1. Connecting Communities: Creating Better Lives
Irene Oldfather
Director
Health and Social Care Alliance

3. The Story Frustration Fighting with professionals Going from
Daughter to
Carer
Pushed into
Role play
Loss
Freedom
Fragmented
Loss of identity
Treated as
a child
Loss of choice
Live with
mystery
Isolation
Diagnosis

4. Connecting People

5. National Dementia Carers Action Network
NDCAN
National Dementia Carers Action Network
National campaigning group, supported by Alzheimer Scotland
Members all have experience of caring for someone with dementia – husbands, wives, children, siblings, grandchildren, friends…

6. Inspiring Communities

7. What Works?

8. Make a Difference Campaign
I pledge to always ask how the person is feeling each day - Emma 0`Donnell
I pledge to press my local MP to review their policy towards dementia, and improve it - Martin Young
Captures and shares carers experiences
Asks people to make a pledge
Pledge Campaign – Over 2500 pledges gathered
I pledge to listen, care, give more time for those that need listening too – Hamed Mutahar
I pledge to do my best every day for everyone I meet

9. Make a Difference Campaign

10. Charter of Rights Set up by Cross Party Working Group
Based on PANEL approach
Promotes rights of people with dementia and their carers

11. Closing Thought
“A friend knows the song in my heart and sings it to me when my memory fails.”
- Donna Roberts

12. Director, Health & Social Care Alliance Scotland
Thank you
Irene Oldfather
Director, Health & Social Care Alliance Scotland
@IreneOldfather
@dementiacarervo
dementiacarervoices.wordpress.com