1. East Sussex Autism Partnership Board
Thursday 25 February 2016
Keith Hinkley
Director, Adult Social Care and Health

2. Minutes of last meeting:
4 June 2015
Matters arising
Key Updates and Information

3. Proposed forward agenda - 2016
23 June 2016
Children and Young People:
Education
Transition
CAHMS
WRAP (developing resilience)
20 October 2016
Criminal Justice/Hate Crime
Family Support:
Support for carers
SIBs
Short term breaks/respite
February 2017
Training overview
Employment
Transforming care
Autism Alliance
Ongoing items for discussion:
SAF; Think Autism; policy development

4. Key updates and information
Richard Lewis

5. Key updates and information:
Safe Place Scheme
Autism Strategy Network Event
World Autism Awareness Week
ESF – Promoting Sustainable Employment

6. Feedback from user involvement
Richard Lewis & Meraud Davis

7. “Improving Autism Diagnosis in East Sussex”
Martin Packwood

8. The problem
Current services are set-up for diagnosing all referrals from the most simple to the most complex
Multi-disciplinary team (MDT) of psychiatrists, psychologists and specialist nurse
More referrals for diagnosis of autism are made each year than this team has the ability to complete
A backlog of people waiting for an appointment has built up
People can wait for over a year for their first appointment
The Clinical Commissioning Groups (CCGs) in East Sussex recognised last year that this was not acceptable, and invited proposals from Sussex Partnership Trust to address the backlog and reduce waiting times.

9. “The Proposals” A new assessment and diagnosis service:
MDT for more complex referrals (as now)
New clinic for less complex referrals
Based on learning from experience in West Sussex and Brighton and Hove
One new specially trained Autism nurse for East Sussex:
4 appointments per person
2 hours per appointment
The CCGs have agreed to fully fund these proposals (alongside others for ADHD).

10. “The Outcomes”
New assessment and diagnosis service starts on 1st April 2016
Specialist Autism Nurse has been appointed
Funding for new Consultant also agreed (joint with Brighton and Hove CCG)
Backlog of people waiting will be cleared after approximately 40 weeks
New referrals will then be offered a first appointment within 3 weeks
Diagnosis will be completed within 12 weeks

11. Self-Assessment Framework
Debbie Endersby

12. Self Assessment Framework
Public Health England have issued the results of the 2014 Autism SAF:
NHS England are inviting people to view the results in an “interactive trip adviser style”
An opportunity for people and families to review and rate the results of their areas SAF.
Autism West Midlands will monitor comments and ratings from users

13. East Sussex ratings

14. Ambers ratings
Autism Partnership Board recognised the need to improve our:
Recording and data collection
Access to diagnosis pathways
Improve engagement with Criminal Justice System

15. How we compare to other areas:
The 2014 Autism Self-Assessment in South East

18. We welcome opportunities for feedback but . . .
SAF online is for 2014
Detailed and lengthy document
Ratings linked to specific criteria
Things move on: Developments and challenges

19. Where are we now?

20. Coffee break

21. Self-Management
Emma Jupp & Claire Turner

22. Start Well, Live Well, Age Well Working together for a healthier East Sussex
STEERING GROUP
PRIMARY PREVENTION
EAST SUSSEX BETTER TOGETHER
HIGH WEALD LEWES HAVENS CCG
SELF-CARE
SELF-MANAGEMENT
TECHNOLOGY ENABLED CARE SERVICES

23. WHY?
Enabling people to be empowered to take control of their own health needs and conditions is critical for managing demand on primary care services, secondary and community services.
We believe that as part of the system-wide changes that are being implemented across East Sussex this will: -
Support unnecessary hospital admissions
Contribute to reducing length of stay in hospital
Support discharge from hospitals
Reduce GP appointments

24. IMPACT ON INDIVIDUALS Help to maximise independence
Improve access to health care
Better understanding and control of health issues
Proactive support rather than reactive
Increased ability and confidence to self-manage
Prevent conditions from getting worse
Enabling healthy routines that minimise deterioration
Integrating technology solutions to support people remaining independent for longer

25. SELF CARE
The actions people take for themselves, their children and their families to stay fit and maintain good physical and mental health; meet social and psychological needs; prevent illness or accidents; care for minor ailments and maintain health and well-being
Executive Summary CCP for Self Care 1st Edition

26. Self Care - what this means
Enabling people to access effective and personalised information, advice and support when and how they need it
Supporting people the skills, tools and technology to manage their own care needs
Empowering people to make choices for themselves and those they care for
Preventing or delaying the need for formal assessed interventions wherever possible

27. Self Care solutions
HSCC - Web chat support with information and advice about social care
Health Help Now app - mobile app that helps people
Autonomy - citizen and client portal enables people to find out if their support needs are eligible and access to online assessments
One Space - One line directory of support in your area
Online Triage and Social Care System- information healthy lifestyles services
East Sussex Community Information System/ East Sussex Local Offer- detailing what is available for children and young people with special educational needs and disabilities
Looking at ways of bringing all these solutions together to improve user experience

28. SELF-MANAGEMENT AIMS
Providing support to people with physical long term conditions and co-morbidities
Supporting the mental health needs of people who have physical long term conditions
Designing a model which provides a number of support options for individuals
Working with health professionals to deliver person centred care

30. SELF-MANAGEMENT PILOTS
Health coaching
Wellness Recovery Action Planning (WRAP)
My Stroke Guide
Infrastructure support to self-help groups

31. SELF-MANAGEMENT ENGAGEMENT
Long term condition survey – closes 28th February
Co-design workshops – April and May
SELF CARE ENGAGEMENT
Programme of small scale engagement with users and professionals- March – June 16
Start Well, Live Well Age Well summit- June 16

32. OVER TO YOU…
How do you access information about services that can support you with: -
Your autism/Aspergers?
Your health needs?
Your support needs?

34. Autism Stress Cards
Alice Parker
Creator of Autism Stress Cards

35. Stress cards

36. Approaching Eastbourne Arndale Centre

37. Getting individual shops involved into the Arndale Centre

38. Contact us:
Website: Facebook: Autism Stress Alert

39. Impact of the scheme
Please meet Darran

40. Progress Report on Think Autism: The updated strategy for adults with autism in England January 2016
Richard Lewis - ESCC

41. The Report sets the aims of Think Autism within the context of Government Reform into 5 themes.

42. Delivering quality care to those who need it and making a positive impact on people’s health in an efficient way
Progress and planning
Training
Transition from childhood to adulthood

43. A core part of health and care delivery
Diagnosis

44. Making sure that people have good experience of care and services
Innovation, awareness and technology
Transforming care for people who have autism

45. Preventing people from having episodes of crisis
Supporting people with autism

46. Joining up better the NHS, social care and other local partners
Employment for adults with autism
Contact with the criminal justice system

47. East Sussex Projects
Heathfield Community College – facility for students with high functioning autism
Spectrum: personal development courses

48. Next meeting
Thursday 23 June am to 12.30pm Eastbourne Sovereign Harbour Yacht Club