1. Auditory Neuropathy: Beyond the Diagnosis
Katie Masterson Colella, Au.D.
Ann & Robert H. Lurie
Children’s Hospital of Chicago
Audiology
Anne Howard, M.A.
Macomb ISD
October 21, 2016

2. This presentation is NOT:
Another lecture about how to diagnosis auditory neuropathy spectrum disorder

3. This presentation is also not:
Full of many answers

4. So why am I here? To spark discussion about:
Families’ struggle with diagnosis
Barriers in understanding
What we can do to help

5. Three Patients with Different Demographics
Ethnicities
Age of parents
Family system
Birth history
Other co-morbidities C
Similar Demographics
Identified by UNHS
First and only child
Gender
Parents struggled with dx I P

6. Supporting Families of Children with Auditory Neuropathy
Stephanie Olson, B.A., Family Consultant at Children’s Hospital Colorado; Presented at Sound Foundations 2013
Focus group with 13 families
Common themes identified
Wanting to know what their child was hearing
Feeling professionals were not confident in their knowledge of ANSD and not always referring properly
Wanting parent-to-parent support
Feeling their observations were not valuable
Afraid for their child to lose the hearing they had
Wishing they had understood the importance of collaboration with other professionals before their child was school-age
Sound foundations 2013 – How do I cite?

7. Small Group Discussion
Challenge families have had with the diagnosis
What resources had a positive impact
What can we do as a profession to educate collaborating professionals about ANSD

8. Current Updates C: 3 yr, 2 mo; Received 1st CI at 2 yr, 10 mo
P: 2 yr, 10 mo; Currently in cochlear implant evaluation
I: 2 yr, 11 mo; Lost to follow-up