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Risk Feeding : Managing it better
Dr Rachael Murphy, Ros Todd (SLT), Sasha Archer (SLT)
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“I want to eat”
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Patient’s view of tube Feeding tube postponed
Getting home is dependant on having a tube Partner wants tube Tube will mean he is protected while he E and D normally Tube carries no risk Wants to Eat and Drink “not large amounts but not nothing at all” Feeding tube postponed
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Partner’s view of tube Wants A to have the tube
Tube will mean A can be risk-free However if A is not allowed to eat and drink that won’t be a problem; he wont eat and drink Had not thought about the ‘what ifs’
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Spoke to them together:
Unless nbm the tube is not the panacea for all risk A does not wish to be nbm; he would rather die A has capacity A and F did not realise they could take a view/ participate in risk assessment A and F made aware of what could happen A made aware that F does not want to see AS suffer Hence both agree to robust ACP
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What is Risk Feeding? “When a person continues to eat and drink despite a risk of aspiration and or choking” Other terms often used: “Comfort Feeding” “Pragmatic approach”
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Why feed with risk? Advanced stage of illness
Unsafe swallow, unlikely to change Food preferences more important than aspiration risk Not for NGT
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Managing it better Risk feeding is common practice Risk Feeding balances safety and quality of life as equally as possible. Is there equity of service? There are several protocols in existence across the UK e.g. Lewisham and Greenwich; Guys and St. Thomas’
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Risk Feeding practice elsewhere
Lewisham and Greenwich: “Risk Feeding Toolkit: A safer approach to ethical feeding decisions”
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Good practice Embedded Risk Feeding Policy within the trust
Clear Risk Feeding Pathway Decision made in consultation with patient, family/carer, SLT and doctor Proforma includes statement of capacity and recommendations for reducing, but not eliminating risk Written information and guidance for families Fully documented feeding with risk status (e.g. On TRAK)
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Process Summary
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Proposed protocol:
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Supporting documents
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