1. This is not an Agored Cymru publication
This is not an Agored Cymru publication. It has been developed by colleagues from Cwm Taf University Health Board and is currently being hosted by Agored Cymru until a more suitable site becomes available.

2. Paul Beckerton Stroke Information and Support
March 2013

3. What We Do We believe in life after stroke
We campaign to improve stroke care
We support people to make the best possible recovery
We fund research to develop new treatments
We are a charity
We rely on your support to change lives

4. The Bigger Picture UK & Wales
Stroke is the UK’s third biggest killer after heart disease and cancer
Approx. 152,000 strokes occur in the UK each year
Approx. 50,000 people die from stroke each year
Each year in Wales 11,000 people have a stroke
We estimate that 65,100 people in Wales are living with the effects of stroke

5. Stroke Information Services

6. Website

7. Local Services Keep in Touch
Explain what a stroke is and what they can expect
Help with navigating the health and social care system
Help with discharge planning
Continue to provide support post-discharge
Support lifestyle changes to reduce stroke risk  
Signposting / referring on to services and opportunities

8. How to Refer Referrals are welcome at whatever point
Use the electronic referral form
Be as descriptive as possible
Health colleagues
Send it via PII to my LHB account
Local Authority colleagues
Data protection

9. Local Services Day Service
Works with Service Users to set realistic goals
Helps people face up to profound changes
Helps people gain a sense of perspective
Information and emotional support (especially peer support)
Exercise and education programmes
Help with returning to work or pre-stroke past-times

10. Local Services Day Service Trehafod - alternate Wednesdays
Merthyr Tydfil - alternate Tuesdays

11. Local Services Communication Support Service Person-centred
Extends the support offered by SALT
Works on everyday communication skills
Supportive environment
Social opportunities and activities
Available for as long as people need it

12. Local Services Communication Support Service
Church Village - Wednesday, Parish Hall
Tonypandy - Thursday, Methodist Chapel
Mountain Ash - Friday, YMCA
Merthyr Tydfil - Wednesday, Ty Gwaunfarren

13. Life After Stroke Grant
For stroke survivors experiencing financial hardship caused by their stroke
Eligibility
≤ £1000 in savings
Income must not exceed expenditure by >10%
Means-test form with social impact statement
Service User supplies letter-headed quote
Usually up to £400 (straight to vendor)
Takes about 4-5 weeks

14. Life after Stroke Grant
What we can’t help fund …
Private medical treatment
Travel outside the UK
Labour costs, including removal and structural alterations
Nursing home fees other than respite
Computer equipment or televisions
Debts and rent arrears

15. Research We believe in the power of research to save lives
We aim to make stroke a preventable and treatable disease
We aim to improve the quality of life for people affected by stroke
We have an annual budget of £3M to fund stroke research

16. Did you know …
… we’ve invested £40M over 20 years into stroke research?
1994 – first trial of Early Supported Discharge at Guys and St. Thomas’
1996 – Nottingham Stroke Unit study showing that treatment on a specialised stroke unit reduces disability and saves lives
1999 – feasibility study for IST-3: thrombolysis brought into 12 UK hospitals for full trials

17. More Research And the story goes on … with your help
2003 – 1/10 with TIA will have a stroke within a week; 80% can be prevented with prompt medical treatment.
2005 – development of the ABCD score to identify which TIA patients are at the greatest risk of having a full stroke

18. We are a Charity Fundraising brings in £17M/£30M of our
2012/2013 budget
Fundraising provides the funding for our:
Research programme
Stroke Helpline 
LAS Grants programme 
Campaigning 
Website and publications IT
Facilities