1. Shared Haemodialysis Care: Giving people who receive dialysis the opportunity to take a role in their own care.
Professor Martin Wilkie –
Consultant Renal Physician
Sheffield Teaching Hospitals NHS Foundation Trust

2. The Vision
For people who receive dialysis at centres to have the opportunity and choice to participate in aspects of their treatment and thereby improve their experience and their outcomes.

3. Why is dialysis important?
In England 20,000 people attend centres three times (16 hours) each week to receive haemodialysis.
It has a major impact on quality of life
The survival for people on dialysis is similar to that of a major cancer
The cost to the NHS of treating kidney failure is £636 M per year
Currently only the few who choose to go home are trained in managing their care.
People become so disempowered on hd
Patient carer quality of life
“….my life revolves around dialysis every other day”

4. The concept of Shared Haemodialysis Care is to support involvement for people who dialyse at centres

5. Shared Haemodialysis Care
Develops patient self-management skills which helps support patients and carers to take a greater role in their own care
Works within any unit using existing resources and can be offered to all patients
Is not a means to force people to dialyse at home.
Choice starts whether they want do it at all – is essence the powerement
Not bossing anybody
Liz Hill-Smith 27/01/2016
I like the emphasis that it : "empowers patients by giving them true choice in whether and how they participate" - don't lose this!
“You can do as little or as much as you like”
Ron from Harrogate

6. The shared care intervention.
Emphasis is on choice - taking part and engaging at a level that suits the patient as an individual.

7. Supporting independence
The trick lies in how we can influence patients and staff so that it remains their choice using their own motivation to become engaged.
Seeing is believing – “If they can, I can”
Peer to peer conversation - “ hmm, that’s interesting, he/she is like me”
Offering the opportunity – “I didn’t know I could do that”
Healthcare professionals are required to enhance their roles becoming educators and facilitators supporting patients to take on aspect of their care.
Its not just pamphlets and books / videos – these are all critical but what actually works to change hearts and minds is simple (but incredibly hard as EVERYONE) has to believe it…
Peer to Peer
Kind words
Positive encouragement and understanding

8. Impact of Shared Haemodialysis Care
Improve patient self-management skills
Use health care resources more effectively through greater patient participation
More people will dialysis independently e.g. at home
“I’ve learnt so much more about dialysis and how my body works from shared care and I now feel as if I’m in the centre of my healthcare.”
Health literacy
David from Sheffield

9. Regional innovation fund
Our partners
Patients and carers
Participating acute health care trusts
Y & H
Regional innovation fund