1. Bill Barnett and Michel Tavares
Informatics Core
2013 CIFASD Annual Meeting
Bill Barnett and Michel Tavares
January 8, 2013

2. Topics to be Reviewed What is the Informatics Core? Services we offer
How our goals are changing for the next 5 years
Challenges we see ahead
Current status of repository
Current activities 
Work schedule

3. What is the Informatics Core?
A U24 service core for the CIFASD consortium
A service for the collection and centralization of CIFASD data
A service for integrative studies of CIFASD data
The steward of CIFASD data
The lead organization in the development of CIFASD data standards.

4. What is the Informatics Core? - Principles
We serve the needs of the consortium first and foremost.
We are stewards of CIFASD data, not data owners
We ensure standards are established and work across the consortium, but do not determine standard terms
We ensure the safe, long term storage of CIFASD data

5. Services We Offer Develop Input and Upload Tools
Apply Consortium data standards to data sets
Manage the Core Repository
Develop tools for data quality, integration, and download.
Assist in data upload, management, and custom queries

6. Services We Offer - Resources
Oracle Enterprise Relational Database Management System (RDBMS)
Core Repository of CIFASD research data
Publicly shared input and upload tools
5 Petabytes of high speed spinning disk and archival storage on a 15.7 Petabyte hierarchical storage infrastructure
High performance computing for data intensive research applications

7. How Our Goals are Changing: The Last 5 Years
Ongoing maintenance and improvement of Central Repository, Input Tools, Data Dictionary
Ongoing data quality assurance services and custom reports such as the Demographics Group Class report
Ongoing reporting of status and statistics
Ongoing assistance with usage of Upload, Input, and Cross Query Tools
Ongoing collaborative development of the Data Dictionary
Collaborative publication on CIFASD methodologies and the Data Dictionary

8. How Our Goals are Changing: The Next 5 Years
Support the existing data management, data storage, and data submission to the CIFASD Central Repository
Lead the ongoing evolution of the CIFASD informatics tools, standards, and data sets
Enable cross-study and cross-modality data analysis amongst CIFASD and affiliated data
Incorporate new modalities of data such as Genomics in to the CIFASD Central Repository

9. The Next 5 Years: Staffing
Bill Barnett is the PI: 5%
Ganesh Shankar, Manager, Advanced Biomedical IT Core at IU School of Medicine, will provide project management: 5%
Michel Tavares: Principal System Analyst: 50%
Helen Yezerets: System Analyst: 50%
Andy Arenson: Principal System Analyst: 5%

10. Challenges We see Ahead
New types of data (eg., genomic)
Integration of data from Affiliated Projects (eg., PASS)
Consortium growth from data collection to integrative research
Data access requests from non-consortium investigators
Data access requests from Year 6 on.

12. Current Status of the Repository
Neuro Phase III Data Dictionary – Finished
Neuro Phase III Input Tool – Finished
Neuro Phase III Upload Mechanism – Finished
Neuro Phase III Query Mechanism - Finished
Preschool Neuro Input Tool - In progress

13. Current Activities
Preschool Neuro Data Dictionary - Waiting for user approval
Preschool Neuro Input Tool - Beta version in review
Preschool Neuro Upload Mechanism – Analysis
Neuro Phase III Query Mechanism – Finished
DemGroupClass Report - Analysis

14. Work Schedule Preschool Neuro – anticipated by February 1
Finalize Data Dictionary
Finalize Input Tool
Finalize Upload Mechanism
Finalize Query Mechanism
Neuro Phase III – Finished
Update data query and download mechanism
DemGroupClass – anticipated by February 1
Update to handle Neuro III
Cross Query – anticipated by May 30
Address the "Matrix Effect"

15. Questions for the Consortium
Development
What are next tasks?
What is anticipated time frame for those tasks?
What is the priority of those tasks?
Data
What is schedule for data coming into CR?
Are there anticipated Cross Queries for which we can prepare?
Affiliated Projects
When will we need to integrate with PASS (and other data) and how will that happen?

16. Thank you! Questions? Bill Barnett (barnettw@iu.edu)
Ganesh Shankar
Michel Tavares
Helen Yezerets
Andy Arenson