1. The Joint Annual Congress of the American Society of Transplant Surgeons and The American Society of Transplantation
Ariella Maghen, BA Research Assistant Department of Urology, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA
I have no financial relationships with commercial interests to disclose
My presentation does not include discussion of off-label or investigational use.

2. Post-Donation Experiences of Non-Directed (Altruistic) Living Kidney Donors in the United States
Ariella Maghen, BA1, Grecia B Vargas, MSPH1, Sarah E Connor, MPH, CHES1, Sima Nassiri, BS1, Elisabeth M Hicks, MA2, Lorna Kwan, MPH1, Amy D Waterman, PhD3, Sally L Maliski, RN, PhD, FAAN4, and Jeffrey Veale, MD1
1Department of Urology, David Geffen School of Medicine at UCLA, Los Angeles, CA, 2Oregon Health and Science University, Portland, OR, 3Department of Nephrology, David Geffen School of Medicine at UCLA, Los Angeles, CA, 4University of Kansas Medical Center School of Nursing, Kansas City, KS

3. Background
Non-directed donors (NDDs) altruistically donate their kidneys to complete strangers
Dawn Dorland Perry, NDD
Age 35 – Los Angeles, CA

4. The Kidney Donor Domino Effect2
In 2012, 30 transplants from a single NDD1

5. Methods and Participants
Interviews conducted via telephone
Grounded theory approach3
Coding using ATLAS.ti v7
Inductive category formation
31 NDDs recruited from:
National Kidney Registry
Living Donation California
UCLA Kidney Transplant Program

6. Results
Majority of 31 NDDs: non-Hispanic white (97%), college educated (87%), annual incomes >$100,000 (66%), blood donors (75%), registered bone marrow donors (75%)
Short Form Health Survey (SF-12)4, 5
Mean NDD scores > Mean U.S. population

7. Post Donation Experience
Results
Post Donation Experience
Physical Recovery
General Health
Effect on Lifestyle
Outlook on Donation
Follow-up Care

8. (2) General Health
“I’ve always been a healthy person…But I think that I am more conscious of it now. And taking good care of my body. So that I can stay as healthy as I am for as long as I can.”- (Female, 63)

9. (3) Outlook on Donation
“It’s probably enriched my life. There’s a statistic, it says people who donate an organ tend to live longer. It’s not because you donate your organ, it’s because your positive outlook on life, which I have. I think that’s going to carry me quite far.” - (Male, 60)

10. Follow-up Care
“...The only thing that I continue to think, was the importance of follow-up on the part of the transplant center…but it would be good if donors could say ‘yes, the hospital followed up with me. ” - (Male, 62)
“Donors need an avenue to tell their stories and spread the word and keep this kind of momentum going. There isn’t a whole lot of direction after the fact…” - (Female, 38)

11. Conclusions Post-Donation Outcomes
84% of NDDs did not experience significant changes to their physical health, general health or lifestyle
100% of NDDs enriched their outlook on life and appreciation for their own health
87.5% of NDDs experienced difficulty with accessing follow-up care

12. Next Steps Better follow-up care post-donation
Removing financial disincentives
Forming national support group for NDDs

13. Limitations
Lack of a racially and ethnically diverse participant sample
NDDs from minority racial and ethnic groups and of lower income might differ
Only interviewed NDDs willing to contact us and discuss their experience

14. Thank you!
If you would like to learn more about this research please google UCLA Kidney Exchange Program for more information!

15. References
1Sack K. 60 Lives, 30 Kidneys, All Linked. New York Times [Internet] [cited 15 April 2017]: Available from:
2Image: “The Kidney Donor Domino Effect”
3Charmaz K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publications
4 Ware JE, Snow KK, Kosinski M, & Gandek B. SF-36 Health Survey: Manual and Interpretation Guide. Boston: The Health Institute, New England Medical Center, 1993.
5 Ware JE. How to Score Version 2 of the SF-12 Health Survey. Boston: Quality Metric, Inc. and Health Assessment Lab, 2002.
6Image General Health: Resources [Internet]. Kylehyland.com. 2017
7Image Outlook on Donation: Govt issues draft guidelines to streamline kidney transplant [Internet]. The Indian Express. 2017