1. Step Forward to Cure TSC

2. Introductions April Cooper Director of Special Events Gail Saunders
and Corporate Partnerships
Gail Saunders
Associate Director, National Walks
and Community Campaigns
Shelly Meitzler
National Walks Coordinator

3. total revenue is trending up.
The good news is…
total revenue is trending up.

4. special events revenue is trending down.
The bad news…
special events revenue is trending down.

5. Walk Trend w/o Sponsorship
Walk Revenue Trends
Total Walk Revenue
Walk Trend w/o Sponsorship
2017 has 32 walks budgeted / scheduled across the country
2017 walk revenue is 23% of the overall TS Alliance revenue
2017 budget is $1,085,000, a 3% increase over 2016 actuals
2015 and 2016 actuals vs. budget averaged -5% below budget
2017 national sponsorships are already -$50,000 below budget

6. What Is the TS Alliance Doing to Help?
Created a Specialized Team to Work Closer with You
April, Gail and Shelly
We Listened to You and Made Improvements
Website
Rewards Programs
Corporate Team/Volunteer Partnership Program
Lids Foundation
CVS / Caremark
Actively Seeking Others
The TS Alliance believes that by using a multi-pronged approach that includes efforts directed at both research for a cure as well as support and education for the TSC community, it will maximize its impact and improve the lives of those affected with TSC. This includes:
Focusing on targeted research to understand course of the disease to identify new treatments and a cure
Altering the course of the disease through prenatal diagnosis and preventative treatment to improve the quality of life of those with TSC and to enable them to live as independently as possible
Educating medical professionals to achieve faster diagnosis and better treatment aligned with consensus guidelines
Community building to empower those living with and caring for those with TSC
Strategies:
Accelerate Research
Grow participation in the TSC Natural History Database, enabling greater understanding of the course of the disease
Distribute research funding for basic biology studies, development of new therapeutics
Impact: As a result of expanding access to quality clinical care for TSC, improve the clinical outcomes and quality of life of individuals affected by TSC. As a result of investing directly in TSC research and in infrastructure to support TSC research, identify treatments that can improve the clinical outcomes and disease burden of individuals affected by TSC.
Support and Empower Constituents
Identify more individuals and families affected by TSC
Attract new volunteers via appeal to a broad range of demographic segments for delivery of programs
Increase peer-to-peer support from ARCs, Clinic Ambassadors, Dependent Adult Transition Resource Coordinators and CA meetings and gatherings from 2,200 to 4,400 by 2018, facilitated by online presence
Impact: As a result of providing educational, peer and social support, improve the cognitive outcomes and quality of life of individuals affected by TSC and their family members.

7. Mark Your Calendar
What’s happening at the TS Alliance in March and April
March on Capitol Hill, March 1
Sound Bites, March 1
Team TSC (Train – Sweat – Conquer) Endurance program, launches March 2 with the New York City Marathon
Comedy for a Cure, April 2
Step Forward to Cure TSC walks kick off the season on April 22:
Alabama, Tampa, FL and Arizona
Upcoming Webinars
March 15 and March 29
Team and Volunteer Recruitment, Plus Event Management in Luminate
Networking Discussion
April 12
Working with your Sponsors and Promoting your Walks
Invite Team Captains to Join the Conversation
What other topics are important to you?

8. Questions?