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Surviving as a Survivor
Vince Mosesso, MD Professor of Emergency Medicine University of Pittsburgh/UPMC
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Disclosure of Potential Conflicts
Medical director – Sudden Cardiac Arrest Association (no compensation) Research grant – Zoll LifeCor, Pittsburgh, PA (small grant) Advisory board – OxySure Systems, Inc, Frisco, TX (stock options)
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Survivor survey (Abella,2008)
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History of SCAA COPE Program
SCAA Think Tank on Recovery and Rehabilitation after Cardiac Arrest (SCAA Headquarters, Washington, DC; April 2011) Survey of SCAA Survivor members (Sam Sears, Ph.D., East Carolina Univ, 2012) Publications based on survey data
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Characteristics of SCA Survivor Respondents
188 (31%) of 591 survivors listed in SCAA registry responded Sears S et al. HRS 2013
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Changes in health after the SCA
General health Emotional health Quality of life Sears S et al. HRS 2013
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Psychosocial concerns
Immediately after arrest At time of survey Rank % Feeling depressed 4 47 2 25 Feeling anxious 1 63 32 Understanding the event 3 52 - Fear of physical exertion 53 23 Financial impact 22 Family emotional reaction 5 Becoming a “burden” 20 Sears S et al. HRS 2013
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Gender Differences in Psychosocial Problems 3 Months after SCA
Rosman et al, 2013
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Cardiac anxiety Rosman L et al. Intl J of Cardiology. 2014
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PTSD after SCA Rosman L et al. Eur J of CV Nursing. 2015
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Sawyer KN et al, 2016
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Sawyer KN et al, 2016
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SCAA COPE Program: Cardiovascular Outcomes/Psychosocial Education
From-To Guidebook Develop a FAQ for Survivors, Implantees and their families. This would be a “From Experienced Survivors and Implantees To New Survivors and Implantees Guidebook.” COPE DVD and Brochure for Patients The CD will inform patients that there are consequences to their arrest or implantation that may require support. A discussion about SCA and ICD implantation; COPE Section of the Website 800 # COPE line Chapter building Coordination with ICD Manufacturers Training
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Susan Koeppen KDKA-TV News Anchor & SCA Survivor
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