1. Annual Fall Meeting November 13, 2016
6:30pm
Welcome
J. Kirklin/M. Everitt
6:40pm
Steering Committee Report
M. Everitt
6:50pm
DCC Update
J. Kirklin/D. Naftel
7:05pm
Web Based Data Entry
D. Naftel
7:20pm
Database Committee Report
M. Richmond
7:35pm
Foundation Update
C. Collum/B. Wilk/R. Gajarski
7:50pm
Risk Factor Model
K. Schumacher
8:05pm
Heart Failure Simulation
B. Feingold
8:10pm
iPHFR
R. Gajarski
8:15pm
Break
8:30pm
Pedimacs Report
B. Blume
8:40pm
Scientific Committee Report
D. Hsu
8:50pm
Scientific Committee Sponsored Workshops
9:35pm
New Business
9:45pm
Adjourn

5. Data entry completion

6. Published Manuscripts
Outcomes of children implanted with ventricular assist devices in the United States: First analysis of the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs)
Blume, Elizabeth D. et al. The Journal of Heart and Lung Transplantation
Adverse Events in Children Implanted with Ventricular Assist Devices in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs)
Rosenthal, D.N. et al. The Journal of Heart and Lung Transplantation
Outcomes of pediatric patients supported with continuous-flow ventricular assist devices: A report from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs)
Rossano, Joseph W. et al. The Journal of Heart and Lung Transplantation

7. Projects in process
Infectious Complications of Ventricular Assist Device use in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support S. Auerbach Research Status: ISHLT Finalizing manuscript
Temporary Circulatory Support in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support A. Lorts Research Status: ISHLT 2015 manuscript in draft
Utilization and Outcomes of Ventricular Assist Device Support in Adult Congenital Heart Disease: An analysis of the Intermacs C. Vanderpluym Research Status: ISHLT 2015 Manuscript submitted to JHLT
Pedimacs and PHIS databases to evaluate: Resource Utilization in Pediatric Patients Supported with Ventricular Assist Devices J. Rossano Research Status: Linkage in process at CHOP 
Changes in Renal Function Following Left Ventricular Assist Device Placement in Pediatric Patients J. Friedland-Little Research Status: Accepted AHA 2016
Outcomes of infections in children and young adults with ventricular assist devices S. Chen Research Status: Submitted ISHLT
PHTS-Pedimacs linkage: Sutcliffe, Research Status: Submitted ISHLT

8. 2017 project directions Single ventricle/ CHD Neuro AE PHIS $$
Rehospitalizations/discharge
Quality of life

9. 28 institutions have participated in writing groups
Lurie Children’s Hospital of Chicago
Barnes-Jewish Hospital/St.Louis Children's
Children's Healthcare of Atlanta
Children's Hospital Boston
Children's Hospital of Colorado
Children's Hospital of Wisconsin
Children's Medical Center, Dallas Texas
Cincinnati Children's Hospital Medical Center
Columbia Presbyterian Children's Hospital of NY
Duke University
NHLBI
Seattle Children's Hospital
Shands at the University of Florida
Stanford University Medical Center
Stollery Children's Hospital, Canada
Texas Children's Hospital
The Childrens Hospital, Denver
The Children's Hospital of Philadelphia
UCLA
University of Alabama at Birmingham
University of Colorado Hospital
University of Michigan
University of Nebraska Children's Hospital
University of Pittsburgh
Washington University School of Medicine
Lucile Packard Children's Hospital
Medical University of South Carolina
Methodist Hospital Indiana
Nemours/A.I. duPont Hospital for Children
58 individual investigators

10. How to Get Pedimacs Reports and Data
Pedimacs reports are easily accessible online as a part of the Intermacs statistical reporting
Public Statistical Report – Biannually, an updated Pedimacs Statistical Report is released including overall cohort patient and implant characteristics and outcomes such as survival estimates and competing outcomes
Quality Assurance Site Report – Site administrators can download a site specific comparison report comparing patient and implant characteristics and outcomes at their site with the overall Pedimacs cohort on a biannual basis
Data Quality Site Report – A snapshot of key data elements are provided to Site Administrators twice a year and are a part of the Pedimacs auditing process
Coming Soon
Research SAS Datasets – Each quarter the many forms collected in Pedimacs are checked and combined into analytical datasets suitable for research and analysis
Instantaneous Downloadable Excel Spreadsheets, Web Based Cohort Comparisons, and User Specified Outcome Analytics
Who is my site administrator?

11. Participation Quality of Life Committee Coordinator Council
Adjudication committee/ Adverse Events
Writing groups
International participation
Education Committee

12. Please join us for the Intermacs 11th Annual Meeting March 3-4, 2017
Westin Peachtree Plaza
210 Peachtree Street NW
Atlanta, GA 30303