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Charles Crawley Presidents update Nov 16

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Presentation on theme: "Charles Crawley Presidents update Nov 16"— Presentation transcript:

1 Charles Crawley Presidents update Nov 16
BSBMT Open Meeting Charles Crawley Presidents update Nov 16

2 National clinical trials network for stem cell transplantation
NIHR support 4 year funding

3 National clinical trials network for stem cell transplant NIHR support
Hub – based in Birmingham All transplant centres will be invited to join Support for trials nurses in 10 centres

4 Pivotal role for CTC NIHR badged Steering group for IMPACT
Aim to work up 3 prospective studies per year Practice changing Investigator lead Deliverable NIHR badged

5 Timelines Nov 16 -Applications for Medical Director (closed).
Nov 16 Trials proposals and work up. Jan-Feb 17 – Centre applications (clinical trials nurse support) July 17 – Trials nurse appointments Oct 17 – First patient entry

6 Clinical Review Group (CRG)
Reformatted CRG Chair – John Snowdon Representatives NHS BT Anthony Nolan Paediatric BSBMT Regional reps 8 Patient reps 3

7 Commissioning intentions
Policies agreed for aGvHD cGvHD Waldenstroms Second transplant Indications due to be considered in 2017 Lymphoblastic lymphoma PCNSL

8 Registry 7th Annual report 2008-13 long term outcomes
2014 transplant activity Era analysis vs

9 vs Overall Survival

10 vs NRM

11 Data Management Support
Completed Data Manager Survey Site visit program Data Management Workshop Working with transplant centres towards paperless reporting Improving metrics for data quality

12 Protocol Harmonisation
Matt Collins Due to circulate summary of common protocols Agree a short list of 2-3 commonly agreed variants Publish on the BSBMT website Contribution to English language - protocologram

13 Scientific and Educational Days
Education day – Today John Snowdon Scientific day – Wed 10th May 17 Karl Peggs/Persis Amrolia Education day Support for one team member from all centres to attend Ideas/suggestions

14 Hepatitis E Recommendation by SaBTo to provide HEV screened blood products in March 16 New SaBTo guidance imminent Likely universal screening Guidance on donor screening Outstanding questions management of positive patients and donors Post transplant screening Dietary advice

15 ACCEA 2016 David Marks (chair) Applications New Renewal Platinum 1
Gold Silver 3 Bronze

16 BSBMT Executive Standing down Stepping up Gordon Cook David Edwards
Jenny Bryne

17 Elections President elect Autologous transplant representative
Executive member

18 Quality Managers Forum
Sarah Hotlby Next meeting – Thursday 3rd Nov

19 BSBMT Nurses Group Michelle Kenyon Meetings Southampton
October 17 – Manchester combined with EBMT International Nurses Study Day


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