1. Getting to Your Good Life
Welcome! We’re so glad you came to our session, Getting to Your Good Life!
Getting to Your Good Life
Real Voices, Real Choices
August 22, 2016

2. Welcome Introductions
RACHEL: My name is Rachel Hiles and I work at the Institute for Human Development at UMKC. I’ve been involved in PF at all different levels for over 10 years now. I recently graduated with my master’s of Public Administration. I am also guardian for my friend Calvin, who lives in Kansas City and take care of my grandma so she can stay in her home.
Katie, would you like to tell the audience a little about yourself?
KATIE:
My name is Katie Kinder. I’m live in Columia and I’m the member of my local chapter there as well as the statewide secretary of PFMO. I am also on the board of MO Protection & Advocacy and PAMI.

3. Outcomes
Learn a strategy for problem-solving daily tasks and responsibilities and accomplishing big vision, long term goals
Learn how to use the LifeCourse tools to get to your good life.
RACHEL:
Our goals for our time together this afternoon are to
Learn about a new way of thinking that we’ve been working on at MO Family to Family that will help you plan for a good life
Understand what a “trajectory” is and how the choices you make, the things that happen to you, and the people around you affect your trajectory to a good life
We’re going to play Cliffhanger and we’re going to actually see the idea of the trajectory in action

4. First show the person,
Then show the family,
then bring up the domains
And then the buckets
And then the outer layers
All these things work together to make a good life.

5. Life Trajectory Life Experiences RACHEL:
Now we’re going to talk about the trajectory.
Katie
ASK
Does anybody know what a trajectory is?

6. What is YOUR Vision for a Good LIFE?
Ask the group
Who said: Family/friends; vacations, pets, chocolate, etc
How many people said: Good Behavior Plan????
EVERYBODY “gets” what “good life” means --HCBS new rule – plan must be understood by individual and reflect their goals and preferences
Write down your responses on your worksheet and discuss with your table

7. What
DON’T
you want??
Who said: Poverty, isolation, segregation, loneliness? Ask the group for anything else they put there that hasn’t already been said.
Family sometimes cant envision the good life – too many barriers, always a fight. But they can almost always tell you what they DON’T want!
Write down your responses on your worksheet and discuss with your table

8. Life Experiences and Life Transitions
Chores and allowance
Summer jobs, babysitting
Learning to say “no”
Making Mistakes
Playing sports or an instrument
Birthday parties with friends
My parents have passed away, what do I do?
Scouts, 4H, faith groups
Parents Turn 65
Medicare & SSDI
--Life experiences – are how we get ready for the next phase – having chores as a child helps prepare you for employment. Having an allowance helps you learn about money (and making mistakes with money). Learning to say NO helps the person learn to protect themselves.
--ANTICIPATORY GUIDANCE—especially at times of transition. Doctors do it all the time.
IE- we don’t start talking about Employment until age 14! But we can nudge people at age 2 or 5 or 10 – chores, summer job, volunteering, asking child what they want to be, learning about lots of options
--Show them the LC Experiences booklet – talk about how people might use it.
--SAFETY – people don’t stay safe because someone has always protected them. They need to learn skills! --
--Think beyond systems transitions ONLY
Living Adult Life
Transition planning
Turning 18. Leaving school at 18 or 21
“Anticipatory Guidance for Life Experiences”
Leaving Early Childhood/ enter school
Getting New Diagnosis

9. job I like, home, faith, vacations, health, choice, freedom
Dignity of Risk and Mistakes
Friends, family,
enough money,
job I like, home, faith, vacations, health, choice, freedom
-People need to be allowed to take risks and make mistakes – and not pay for it forever. We all make mistakes, have consequences, and move past it – but PWD often are labeled or restricted for life if they make even a simple mistake. “fire-starter” “sexual predator” “can’t use the internet”
-Person doesn’t learn to STAY SAFE if someone is always protecting them from everything! Learn how to stay safe by having life experiences – learning to say NO; learning who to trust or not;
Poverty, loneliness, segregation, restrictions, lack of choice, boredom

10. Integrated Supports
For a Good Life

11. Integrating Services and Supports
75%
People with I/DD not receiving formal DD services
25%
People with I/DD receiving formal DD services
100%
People with I/DD receiving integrated services and supports

12. Integrated Supports STAR
resources, skills, abilities characteristics
i-pad/smart phone apps, remote monitoring, cognitive accessibility,
Adaptive
equipment
family, friends, neighbors, co-workers, church members, community members
MAPPING
PROBLEM SOLVING
PLANNING LTSS
PLANNING ACTIVITIES
We ALL do this without even thinking about it
100%
school, businesses, church faith based, parks & rec, public transportation
SHS services, Special Ed, Medicaid, Voc Rehab, Food Stamps, Section 8 R

13. Personal Strengths & Assets
person or family resources, abilities, strengths, characteristics
What do you have that will help you?
Personality traits
Skills or training that you have
Belongings that own or things you have access to

14. Relationships Who do you have in your life to help you? Family Friends
family, friends, neighbors, co-workers, community members, church members
Who do you have in your life to help you?
Family
Friends
Close personal relationships (like your neighbor, boss, pastor coworkers, etc)

15. Technology How can technology help you be more independent?
i-pad/smart phone
apps, remote monitoring,
cognitive accessibility,
adaptive equipment
How can technology help you be more independent?
Smartphones
Assistive technology
Internet and computers

