1. ‘Knowledge Networking’
Personal Planning
and
Say it Once
Anne Meader 2016

2. What lights my passion? I passionately believe that:
individuals should be encouraged to be independent and whenever possible to manage their own affairs
most people expect their information to be shared by the professionals working with them
most people do not want to keep repeating themselves over and over
the only way to improve the current situation is to provide a shared information portfolio owned by the individual and shared by them as they wish with the people supporting and working with them
we all need to identify and use our assets to work together in communities to make best use of the resources around us especially the local voluntary and community sector
we need to share information for the benefit of patients, carers, professionals
Personal Profile and admission
Operation 5 people – anaesthetist, ward clerk, Registrar, pharmacist, physiotherapist
DNA – my experience
Red and Green Channels at immigration - Portsmouth and airports
Sharing information for the benefit of patients, carers, professionals

3. Personal Planning Your Individual Personal Plan

4. Consider and think
Think about what you want to do and what you want to happen to you if you
are a carer
have an emergency or sudden catastrophic incident
if you grow older and more frail
if for some reason you are unable to manage your own affairs effectively
if you would like to be supported positively when you approach end of life

5. Arrange
Arrange for one or two reliable trustworthy people, or a number of reliable people, who you can trust and rely on to act on your behalf if something goes wrong and/or who will help you to retain as much independence as possible.
Decide what you want them to do and ensure they know your wishes
Keep them informed of any changes.
Make sure they can be contacted in an emergency using some of the following:
a credit card size contact card
a Message in a Bottle in your fridge or car
an ICE number on your mobile phone
alternative methods of your choice e.g. medic alert
NB If you feel it is difficult to identify someone to be your contact, talk to your solicitor or Carers Together who may be able to signpost you to someone who can help.

6. Plan, prepare and record your wishes (1)
Complete the legal paperwork to ensure your wishes will be carried out e.g.
Will – essential but only activated after you have died
Lasting Power of Attorney - Health and Welfare
Lasting Power of Attorney - Property and Financial Affairs
(LPAs give legal control to someone else, when you are unable to act for yourself)
Advance Decision or Advance Directive
(Indicates your wish to refuse all or some forms of medical treatment if you lose mental capacity in the future)
The above give legal control to someone else to act in your best interests if you are unable to act for yourself – otherwise the state will decide what happens to you

7. Plan, prepare and record your wishes (2)
Prepare and record your wishes in your personal
individual plan (person centred plan)
This is not just about giving legal control to someone else, when you are unable to act for yourself, but all the myriad small things we take for granted every day e.g. pet care, house, garden, books, favourite possessions..
It is about identifying your contacts and personal information to share e.g. your GP, wishes, medication, preferred care etc.
It is making your wishes clear e.g. who to contact, who will look after your pet, what you want to happen in a crisis, what are your likes and dislikes etc. 

8. Ensure
Ensure your preferred contacts know where to find your personal plan and your legal paperwork - keep the paperwork in a planned regular place in your home
Enjoy the peace of mind the plan brings to you
Ensure you update it when there are any changes in your life

9. Say it Once

10. My Personal Record - Contents
My Personal Record is divided into four clear sections.
Each section has a suggested list of things to consider from which individuals can choose the activity or action that is right for them.
Each section could become a separate folder if preferred or needed because of the size of individual contents.

11. Section 1 My Personal Information and Plans
This contains the essential personal information, preferences and plan that an individual should take and the initial stages of information and plans that they may wish to consider for themselves

12. Section 2 My Appointments and Communication Logs
This contains the personal communication records and appointments made by the individual, as well the contact details of people and organisations that the person may wish to contact or to have contacted on their behalf

13. Section 3 My Personal Health and Social Care Information and Plans
This contains information pertaining to ‘my health and social care’ including ‘my single comprehensive Care Plan’, health documents and plans e.g. test results, assessments, operation notes, treatment notes, continuing treatment medicines, social care documents and plans including assessments, services, notes, letters about me etc. and any other contents as appropriate e.g. Optician, Dentist, Ophthalmologist.

14. Section 4 Local, National and Community Information
This would include any other Information you may wish to record e.g. local and national information relevant to you including laws, guidance, strategies, action plans, rights, community support etc.

15. My Personal Record
The suggested contents include a number of suggested documents and actions that you may wish to use.
You select the documents you want to use.
You may wish to use different documents of your choice. This is not a problem as long as you record similar information.
You may choose to add other additional documents as your needs change. It is your choice.
The only essential document is a summary information sheet about you.
You may also wish to complete your personal profile (health and care information) and your preferences for care as these list your core personal information and personal choices.  

16. My Personal Record
When you have completed the forms you wish to use – you can store them in a folder, on your PC, in a place of your choice
You can send them it in to be included in your record on the Hampshire Health Record
You can share them with relatives and/or friends who are named in the paperwork
You can share the information with your GP or take it with you when having an appointment
It is your choice

17. Section 3 – Health and Care needs

18. What else do we need to think about?
As we change and become less able – we need to have more information to add to our folder
Some examples include:
Assessment of eligibility
Care Plan
Coproduction

19. What else do we need to think about?
Integrated Personal Commissioning (IPC) known in Hampshire as My Life My Way
We may want to know who is eligible for Continuing Health Care and Personal Health Budgets
And then we think about Personal Budgets which will include health and social care needs e.g. Direct Payments
We may want to plan for end of life
Possible topics for our next Study Day?

20. Get in touch? Contact us Hampshire Neurological Alliance 9 Love Lane
Romsey
SO51 8DE