1. INTERNATIONAL SYMPOSIUM ON
IBD RESEARCH
Brussels 18 October 2012
Hotel Métropole
Brian Poole
Chairman
Crohn’s & Colitis New Zealand Charitable Trust
EVENT ORGANIZED BY EFCCA

2. New Zealand – Some Facts…
New Zealand has:
A population of 4 Million
15,000 IBD patients
The highest incidence of IBD in the World
A national health system providing free and equal access to medical services and pharmaceuticals
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

3. Crohn’s & Colitis New Zealand - CCNZ
Crohn’s & Colitis New Zealand (CCNZ) was established in
We have 10 Trustees, comprising:
Patients
Care givers
Clinicians
IBD nurses
14 Support Groups nationwide
3 existing prior to establishment
11 established in the past 2 years
Chief Executive appointed in 2011
Launched
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

4. Completed Projects
Face-to-Face Psychological Therapy VS. Computerised Cognitive Behavioural Therapy (CCBT)
- Andrew McCombie, IBD Researcher, Chairman Canterbury CCSG
Findings:-
CCBT more accessible
IBD patients more willing to participate via CCBT, particularly younger patients
Effect of IBD on Childrens’ Lifestyle
- Dr John Wyeth, Gastroenterologist, Trustee CCNZ
Negative impact on child and family
Frequent tests and treatments
Need for Psychosocial support
Need for interaction with other IBD children
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

5. Current Projects EFCCA Impact Study
CCNZ
Nutrigenomics –
Auckland University, NZ
Neuroticism as a Predictor of Disease Specific Quality of Life in Newly Diagnosed IBD Patients
Andrew McCombie, IBD Researcher, Chairman Canterbury CCSG
Vitamin D – Does it have a role in IBD?
Institute of Food Nutrition and Human Health, Massey University, NZ
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

6. Current Projects (continued)
Crohn’s Disease and disease of the mouth
Assoc. Professor Anita Nolan, Otago Dental School
The prevalence of oral lesions in CD and establishing if these lesions are part of the initial presentation of CD
Which Crohn’s susceptibility genes may be associated with oral CD
Markers to predict which first-degree relatives may develop CD
Environmental factors that may trigger the onset of CD
Dental habits
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

7. Collaborations Gut Health Network – www.guthealthnetwork.com
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

8. Collaborations (cont’d)
IBD Research Review –
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP

9. Our Hope…
“We are a small country with finite resources with patients and researchers widely dispersed. Unless we manage our efforts in a constructive and collaborative way we will not get the critical mass to achieve the momentum required to be effective.
We hope today is the beginning of a global journey whereby we all work together to deal with this insidious and cruel disease so that our children and our children’s children will be spared the pain of IBD.”
Thank you!
INTERNATIONAL SYMPOSIUM ON IBD RESEARCH FUNDED BY PATIENTS ORGANISATIONS – ROADMAP