1. Making Waves: Asset Based Community Clinics for People With Chronic Obstructive Pulmonary Disease 
Louise Sewell, Michelle Kerslake, Vicky Lord,
Sophie Krumins, and Alan Taylor
School of Health,
Coventry University

2. Making Waves: Setting the Context
COPD is a leading cause of mortality and morbidity in the UK
In 2012 COPD admissions accounted for over 1 million bed days in the UK (BLF 2016)
People with COPD are limited by breathlessness but also experience lower levels of mental well-being when compared to age-matched populations.
Pulmonary rehabilitation is proven to increase exercise capacity and health status but uptake is limited (BTS 2013)

3. Respiratory Innovation: Promoting Positive Life Experience (RIPPLE)
Focus on improving mental wellbeing and social inclusion
Asset Based Community Development approach with
3rd sector partners
Clinical input from respiratory team
Self-management support

4. RIPPLE Evaluation 2016 Change in Mental Well Being Scores
(Warwick Edinburgh Mental Well Being Scale)
p = 0.03

5. From a RIPPLE to Making Waves…
April 2016 Health Foundation Funding ~£500K : spreading improvement programme
Coventry University coordinating the mixed methods evaluation

6. Coventry University Evaluation Team
NE Notts Fieldworker:
Dudley Fieldworker
Northampton Fieldworker:
South Lincs
Fieldworker:
South Central Birmingham Fieldworker
Coventry Fieldworker:
Wolverhampton

7. Dudley
Northampton

8. Dudley Stakeholder Event: June 2016 Co-creation Would like to
The impact of COPD…
Dudley Stakeholder
Event: June 2016
Co-creation
Would like to
achieve…
“Feel less isolated- know that I am not alone”
“I have good days and bad days”
“ I feel anxious”
“Be more active”
“…stops you doing the things you used to do or want to do”
“Talk to others”
“Learning information that may help”
“ I have slowed down so much”
“…I sometimes don’t see anyone all day”
“Sharing knowledge and experience”
“…people don’t understand”
“Keep my lifestyle”
Airtime
“ I have had to give up work”
“Be more informed”
Every Thursday 1-3pm
“Learn to relax”
“…I have to plan for everything”

9. Community Building Launched: 28/07/2016 Dudley Respiratory Team
in partnership with:
The group participants (and their families)
Links with other community based services eg: social enterprises
Delivered by Dudley CVS
Lunch on the Run
Funded by Dudley CCG
Local speakers or instructors
Group coordinator
Community Building

10. Group activities to promote health and wellbeing
Dudley Airtime:
Group activities to promote health and wellbeing
Giving talks about experiences
African drumming
Games (eg: dominoes, cards)
Singing
Bingo & Quizzes: led by group
External speakers
Film days
Meals out
Having a chat
Sharing lunch
Art projects
Seated Yoga

11. Impact on Participants…
Dudley Airtime:
Impact on Participants…
“Powerful words from members of Airtime how weekly group has made them realise that they aren’t
alone ………”
#peoplesnetwork”
Healthwatch Dudley Retweeted
“Members of air time COPD network now not taking anxiety meds due to feeling less anxious and less isolated”

12. Key Partners

13. Northamptonshire Activities The Team 2 groups: Daventry and
Project Coordinator
Group Facilitator
4 x Peer Support Worker (Daventry & Northampton)
GP -Clinical Lead for Nene CCG
Mental Health Nurse Consultant
RESTART – Respiratory Team Northampton General Hospital
Having a chat
Individual consultations
Shared lunch
Mindfulness
Exercise to music
Quizzes
Guest speakers
2 groups:
Daventry and
Northampton

14. Northampton Breathing Space: Impact on Participants…
“Initially I was reluctant to attend the group – now I am the “Quiz Master” and the ring leader!”
“I live for this group – it keeps me going for the next 2 weeks.”

15. Making Waves Evaluation
Quantitative Data Collection
Qualitative
Data Collection
Health Economic Evaluation
Communications Evaluation

16. Baseline, 3 months and 6 months
Evaluation Metrics:
Baseline, 3 months and 6 months
Demographics and health utilisation questions
EuroQol EQ 5D
Warwick Edinburgh Mental Wellbeing Scale (WEMWBS)
COPD Assessment Test
MRC Breathlessness Scale
Hospital Anxiety and Depression Scale
Patient Activation Measure
Long Term Conditions 6 Questionnaire

17. Making Waves Evaluation
Quantitative Data Collection
Qualitative
Data Collection
Health Economic Evaluation
Communications Evaluation

18. An Asset Based way of thinking…
The Future…..
Data collection is ongoing - evaluation due to report in October 2017
Exciting opportunities highlighted for occupational therapy intervention already...
Occupational Therapy
Holistic
Facilitating
Enabling
Empowering
Co-creating
Working with people

19. Interested in finding more about the project. Follow us on Twitter
Interested in finding more about the project? Follow us on Twitter! @MakingWaves2