1. Bsbmt data registry update
Julia Perry
Head of BSBMT Data Registry

2. Bsbmt data registry Who are we? Where are we based?
Julia Perry – Head of Data Registry
Rachel Pearce – Statistician
Marie Wilson – BSBMT & AN Senior Data Manager
Ruth Paul – BSBMT Senior Data Manager
Clementina Abamba – BSBMT Senior Data Manager (Oct 2017)
Where are we based?
Tabard House, Guy’s Hospital, London

3. Current/Completed registry projects
8th commissioning report has been completed and sent to commissioners and centres who have paid membership fees
Long term outcomes for transplants done in inc, D100 and D365 outcomes for transplants
Retrospective studies (Voluntary, but important)
BEAM v LEAM Study (1599 transplants) – closed, in analysis stage
AN Genetics Study in Unrelated donors Allografts (2371 transplants) – data collection
UK v EU 07 Benchmarking exercise (mandatory study): Allograft in Follicular Lymphomas
350 transplants, 32 centres – data collection

4. Transplant activity 2016

5. Transplant activity 2016
4398 Transplants declared from EBMT 2016 Activity Survey
Data on website
To Date: 4100 transplants registered so approx. 300 missing/not registered
285 more transplants than 2015
Transplant activity declared v transplants registered per centre
Will be sending centres re missing registration soon
transplants registered to date

6. upcoming registry projects
9th commissioning report in preparation – 2010 to 2016 – call for follow ups and missing registrations Nov 2017
Data quality reports
Missing Day 100
Day 100 Due
Missing Postcodes, Ethnicity and Comorbidity
Follow up due
Discrepancies/missing information

7. Important Meetings/dates
UK v EU Benchmarking Exercise – 1st deadline Friday 6th October 2017
BSBMT Education Day- Thursday 2nd November 2017, Cavendish Conference Centre
Nov 2017: Call for follow ups data
2nd DM Training Day Feb/March 2018 – Non London Location
EBMT 2018 Lisbon, Portugal March 2018
31st March 2018, deadline for FU/registration submissions

8. announcements
EBMT 2018 Annual Conference Grants – more details to follow
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