1. Better Lives. Together.
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson’s community.
We are:
Patient and community centered
Evidence-based
Driving the field forward through collaboration
Focusing on maximum impact, scalability and sustainability

2. Parkinson’s Advocates in Research Program
Parkinson’s Foundation Research Advocates are people with Parkinson’s and care partners who have been trained in both the clinical research process and how to collaborate with researchers in industry, academic centers and government to:
Prioritize Research +
Influence Stakeholders
Improve Studies =
FASTER RECRUITMENT

3. Parkinson’s Foundation Patient Panel for Pfizer
7 Research Advocates in a one-day panel
8 Parkinson’s Foundation generated recommendations
3 clinical trial modifications
Identified the most impactful non-motor symptoms (secondary outcomes) for people living with Parkinson’s
Altered PRO tools to accurately capture the lived PD experience
Clarified how people with Parkinson’s are defining these symptoms

4. Best Practices
Start conversations early in the process including with legal teams
Set expectations
Identify the right participants
Co-create the panel
Share information bi-directionally
Be accountable and transparent
Keep the relationship going