1. The Many Faces of Deaf-Blindness

2. Deaf-Blindness: The Big Picture
National and State Deaf-Blind Program
The Deaf-Blind Census
Etiologies related to Deaf-Blindness
Deaf-Blindness & Communication
Deaf-Blindness & the Family
Social implication of deaf-blindness

3. What We Want to Accomplish
Increase your understanding of:
National and state resources related to deaf-blindness
The diversity within the population
The major etiologies of deaf-blindness
The impact of deaf-blindness on communication and social development
The impact of deaf-blindness on quality of life

4. The Deaf-Blind Program

5. Who We Are & What We Do Project Reach NCDB
Technical assistance to families, classrooms, medical personnel, and others through technical assistance
Distribute general information and specific information that supports child-specific technical assistance
Connect families with other families and available services
Contribute to national projects, such as research, census, and university training programs in Illinois
NCDB
Technical assistance & training to deaf-blind projects, states and families
Develop and distribute information
Connect national, state and local resources to improve services
Coordinate activities between universities that are training teachers

6. National Definition of Deaf-Blindness
Deaf-blindness means concomitant hearing and visual impairments, the combination of which causes such severe communication and other developmental and educational needs that they cannot be accommodated in special education programs solely for children with deafness or children with blindness. 34 CFR (c) (2)

7. Illinois Definition of Deaf-Blindness
Illinois’ school code states “Persons with deaf-blindness are persons who have both auditory and visual impairments, the combination of which causes such severe communication and other developmental, educational, vocational, and rehabilitation problems that such persons cannot be properly accommodated in special education or vocational rehabilitation programs solely for persons with both hearing and visual disabilities”.
105 ILS 5/ (service center for deaf-blind persons)
A definition of visual impairment and auditory impairment follows, as does the establishment of the Philip J. Rock Center and School and the Advisory Board for Services for Persons who are Deaf-blind

8. Etiologies Related to Deaf-Blindness
eti·ol·o·gy
“the cause of a medical or disability condition”
Tell Us About Your Child
Top Etiologies Nationally and in Illinois
Finding Information about Etiologies

9. 2007 Top Etiologies

10. About Illinois

11. Illinois Etiologies - Major Categories

12. Illinois Etiologies - Chromosomal Disorders

13. Illinois Etiologies - Pre-natal Causes

14. Illinois Etiologies - Post-natal Causes

15. Age Ranges

16. There are 102 counties in the state of Illinois

17. 60 Illinois Counties currently have students served by Project Reach
Adams 1
Bond 1
Bureau 9
Carroll 1
Champaign 16
Christian 3
Coles 2
Cook 151
DeKalb 4
Douglas 2
DuPage 31
Edgar 1
Effingham 1
Fayette 1
Ford 1
Franklin 1
Fulton 2
Greene 1
Grundy 2
Hancock 1
Henry 3
Iroquois 2
Jersey 1
JoDavies 1
Kane 40
Kankakee 3
Kendall 4
Knox 1
Lake 14
LaSalle 10
Lawrence 3
Lee 1
Livingston 2
Logan 3
Macon 8
Madison 10
Marion 1
McDonough 1
McHenry 4
McLean 5
Menard 1
Montgomery 2
Morgan 2
Ogle 4
Peoria 5
Piatt 1
Pike 2
Putnam 1
Richland 1
Rock Island 3
Sangamon 8
St. Clair 11
Stephenson 1
Tazewell 4
Vermillion 5
Whiteside 5
Will 22
Williamson 2
Winnebago 15
Woodford 1

18. Project Reach by County

19. Students by Region

20. Deaf-blind Specialist Regions

21. Etiology Activity (20 minutes)
1. Pair up with another participant and choose one etiology to explore.
2. Use the Internet to research and answer some or all of the following questions about the etiology:
What are some of the unique characteristics of the etiology: vision, hearing, physical, cognitive, other
Are their online or face-to-face supports available for family members? What are these?
Is there medical and education information available on the Internet?
3. Share what you find out with the group.
Show Etiology chart first

22. Points to Consider About Etiologies
To know an individual’s etiology is NOT to say that you know the individual
Absence of a diagnosis can be a nagging mystery or fear
Possible etiologies should not be casually mentioned
Pay attention to the source and publication date of print and Internet resources
Connecting with another person or family who shares the diagnosis can be invaluable
Thanks to California Deaf-Blind Services, Fact Sheet #33

23. A PICTURE IS WORTH A THOUSAND WORDS
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A PICTURE IS WORTH A THOUSAND WORDS
Sensory Perspectives
SPARKLE DVD