2. Recent successes & Conference highlights
Dr. Jiska Snoeck-Stroband
IPCRG 2016 Programme Chair
Prof. Dr. Niels Chavannes
IPCRG 2016 Conference Chair

3. UNLOCK: using real life primary care population data
UNLOCK - Uncovering and Noting Long-term Outcomes in COPD and asthma to enhance Knowledge
Protocol summary published in Primary Care Respiratory Journal (2010); 19(4): 408
An international collaboration between primary care researchers to coordinate and share datasets of relevant diagnostic and follow-up variables for COPD and asthma management in primary care

4. Achievements: UNLOCK
6 years of active collaboration of researchers and clinicians from 15 different countries
9 studies using data from different countries to explore COPD and asthma management in primary care
Instigated new national datasets
Developed and shared learning on how to undertake international primary care research
Raised the profile of real life primary care research
Demonstrated that international primary care research is possible

5. Data now available through UNLOCK members
14 datasets now active
Data from 9 countries (Sweden, Spain, Ukraine, Canada, Greece, UK, Netherlands, Portugal, India)
3.8M primary care patients
800,000 patients with asthma
216,000 patients with COPD
Three broad types of datasets held by UNLOCK members:
Routine primary care datasets
Real-life cohort studies:
Pragmatic clinical trials in primary care

6. Tobacco smoke epidemic

7. Kitchen smoke epidemic
Local beliefs, perceptions and behaviours regarding chronic respiratory symptoms are unclear
Almost half of the world’s population rely on biomass fuel  for cooking and heating. In many low- and middle-income countries, however, government officials, healthcare workers and the public are not aware of the damage caused by exposure to biomass smoke and tobacco smoke.,For the development of an effective policy concerning prevention, diagnosis, treatment and implementation, knowledge on this matter is essential.
Fullerton et al, Indoor air pollution from biomass fuel is a major concern in the developing world, Trans Royal Soc Trop Med Hyg2008
utube.com/watch?v=yp4MiprLRrQ

8. Achievements: FRESH AIR
Free Respiratory Evaluation and Smoke-exposure reduction by primary Health cAre Integrated gRoups
Horizon 2020 project
International research
Non-communicable lung disease
Low-resource settings
FRESH AIR;
International research, > 10 countries involved. LUMC is coordinator
3 years
Broad: prevention, diagnostics, treatment, implementation, health economic evaluation.

9. FRESH AIR aim
Overall aim: to improve health outcomes for people at risk of or suffering from non-communicable lung diseases in low-resource settings by developing capacity for implementation of evidence-based interventions for prevention, diagnosis and treatment in these contexts.
7 work packages
Activities over 36 months
Budget of €2.99M

10. FRESH AIR concept
Our project recognises that action to improve lung health needs to take place along a continuum encompassing awareness raising, prevention, diagnosis, treatment and support for patients and their families. Action at each stage on this continuum has implications for the other stages and there are complex interactions. Prevention cannot take place without awareness raising amongst the community. Raising awareness also increases the demand for diagnosis and treatment. Diagnosis cannot be considered in isolation from treatment opportunities. Some actions, such as smoking cessation, are both prevention and treatment. Promoting and protecting children’s lung health to ensure they can develop healthy lungs is essential at every stage and this is discussed in more detail below. Focusing on one part of this continuum would fail to identify implementation issues that arise from the often complex interaction of these stages in real life practice. One example would be the importance of understanding local healthcare workers’ perception of risk factors when training about the diagnosis and treatment of respiratory symptoms. Therefore, the FRESH AIR project will explore implementation challenges along this continuum of lung health and will address research questions designed to explore how awareness raising, prevention, diagnosis, treatment and support interact.

11. Different settings
Uganda: LIC, COPD prevalence of 16.2% in those over 30, health infrastructure is poor, indoor burning of biomass fuel (wood) used extensively for cooking, increasing rates of tobacco consumption, no public awareness of the health dangers of smoke, women are more exposed to HAP, 50% of the population below the age of 15 in 2012
Vietnam: Lower MIC, highest COPD prevalence in Asia Pacific, sparse health infrastructure in rural areas, current smoking rate in adult males is 56.1%, wood is used as kitchen fuel in rural areas
Kyrgyz Republic: Lower MIC, highest respiratory mortality of all countries in ERS White Book, current smoking rate in adult males is 47%, indoor burning of biomass fuel (dung) used extensively for cooking and heating, high altitude areas
Greece: HIC but current economic crisis has had drastic impacts on health care provision and population health, highest rates of daily tobacco consumption in EU, prevalence of respiratory diseases is high & worsening, significant Roma population

12. FRESH AIR Consortium

13. Early bird

14. Highlights: recent trends in asthma
Patient-centred care
Nurse as coach
Receiving better control in children with asthma

15. Highlights: innovative technology
Using technology to get active
Telemedicine
Spire
X-Halo
NIOX Vero
PIKO
Fitbit

17. Highlights: innovative technology
BreathCloud
Breathprints
e-Nose and database

18. Highlights: innovative technology
Breath Cloud analysis

19. Highlights: Personalized medicine
Agusti et al. Am J Respir Crit Care Med 2015;191:
Agusti et al. Eur Respir J 2016;47:

20. Highlights: end of life care

21. National care pathway COPD lung attack with hospitalization
Highlights: exacerbations
National care pathway COPD lung attack with hospitalization
Main goal
25% reduction of admission days within 5 years
To be achieved with equal or higher Quality of Life
and patient satisfaction
So the main goal is to accomplish less hospitalization days but with the same or even better QoL and satisfaction for the patient

22. Highlights: The Assessment of Burden of COPD (ABC)-tool

25. IPCRG conference SCIENTIFIC PROGRAMME COMMITTEE
Dr Jiska Snoeck-Stroband, Chair Netherlands
Dr Stephen Brunton, USA
Prof Niels Chavannes, Netherlands Dr Tjard Schermer, Netherlands
Prof Aziz Sheikh, Nature Partner Journals Primary Care Respiratory Medicine Dr Ioanna Tsiligianni, Greece Dr Frederik van Gemert, Netherlands
Prof Thys van der Molen, Netherlands
Prof Onno van Schayck, Netherlands
CONFERENCE ORGANISING COMMITTEE
Prof Niels Chavannes, Conference Chair
Dr Anders Østrem, Conference Executive
Ms Siân Williams, IPCRG Executive Officer
Mrs Sam Louw, IPCRG Business Manager
Ms Christine Lawson, IPCRG Conference Director

26. All over the world !!

27. WELCOME in AMSTERDAM