16. Community-Based
Businesses, places, and things anyone can access where you live:
School
Library
Park
Police station
Hospital
Church
Grocery Store
school, businesses,
church/faith based,
public transportation,
parks and recreation

17. Eligibility Specific
Things you have to have a diagnosis, certain income, or other qualification (like age, gender, or race) for
Food stamps
Housing Voucher
DD Services
Medicaid
Medicare
SHS services,
Special Ed,
Medicaid,
section 8,
Food Stamps, Vocational Rehab (VR)

18. We have to use all parts of the star!
MAPPING
PROBLEM SOLVING
PLANNING LTSS
PLANNING ACTIVITIES
We ALL do this without even thinking about it

19. Relying ONLY on Yourself
Friends, family, enough money,
job I like, home, faith, vacations, health, choice, freedom
Poverty, loneliness, segregation, restrictions, lack of choice, boredom, institutions
None of us are superman.
If you did everything all day long for yourself… you would be very tired.
AND lonely!
Yourself

20. Relying ONLY on Family & Friends
Friends, family, enough money,
job I like, home, faith, vacations, health, choice, freedom
Poverty, loneliness, segregation, restrictions, lack of choice, boredom, institutions
Relationships

21. Relying ONLY on Family & Friends

22. Relying ONLY on Technology
Friends, family, enough money,
job I like, home, faith, vacations, health, choice, freedom
Poverty, loneliness, segregation, restrictions, lack of choice, boredom, institutions
You can’t sit around playing video games or hanging out on facebook all day… it’s not as fulfilling as what you could be enjoying out in the world
What if the power goes out? What happens when the grid goes down? Will you be ready in the event of a zombie apocalypse?
Technology

23. Focusing ONLY on Eligibility Supports
Friends, family, enough money,
job I like, home, faith, vacations, health, choice, freedom
STORY about family asking permission for their son (who doesn’t receive services for housing) to move into his own apartment OATS bus -
Eligibility Supports
Poverty, loneliness, segregation, restrictions, lack of choice, boredom, institutions

24. Daily Routine Morning or Evening
Activity 7: Integrated Supports Star large group discussion: Large 11x17 Star worksheet
Ask participants to call out the things they use to get through their day. IE: what types of supports do you use to get through your morning routine or evening routine? (5 minutes)

25. Daily Routine List List List List List Morning or Evening
What did we come up with?
Morning or Evening
Activity 7: Integrated Supports Star large group discussion: Large 11x17 Star worksheet
Record the things used to accomplish the routine on the flip chart or poster board as they call it out
Facilitate large group discussion, lead, nudge or pull them to the realization that we all use integrated supports every day?
List
List

26. LifeCourse Star to Calendar

27. Ben’s Services & Supports
Ben’s Services and Supports
Mom, Dad
Ben’s Services & Supports
DDD Self-Directed waiver PCA staff; Medicaid; Special Needs Trust

28. Ben’s Services and Supports
Able to stay home alone for up to an hour; has & can use i-pad;
i-pad when home alone; digital watch
Mom, Dad, Matt, Zac, Ali, Chad, Ericka, Roy, Carol, Nick, Spohn,
Ben’s Services & Supports
Firemen at ESFD; coaches & staff at ES high school; Omni bus;
DDD Self-Directed waiver PCA staff; Medicaid; Special Needs Trust

29. Your LifeCourse Portfolio
Bringing it All Together
RACHEL:
Now we’re going to talk about the trajectory.
Katie
ASK
Does anybody know what a trajectory is?

30. Katie’s One Page Profile
Well spoken and a good writer
Great sense of style
A good friend
Nice to everyone
Loves to help
Katie’s One Page Profile

31. Hints and tips on filling it out
Your One Page Profile
List positive strengths, talents and qualities.
Things people give you compliments on.
Ask your family or others who know you well for ideas.
People, places and things that are important to you.
Hobbies, belongings, rituals, routines, family culture.
What do you care about most?
Specific kinds of support that are helpful, and what is not.
Support you need to be calm and comfortable and accomplish your goals.
Pet peeves
Hints and tips on filling it out

32. Katie’s Trajectory 30 Help other people with disabilities My own place
Started college at State Fair
Got involved with People First and self-advocacy
Moved in my own place
Help other people with disabilities
My own place
Get married
Get my journalism degree 30
Special education low expectations;
To be labelled
To be unhappy

33. Your Life Trajectory
Holistic view of person – their past experiences and what they are working on now and in the future to achieve their good life and avoid the things they don’t
YOU have – inside LC portfolio --explain how to use---start with AGE (can use with ANY AGE); Good Life/not good life boxes; past life experiences good and not good; future life experiences – goal planning.

34. Katie’s Integrated Supports Star
Smartphone
Facebook
Computer

35. Your Integrated Supports Star
Need help?
Use the Integrated Options LifeCourse tool!

36. Questions, Reflections and Discussion
As you can see, the good things Frank did for himself put him on a positive trajectory towards a good, happy, healthy, life.
All that McDonald’s and Pepsi set him on a negative path but he did things to fix em.
When he forgot to pay his light bill, he and his supporters worked together to find a solution that would help him stay independent and keep control over his life.
When Frank joined up with PF, he was able to solve a problem in his community for people with disabilities.
Do you have any questions? Comments? Complaints?

37. LifeCourseTools.com

38. If you need help along the way….
(800) | mofamilytofamily.org

39. Rachel Hiles hilesr@umkc.edu
If you need to get in touch with me……. Thank you for coming!