2. Module 2: Orientation to the Role of an Advisory Coalition

3. Module 2 Contents
In Module 2: Orientation to an Advisory Coalition, you will learn:
The role of the coalition
Who will be part of the coalition
Some of the steps and processes including
The 3 coalition meetings
Trainings
Interviews
How to use effective communication to be a valuable partner

4. Project Aims Establish a coalition of stakeholders
2. Identify strategies for engaging individuals living with TBI as research advisors
3. Develop a new Patient-Centered research agenda to improve the health and wellness of individuals living with TBI

5. Role of Coalition
Provide feedback to researchers and clinicians to aid in developing a research agenda to improve the lives of those living with TBI
Advise researchers and clinicians on the health care priorities of people living with TBI

6. Who is part of the Coalition?
24 stakeholders total:
12 individuals living with a history of TBI or their caregivers
9 professionals representing clinical providers, researchers, and advocates
3 research team members

7. Coalition Meetings 3 in-person workshops:
Two-day workshop for training, capacity development, and mutual learning
Half-day workshop to develop a prioritized list of research questions
One-day consensus meeting to finalize the research agenda

8. Project Aims Establish a coalition of stakeholders
2. Identify strategies for engaging individuals living with TBI as research advisors
3. Develop a new Patient-Centered research agenda to improve the health and wellness of individuals living with TBI

9. Engagement and Training
Online orientation – The training modules you are working on
Orient you to the project and processes
Teach you what Patient-Centered Outcomes Research is
Practice skills that will help you contribute to the Coalition
First In-Person Workshop
Meet and get to know each other
Review the training materials
Finalize the Coalition Membership Agreement
Gather an initial list of TBI health care priorities

10. Interviews Every six months
Help us evaluate the patient engagement process
We will ask you about your experience with the study:
What you did
How you were involved
What you learned

11. Effective Communication and Teamwork
As a member of the Coalition, you will be providing feedback and insight in a group setting. Good communication is key. Here are some important things you can do to facilitate communication:
Listen carefully
Wait for others to finish before you talk
Speak with others as you would like to be spoken to
Use positive body language

12. ***Please take out and complete “Communication Self-assessment”