1. Module 5 HAIL Research
This module provides an overview of how researchers will collect data with both Independent Living Specialist(ILS) and consumers.

2. Module 5 Learning Outcomes
To understand the importance of the HAIL research process
To understand how researchers will collect data with ILS
To understand how researchers will collect data with consumers

3. Module 5- Contents The importance of the HAIL research process
HAIL research overview
HAIL research process with ILS
HAIL research process with consumers

4. Why Is HAIL Research Process Important?
To evaluate the HAIL process/procedure
Find out what works and what does not work
To evaluate the HAIL outcome
Find out whether consumers have benefited from the HAIL program
Increased knowledge and consumer skills to access health care?
Increased knowledge and skills to manage secondary health conditions?
To improve the HAIL program

5. HAIL Research Overview
Start: HAIL Staff Meet with IL Specialist
Choose Eligible Consumers
Pre-Data
HAIL Training
HAIL Steps
Post-Data
Complete Paperwork
Collected /conducted by IL specialist
Collected /conducted by HAIL staff

6. HAIL Research Overview (cont.)
ILS tasks:
Recruit eligible consumers as participants;
Implement HAIL steps with consumers;
Record how HAIL steps are implemented with each consumer using an existing system or the HAIL tracking form;
Communicate with the HAIL researchers about program implementation.

7. Let’s Talk!
Do you have any questions so far about HAIL research process and what you should do?

8. Data Collection with ILS
During HAIL Implementation:
Record how the ILS worked with each consumer:
How much time does the ILS spend working with the consumer?
What’s the format of the communication (e.g., in-person meeting, phone conversation, text, ) between the ILS and the consumer?
What are the main activities occurred during each contact?
How often does the ILS communicate with the consumer?
We can either ask the ILS to fill out a form or extract this information from their existing database if applicable.

9. Data Collection with ILS (cont.)
During HAIL Implementation:
Assessment of goal achievement with the Goal Attainment Scale (GAS)
Purpose: to measure the extent to which goals have been achieved
5-point measurement scale
1 = much less than expected outcome
2 = somewhat less than expected outcome
3 = expected outcome
4 = higher than expected outcome
5 = much higher than expected outcome

10. Data Collection with ILS (cont.)
Assessment of goal achievement (cont.)
Goal setting (ILS and consumers)
The ILS assist consumers to set short-term SMART goals
1 = much less than expected outcome
Current level of each goal
2 = somewhat less than expected outcome
3 = expected outcome
Identified short-term SMART goals
4 = higher than expected outcome
5 = much higher than expected outcome

11. Data Collection with ILS (cont.)
Assessment of goal achievement (cont.)
Goal measurement
Researchers will define the other levels of goals using the GAS for consumers
Researchers will confirm with the consumers and ILS
Researchers will ask the consumers to rate their goal performance at the end of a goal pursuit period
Researchers will ask the ILS to evaluate the goal performance of consumers for reliability

12. Data Collection with ILS (cont.)
During HAIL Implementation:
Record of consumers’ short-term goals
What are the consumer’s short-term goal(s) for consumer skills?
What are the consumer’s short-term goal(s) for addressing secondary health conditions?
How is the consumer going to track his/her progress toward goals?
What is the progress made upon each contact between the ILS and the consumer?
What are the obstacles or challenges faced by the consumer?

13. Data Collection with ILS (cont.)
After HAIL Implementation
Researchers will interview (in-person or phone) the ILS about their experiences in using the HAIL program:
What worked?
What did not work?
How to improve HAIL?

14. Data Collection with Consumers
Before HAIL Implementation:
Sign consent Form
Complete documentation, including pre-tests:
Demographic Survey
Barriers to Health Promotion Activities Among Persons with Disabilities (BHAPD)
Self-Efficacy for Managing Chronic Disease
The Hope Scale

15. Data Collection with Consumers (cont.)
During HAIL Implementation:
Report the goal pursuit progress
Goal Attainment Scale (GAS)
After HAIL Implementation:

16. Data Collection with Consumers (cont.)
After HAIL Implementation:
Post-tests
Barriers to Health Promotion Activities Among Persons with Disabilities (BHAPD)
Self-Efficacy for Managing Chronic Disease
The Hope Scale

17. Data Collection with Consumers (cont.)
After HAIL Implementation:
Researchers will interview (in-person or phone) consumers about their experiences with the HAIL program:
What worked?
What did not work?
How to improve HAIL?

18. Let’s Talk!
Do you have any questions about HAIL data collection process both with ILS and consumers?
Any questions about HAIL research?