1. Dementia Alistair Burns

2. Dementia
Where have we come from?
Where are we now?
Where are we going?

4. Dementia
Where have we come from?
Where are we now?
Where are we going?

5. 40% lost friends
48% said they were a burden to family
19% said they were a burden to friends
61% felt lonely
77% felt anxious or depressed
Two thirds of people say they were living well with dementia

6. Prime Minister’s challenge on Dementia (2012)
Improvements in health and care
Raising awareness
Better research

7. i statements http://www.dementiaaction.org.uk/
I have personal choice and control over the decisions that affect me.
I know that services are designed around me, my needs and my carer’s needs.
I have support that helps me live my life.
I have the knowledge to get what I need.
I live in an enabling and supportive environment where I feel valued and understood.
I have a sense of belonging and of being a valued part of family, community and civic life.
I am confident my end of life wishes will be respected. I can expect a good death.
I know that there is research going on which will deliver a better life for people with dementia, and I know how I can contribute to it.

8. Patients in clinical trials, less than 1%, to 4.5%
Dementia Research
Increase in funding
09/10 £26.6m /14 £60.2m /15 £66.3m
Alzheimer’s Research UK - £100 million research pledge.
Alzheimer’s Society - £100 million over 10 years
UK Dementia Platform
Patients in clinical trials, less than 1%, to 4.5%

9. Dementia Friends 9

10. /15

11. NHS England’s Dementia Plan
Five components:
Regional and Area Team Support to CCGs
Improving Data eg harmonisation of clinical records
Proactive Communications
Intensive Clinical Support (Ambassadors)
Enhanced services

12. Dementia
Where have we come from?
Where are we now?
Where are we going?

13. Awareness
Key role of GPs
Post diagnostic support
Information, advice, carers
Access to diagnosis
Staff training
Dementia Institute
Dementia Friends/ businesses
Research
I million dementia friends
Highest diagnosis rate

14. Prevention and public health Patients having far greater control
Break down barriers between primary/secondary care
Multispecialty Community providers
Primary and Acute care systems
New deal for GPs
Parity of esteem
Local leadership

15. Prevention (risk reduction) of dementia
Cognition/
Executive function
Prevention (risk reduction) of dementia
Theoretical intervention to ameliorate decline
If death occurs here, dementia has been “prevented”
Dementia could be said to be “delayed” by this much by the intervention
Natural history resulting from vascular dementia
Level at which a diagnosis of dementia is made
Time
Dementia diagnosed

16. Dementia Themes run on Lessons learned
Make it easy to do the right thing
Celebrate what has been achieved
No turning back
Give people permission
Use opportunities

17. i statements http://www.dementiaaction.org.uk/
I have personal choice and control over the decisions that affect me.
I know that services are designed around me, my needs and my carer’s needs.
I have support that helps me live my life.
I have the knowledge to get what I need.
I live in an enabling and supportive environment where I feel valued and understood.
I have a sense of belonging and of being a valued part of family, community and civic life.
I am confident my end of life wishes will be respected. I can expect a good death.
I know that there is research going on which will deliver a better life for people with dementia, and I know how I can contribute to it.

18.
@ABurns1907