1. The Assessment of Burden of COPD (ABC)-tool
Development and evaluation
IPCRG
Prof. Dr. Onno van Schayck
Maastricht University

2. COPD is more than airway obstruction
Introduction
COPD is more than airway obstruction
Ambition:
Measure experienced burden of COPD and treat accordingly

3. Aim of this approach Provide patients with insight Raise awareness
Match experienced burden to treatment
Increase self management & shared decision making
Provide structure during consultation
Make a tailor made treatment plan

4. Previously presented and awarded during IPCRG research meeting in Singapore
Process of the development of the Assessment of Burden of COPD tool, 6 steps
1. Defining burden of COPD
2. Formulating requirements
3. Reality check
4. Literature review
5. Development instrument
6. Evaluating instrument

5. CCQ (clinical COPD questionnaire)
The ABC scale
CCQ (clinical COPD questionnaire)
Symptoms
Functional state
Mental state
Adapted by adding questions about:
Fatigue
Emotions

7. Visual overview of integrated health status Possibility to monitor
Additional parameters
Lung function
Exacerbations
BMI
Smoking
Physical activity
Treatment algorithm

8. Evaluation of the tool Presented last year: New this year:
Psychometric properties ABC scale
Validity
Reliability
New this year:
Effect evaluation – Cluster Randomised Controlled Trial
Qualitative evaluation – Experiences with the ABC tool

9. Cluster randomised controlled trial
Pragmatic study to test effectiveness on:
Disease specific quality of life – Saint George’s Respiratory Questionnaire (SGRQ)
Statistically significant more patients with a clinically relevant improvement in intervention group
Perceived quality of care - Patient Assessment of Chronic Illness Care (PACIC)
Significant better score in intervention group compared to control group

10. Qualitative evaluation
Amongst:
Healthcare providers
Patients
Results:
Excellent instrument that provides insight & structure
Suggestion for improvement:
Implementation in ICT systems
“ It provides an overview of the patient at that moment, with a visual representation which is not debatable and instantly clear.”
“ It takes more time, because you have to transfer data and information.”
“ It should really be integrated in the healthcare systems.”

11. Next step Nationwide implementation in daily care
Further development of a tool for other chronic conditions

12. Thank you
for your attention!

13. References
Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten-van Mölken MPMH, Kerstjens HAM, et al. Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD. NPJ Prim Care Respir Med. 2014; 24:14021
Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten- van Mölken MPMH, Kerstjens HAM, et al. Effectiveness of the Assessment of Burden of Chronic Obstructive Pulmonary Disease (ABC) tool: study protocol of a cluster randomised trial in primary and secondary care. BMC Pulm Med. 2014; 14:131
Slok AHM, Bemelmans TCH, Kotz D, van der Molen T, Kerstjens HAM, In 't Veen JCCM, Chavannes NH, Asijee GM, Rutten-van Mölken MPMH, Schayck, OCP. The Assessment of Burden of COPD (ABC) scale: a reliable and valid questionnaire. COPD: Journal Of Chronic Obstructive Pulmonary Disease. Published Online Jan ; 1-8.