1. Recruiting participants to Dementia & Imagination
Dr Catrin Hedd Jones and participants from North Wales
@CatrinHedd
Sharing Dementia & Imagination
The Wellcome Trust, -31 January 2017

2. Priorities
Complete data 100 group members & 100 carers in the study & 35 qualitative
of 35 dyads qualitative interviews
1st group June rolling programme – end 2015
Identify areas and recruit /group
a collected pre, control, during, post and 3 months final follow up after last group session.
Encourage participants to feedback after sessions and post 3 months.
112 PWD, 114carers

3. 3 sites- Care homes/ NHS/ Community

4. Care Homes Equal Arts- established links in the sector
Interested care homes
Care home managers screened
Consent by researchers
Information session
Observed in usual setting pre 1st group session

5. Challenges Staff turnover Care home ceased trading
Research participants became ill or passed away
Care homes were very busy places
Different levels of understanding of the value of the visual arts
Different levels of engagement

6. NHS setting Derbyshire NHS Ward environment
Control observation within a group setting

7. Challenges The setting did not support a 12 week programme
Interviewing within set visiting hours

8. Community recruitment
3 Locations
Target the group areas
Research active GP’s Memory clinics & groups
Careful screening
Baseline collected before control

9. Denbighshire sites
Rhyl 6K, Ruthin 5K & Llangollen 4K

10. Primary care Worked with 14 practices Location
Practice size- (homes?) and staff relations
Screen lists & GP approval
Post invitation with reply slip
Telephone followed up with home visit
Informed consent
Collect consent and baseline with both person and carer
2% of screened attended

11. Secondary care sector 3 Memory clinics
NISCR CRC research officer - multiple projects
Staff briefed
Available on site to meet and explain study
Frequency of clinics
40-63% of screened attended

12. Third sector 18 different organisations/ groups
Alzheimer’s society –S4B, Café
Social services drop ins
Community council agents
Voluntary sector
Social groups
Media
20-33% of screened attended

13. Control session
We needed to observe before the art sessions

14. Demographics Care homes NHS wards Community Total Age, mean (SD) 84.9
Care homes
(n=48)
NHS wards
(n=23)
Community
(n=54)
Total
sample
(n=125)
Age, mean (SD)
84.9
7.4
81.4
4.8
78.4
9.5
8.5
Female gender, n (%) 35
72.9 12
52.2 26
48.1 73
58.4
Married/ cohabiting 10
21.3 11
47.8
64.8 56
45.1

15. The members perspective
Our opportunity to find out what is was like for the group members and their partners

16. Introducing our Artist

17. Art appreciation

18. Discussions and focused work

19. “Using the hands and brain”

20. Work influenced by Exhibitions
Simon Carroll Exhibit
Inspired members

21. Experiment with new techniques
Fun and friendship
Experiment with new techniques
‘Graduates group’

22. Exhibition at the end of the 12 weeks

23. “It was nice for her to have something to be proud of at the end of 3 months.”

24. Final thoughts Keep everyone informed throughout
Affordable and appropriate transport.
Celebrate success
Sustainability of groups
Workshops and Network
3 sites, working with different groups.