1. Healthy Literacy Missouri Wisconsin Health Literacy Summit April 1, 2009 Madison, Wisconsin Arthur Culbert, Ph.D. Senior Advisor to the Missouri Foundation for Health Interim Executive Director Health literacy Missouri

2. Wisconsin State Capitol Collapses

3. April Fools In 1933 The Madison Capital-Times ran a picture on its front page showing the dome of the Wisconsin State Capitol collapsing. A headline announced, "Dome Topples Off Statehouse," while the subhead read, "Officials Say Legislature Generated Too much Hot Air."

4. Retirement

5. Todays talk Nation wide efforts in health literacy Health Literacy Missouri (HLM) HLM Resource Inventory

6. Health Literacy Complex social determinant of health Public health issue Costs Dollars but Really cost lives

7. 90 Million adults in America have trouble reading this drug label

8. Health Care Reform

9. National Agenda for Health Literacy Healthy People 2000 IOM Health Literacy Report, 2004 Surgeon General Workshop, 2006 HHS National Town Hall Meetings, 2007,08 Health Literacy Missouri, 2009 A Call to Action to Improve Health Literacy Health Literacy Coalition

10. Mid West State Wide Health Literacy Initiatives Minnesota Health Literacy Partnership Iowa Center for Health Literacy Wisconsin Literacy Inc. Health Literacy Missouri

11. Health Literacy Missouri (HLM) MFH determined health literacy components in previous proposals (2002-2005) Awarded $2.1 million in 2007 as part of 5 years funding Open a Missouri wide health literacy center in 2009

12. HLM Partners

13. HLM Vision and Mission Our mission is to improve the health of all Missourians and our vision is to become a national leader in health literacy.

14. Develop health information – Accurate – Understandable – Accessible – Available to all Create systematic change in provider patient encounter based on health literacy DOES NOT BLAME VICTIM HLM Philosophy

15. HLM Guiding Principles Engage Community Partners Put Missourians First Innovate Strategically

16. ACP Living with Diabetes Guide Guide Developed in 2006 Need-to-Know content only Photos and action plans Testimonials and examples Over 1 million copies distributed 300,000 living with diabetes in Missouri

17. Cost of Low Health Literacy in Missouri

18. Hot spots of low literacy

19. MFH/HLM Activities Field testing American College of Physicians Living with Diabetes Guide (ACP 2007 - ) Cosponsored with CDC town hall meeting on health literacy (May 2008) Determined Economic cost (Vernon, 2008) Located hot spots of low literacy using GIS Mapping (lurie, 2009) Demonstration projects (2008 - )

20. Demonstration Projects Engage the community in creative ways to advance health literacy

21. Demonstration Projects

22. Strategic Communications Local graphics are created for each region. Research has shown that including graphics with the release increase the chance of having it used.

23. Health Literacy Curriculum Target Population: ALL health professions students, and providers Continuum: – Health literacy training through Missouri AHEC pre- health professional students – Raise awareness and provide best practices for health professional students and providers

24. Health Literacy Surveillance Attempt to survey & measure health literacy – Missourians – Health care providers – Create baseline of health literacy levels

25. HLM Resource Inventory Identified 4,000+ health literacy resources Inventorying health literacy resources: Easily accessible Well organized User friendly HLM Rating Meet Users needs

26. To evaluate a resource… 1.Obtain the resource 2.Identify resources in the Resource Inventory database 3.Evaluate the resource on 3 dimensions: – Soundness of Approach – Easy to Use – Evidence-based

27. 86-100% 50-85% 49% HLM Rating

28. [insert photo of clinic manager]

29. What is the solution? THE HEALTH LITERACY PROBLEM: Diabetes patients dont return for follow-up appointments The doctors use words the patients dont understand and the patients wont ask them to explain because they think they ought to know or they have tried in the past and the doctor sometimes cant explain it in understandable terms. Doctors have a hard time bringing it down to an average persons level of understanding.

31. PROFESSIONALS Create easy-to-use materials Find information on health topics Develop a policy Develop a program Teach others about health literacy Help patients access the health system Learn about cultural issues Get the facts about health literacy Get the facts about literacy Search the latest research GENERAL PUBLIC Learn about a health topic Get information about insurance Protect my childs health Take my medication Talk to my doctor Make treatment decisions Know my health risks Get the facts about reading ability Get the facts about health literacy Read about culture and health Find materials in other languages HEALTHCARE PROVIDERS Get the facts about health literacy Find easy-to-use materials for patients Learn how to speak with my patients Learn about cultural issues Help patients access the health system Teach others about health literacy Get the facts about literacy Assess health literacy levels Assess literacy levels Search the latest research

32. PROFESSIONALS Create easy-to-use materials Find information on health topics Develop a policy Develop a program Teach others about health literacy Help patients access the health system Learn about cultural issues Get the facts about health literacy Get the facts about literacy Search the latest research GENERAL PUBLIC Learn about a health topic Get information about insurance Protect my childs health Take my medication Talk to my doctor Make treatment decisions Know my health risks Get the facts about reading ability Get the facts about health literacy Read about culture and health Find materials in other languages HEALTHCARE PROVIDERS Get the facts about health literacy Find easy-to-use materials for patients Learn how to speak with my patients Learn about cultural issues Help patients access the health system Teach others about health literacy Get the facts about literacy Assess health literacy levels Assess literacy levels Search the latest research

33. Learn about our scoring system

34. Insert info for AMA manual here. Will look similar to slide #12 S of A = yellow E of U = green Ev-b = green

35. Next Steps for HLM Continue to develop and refine HLMs niche in field of health literacy Form more partnerships and develop coalition Assist in the Call to Action for Health Literacy

36. I am hopeful that when we ask the question, Can we overcome the health literacy issues of our great nation? The answer is a resounding Yes We Can!!