1. Services after Hospital: Action to develop REcommenDations
The SHARED Study
Services after Hospital: Action to develop REcommenDations
Carole Mockford, Kate Seers, Sophie Staniszewska, Jan Oyebode, Matt Murray, Rosemary Clarke, Rashida Suleman
University of Warwick, University of Bradford, Alzheimer’s Society, UNTRAP
BACKGROUND: Health and Social Care services are under pressure to provide care in the community particularly at hospital discharge 1,2. Patient and carer experiences can inform and shape these services 3.
AIM: To develop service user-led recommendations to enable smooth transition from acute hospital to the
community for people living with memory loss and their carers
OBJECTIVES:
1. Explore experiences of service provision of a) patients and carers
b) health and social care professionals
2. Explore extent of patient and carer involvement in discharge process decision-making
MAIN METHOD
LAY CO-RESEARCHERS
RECRUITMENT OF 20 PATIENTS WITH CARERS
TRAINING
In research methods and interview techniques
from 2 NHS trusts in England
Patients had memory loss as observed by ward staff, aged 65 and over, an inpatient for minimum of 1 week and on discharge pathway with carer.
Accompanied by lead researcher
INTERVIEWS OF PATIENTS AND CARERS
INTERVIEWING
Semi-structured, conducted at discharge, 6 post-discharge, and 12 weeks post-discharge, diaries kept between interviews
INTERVIEWING
In site 1 only, accompanied by lead researcher
INTERVIEWS OF HEALTH AND SOCIAL CARE PROFESSIONALS
Semi-structured, one time only
DISCUSSION OF TRANSCRIPTS
FRAMEWORK ANALYSIS
To identify key components for framework analysis
OUTCOME: 12 common statements emerged from interview data
FOCUS GROUP 1
FACILITATING FOCUS GROUP DISCUSSION
Nominal group technique, statements discussed, agreed and scored
COMMENTS FROM HEALTH AND SOCIAL CARE PROFESSIONALS
FACILITATING FOCUS GROUP DISCUSSION
FOCUS GROUP 2
Discussed comments and scoring
OUTCOME: Recommendations
DISSEMINATION FORWARD PLANNING
STUDY FINDINGS
Recommendations:
1. To have a written, mutually agreed and meaningful discharge plan
2. To have a named coordinator who is a point of contact for services and support
3. To improve the quality of care provided by care agencies in patients homes
DISCUSSION: Vulnerable patients living with memory loss find leaving acute hospital after an extended period a stressful experience, as do their carers. The SHARED study contributes to understanding the hospital discharge process through the eyes of the patient and carer living with memory loss. The SHARED study can potentially contribute to more efficient use of resources and to improving health outcomes in communities.
REFERENCES: 1.Care Quality Commission (2015) The state of health care and social care in England 2014/5 2.Age UK (2015) Briefing: The Health and Care of Older People in England 3.Brett J, Staniszewska S, Mockford C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 2014;17(5):637–650.
This poster summarises independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit Programme (Grant Reference Number PB-PG ).
The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.