman-Blair, K., & deLoache, S. (2011). What’s up with beth? Medikidz explain cystic fibrosis. Medikidz: London, UK.
Chilman-Blair, K., & deLoache, S. (2011). What’s up with justin? Medikidz explain nutrition in kids with cystic fibrosis. Medikidz: London, UK.
Cystic Fibrosis Foundation. (2015). Retrieved from
Cystic Fibrosis Research Inc. (2015). Retrieved from
Education.com. (2015). Retrieved from
Edupics.com. (2015). Retrieved from
Elevate education. (2015). Retrieved from
Home Science Tools. (2015). Retrieved from
Johns Hopkins Cystic Fibrosis Center. (2015). Retrieved from
Kids Health. (2015). Retrieved from
Kids Science Experiments. (2015). Retrieved from
Science Kids. (2015). Retrieved from
The teachers corner. (2015). Retrieved from