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Published byBertha Kelley Modified over 6 years ago
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The Patient Experience With Systemic Lupus Erythematosus
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Presentation of SLE Variable Symptomatology
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Treatment Goals
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Challenges of Assessing Disease Severity
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Symptoms Have Symptoms Balancing Risks and Benefits
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Involve Patients in Rethinking Targets of Care
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Treating the Life of a Patient Ongoing Presence of SLE
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Importance of Interprofessional Care Team Working Together for Improved Outcomes
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Engaging Patients in Care Plan Asking the Right Questions One Patient at a Time
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The Time Factor Establishing Patient Relationships
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Informed Shared Decision-Making
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Coordinated Care for Better Outcomes
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A Lifelong Disease Needs a Lifelong Plan
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Recognizing the Issues of Nonadherence A Back-to-Basics Approach
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Patients Are Humans Nonadherence Is Normal
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Weighing the Risks and Benefits of Corticosteroids
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Record-Keeping Patient Diaries
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Knowing the Whole Story
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Knowing the Whole Story (cont)
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Treatments for Patients With SLE The Good and the Better
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Clinical Trials Offer New Options for Patients
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Clinical Trials Offer New Options for Patients (cont)
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Concluding Remarks
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Abbreviations
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