1. Annual Spring Meeting April 5, 2017
7:00pm
Welcome
M. Everitt/R. Singh/J. Dreyer
7:10pm
Steering Committee Report
M. Everitt
7:15pm
Pedimacs Report
J. Kirklin
7:20pm
DCC Update
7:30pm
Database Committee Report
M. Richmond
7:40pm
Using Registrations as an Effective Platform for Conducting Clinical Trials
K. Grady
8:15pm
Web Based Data Entry System
D. Koehl
8:30pm
Foundation Update & Financial Roadmap
C. Collum/R. Gajarski
8:40pm
Break
8:55pm
Scientific Committee Report
Dipchand
9:05pm
Scientific Committee Sponsored Workshops
9:10pm
New Study Proposal Design
S. Urschel
9:15pm
Pediatric Heart Candidates Listed as Exceptions: Rising Trend After New Allocation Implemented
R. Davies
9:35pm
MATE Study Update
K. Daly/C. Almond
9:40pm
New Business
10:00pm
Adjourn

2. Dr. Jacqueline Szmuszkovicz Dr. Jennifer Su
Welcome New Centers!
Children’s Hospital of Los Angeles
Dr. JonDavid Menteer
Dr. Jacqueline Szmuszkovicz
Dr. Jennifer Su

3. Welcome Interested Centers!
Benioff Children’s Hospital, San Francisco
Mayo Eugenio Litta Children’s Hospital, Rochester
Le Bonheur Children’s Hospital
Nicklaus Children’s Hospital, Miami
Royal Children’s Hospital, Melbourne
National Cerebral and Cardiovascular Center, Japan

4. Nov. 2015 - Nov. 2017 Steering Committee
Melanie Everitt, MD
Marc Richmond, MD, MS
Rob Gajarski, MD, MHSA
Nancy McDonald, NP
James Kirklin, MD
Elfi Pahl, MD ( )
Alfred Asante-Korang, MD
Gerard Boyle, MD
Kimberley Lin, MD
President
Vice President
Past President
Non Physician Representative
DCC Representative
Steering/Scientific Comm. Liaison
Member at large

5. Nov. 2015 - Nov. 2017 Steering Committee
Melanie Everitt, MD Marc Richmond, MD, MS Rob Gajarski, MD, MHSA Nancy McDonald, NP James Kirklin, MD Elfi Pahl, MD ( ) Alfred Asante-Korang, MD Gerard Boyle, MD Kimberley Lin, MD
President Vice President Past President Non Physician Representative DCC Representative Steering/Scientific Comm. Liaison Member at large Member at large Member at large

6. 2017 Steering Committee Elections
October 2017: Elect a new PHTS Vice President and Non-Physician Representative to Steering Committee
Call for nominations August 1 -August 31
Voting open Sept 1-Sept 30
Winners announced at November meeting
3 new Members-At-Large will be selected from the rotating list of centers

7. 2017 Steering Committee Elections
October 2017, PHTS will elect a new Vice President and Non-Physician Representative.
Vice President also serves as the Chair of the Database Committee.
Vice President will rotate to President of the Steering Committee after 2 years term.
President of Steering Committee rotates to Chair of Foundation after 2 year term.
President of Foundation rotates to Past chair for one year.

8. 2017 Steering Committee Elections
October 2017, PHTS will elect a new Vice President and Non-Physician Representative.
Non Physician Representative on Steering Committee also serves as Non-Physician Representative on Database Committee.
This position serves a 2 year term.

9. Coordinator Focus Group
Focus Group Session: Wednesday, April 4, 2017, 1:30pm
Webinar planned for Fall 2017
Webinar planned for Fall 2018
In person coordinator session planned for April 2019.
If interested in planning, contact Susanna Lenderman

10. 2017 Leadership Visit to UAB
January 23 and 24, 2017
Guests:
President/Chair of Steering Committee:
Melanie Everitt, MD
Vice President/Chair of Database Committee:
Marc Richmond, MD, MS
Foundation Chair:
Rob Gajarski, MD, MHSA
Proposal Review Committee Chair:
Simon Urschel, MD
Scientific Committee Chair:
Anne Dipchand, MD
Scientific Committee Vice Chair:
Elfi Pahl, MD

11. 2017 Leadership Visit to UAB
January 23 and 24, 2017
Steering Committee Goals 2017:
Increase membership including expansion of more centers
Facilitate practice guidelines workshops
Increase funding support for meetings and/or reduce cost
Plan Database Webinar for 2017 and 2018
Plan In-person Coordinator meeting 2019
Revision of QA Report including focus on more recent era data and other analyses such as severity of CAV
Timely communication to membership regarding proposals and analyses

12. Upcoming Membership Meetings
November 2017: Membership Meeting AHA Anaheim, California
April 2018: No formal meeting in Nice, France
November 2018: Membership Meeting AHA Chicago, Illinois
April 2019: 25th Anniversary Gala in Orlando, Florida

13. 25th Anniversary Gala PHTS began data collection in 1993
April 2019, we will celebrate 25 years of data collection
Along with the ISHLT meeting, the gala will be held in Orlando, Florida
Join the planning committee by contacting Susanna Lenderman