1. Suggested Organizational Structure for an Association of PWS

2. Key Topics Association Name Online presence (Web page; Facebook)
Self-Help Groups
Public Relations / Media
Events
Association Name
International Contacts
Creating information in the local languages
Online presence
(Web page; Facebook)
Annual Conference
Contact with Employers
OUTREACH
Increasing Awareness
Contact with Speech Therapists + Research
Fundraising

3. Step 1: Establish an Association
Decide on a name
Suggestion: Incorporate the words “Stuttering Association”
Examples:
Bosnian Stuttering Association
The Gambia Stuttering Association
Find out how to register the association as a non-profit organization
It might be complicated
It might not be necessary in order to start activities
It WILL be necessary once you start handling money

4. Step 2: Online Presence Website Facebook group
The ISA can host a temporary web page
Include contact and event information
Facebook group

5. Step 3: SHG groups for PWS
Establish your guidelines for SHG Meetings
Start in the major population centers
Try to find a place to meet where you don’t need to pay
E.g., Community center, Prayer center
Public park
Schedule meetings once a month to start with
Advertise via:
Announcements for self-help group meetings in classified ad sections of newspapers
Flyers pinned up on message boards
Local newspapers on online communities

6. Step 4: Information on stuttering
Ideally, make information on stuttering available in the native language(s)
The Stuttering Foundation ( seems to be a good, standard source for information about stuttering
Prepare a basic set of information on stuttering. For example:
Myths about stuttering
Facts about stuttering
Notes to the Teacher: The Child Who Stutters at School
Notes for employers
Stuttering and Your Child: Question & Answers; tips for talking with your child

7. Public Relations & Media
Article on stuttering in a major newspaper
Television report