1. Dementia Friendly Southern Nevada Update: 6/16/2017
5/5/2017
Dementia Friendly Southern Nevada
Update: 6/16/2017
Caregiver Focus Group

2. Caregiver Focus Group: Completed
5/5/2017
Caregiver Focus Group: Completed
Facilitator
Attend
Time
Date
Location
Address
1. Donna Munic-Miller 19
1:15PM-2:45PM
Wednesday, April 12, 2017
Downtown
Cleveland Clinic Lou Ruvo Center for Brain Health
2. Madison Lane
2:00PM-3:00PM
Friday, May 12, 2017
Boulder City
NV State Veterans Home
3. Randy Bolsinger/Cendrene Neil
9:30AM-10:30AM
Tuesday, May 16, 2017
Centennial
Centennial Hills YMCA
4. Randy Bolsinger/Cendrene Neil 1
6:30PM-7:30PM
Thursday, May 18, 2017
5. Evelyn Castro 14
10:00AM-11:30AM
Thursday, May 25, 2017
Spanish Community
Alzheimer's Association
6. Irma Prettenhofer 6
1:00PM-2:30PM
Thursday, June 08, 2017
Paradise
7. Jo Ann Fisher
Monday, June 12, 2017
Henderson
St. Rose Dominican,
Siena Campus Hospital
8. Jo Ann Fisher 8
6:30PM-8:00PM
St. Thomas Catholic Church
9. Kevin Cheatham
TBD
2:00PM-3:30PM
Tuesday, June 13, 2017
Mesquite
Mesquite Recreation Center
10. Karen Taylor 7
10:30AM-12:00PM
Thursday, June 15, 2017
Pahrump
Pahrump Senior Center

3. Caregiver Focus Group: Scheduled
5/5/2017
Caregiver Focus Group: Scheduled
Facilitator
Note Taker
Time
Date
Location
Addre1ss
11. Irma Prettenhofer
Isaac
10:00AM-11:30AM
Friday, June 16, 2017
Paradise
Alzheimer's Association
12. Barbara Payne
Wednesday, June 28, 2017
Pahrump
Pahrump Senior Center

4. Methods: 6 Questions, Facilitator, & Note taker Goal: Objective:
5/5/2017
Methods:
6 Questions, Facilitator, & Note taker
Goal:
To publish a brochure/pamphlet that will help ease the burden for new and established caregivers.
Objective:
To educate our community about dementia.
To inform individuals affected by dementia about available community resources.

5. Caregiver Focus Group Questions:
5/5/2017
Caregiver Focus Group Questions:
What do you wish you had know when your loved one was showing symptoms of dementia?
What dementia-care services have you received?
Are you satisfied with the resources available for patients/caregivers?
What limitations do you face in terms of receiving support services for yourself?
What is the one thing you believe everybody in the community should understand about dementia?
How do you like to receive information on Alzheimer’s and/or dementia?
That there is no cure. What doctor to go to for a diagnosis? The difference between dementia and Alzheimer’s disease.
Caregivers advocated for public service announcements, information guides, handouts, pamphlets, and fliers.

6. Response Categories: Caregiver Counseling, Support Groups and Services
Neighbors and Community Members
Residential Settings
Government: Disaster Planning
Education and Training for Family Caregivers
Independence at Home Services
Libraries
Awareness
Businesses
Community-based Services and Supports
Health Care: Staff Training
Legal and Advance Planning Services
Health Care: Cognitive Impairment Identification, Assessment and Management
Memory Loss Supports and Services
Government, Community, and Mobility Planning
Government: Emergency Planning and Response
Health Care Throughout the Continuum
Banks and Financial Services
Hospitals
Transportation
Wellness
Communities of Faith
Meaningful Engagement Activities

7. Analysis: Top Responses
5/5/2017
Analysis: Top Responses

8. 1. Downtown Las Vegas
Participants: 19

9. 1. Downtown Las Vegas

10. 1. Downtown Las Vegas: Top Responses
5/5/2017
1. Downtown Las Vegas: Top Responses
Education and Training for Family Caregivers
9: What doctor do I even go to for a diagnosis?
Awareness
16: People think it’s going to happen later so they aren’t worried about it until it’s too late
Health Care: Cognitive Impairment Identification, Assessment and Management
18: Took him for 3 years until he got a PET scan until he was diagnosed. Every doctor prior to that said he was healthy. Emergency room physicians didn’t have any input.

11. 5/5/2017
2. Boulder City

12. 3. & 4. Centennial

13. 5. Paradise: Spanish Community
Participants: 14

14. 5. Paradise: Spanish Community
5/5/2017
5. Paradise: Spanish Community

15. 5. Paradise: Spanish Community: Top Responses
Caregiver Counseling, Support Groups and Services
J: All in group have been in touch with the Alzheimer’s Association (AA) which also serves as a case management resource.
Education and Training for Family Caregivers
J: Members generally wanted more knowledge of disease, steps/stages. Participants appear to have numerous family members but not family support/understanding/involvement. Discussion focused on methods to incorporate family and increase education. Many in favor of whole family case management/education/counseling.

16. 5/5/2017
6. Paradise
Participants: 6

17. 6. Paradise

18. 6. Paradise: Top Responses
Caregiver Counseling, Support Groups and Services
6: learned to answer the question being asked, don’t elaborate, and just realize that I can challenge him all he wants to, but it will just frustrate the both of us.
Awareness
3: nobody wants to admit that something is wrong with them.
Health Care: Staff Training
1: doctors should be more engaged. Doctors do not stress information enough to the patient.

19. 7. Henderson
Participants: 1

20. 7. Henderson

21. 7. Henderson: Top Responses
Education and Training for Family Caregivers
1: I wish I had learned it earlier, when he as at the end of early stage beginning moderate. Because of being able to be on medication, we could have slowed it down.
Caregiver Counseling, Support Groups and Services
1: Are they readily accessible? Are these services easy to locate? Are these services affordable?
Transportation
1: I can’t drive a distance. Lives in Sun City Anthem. I haven’t driven on the freeway since moving here. I would go to Cleveland Clinic if I could get there.

22. 8. Henderson
Participants: 8

23. 8. Henderson

24. 8. Henderson: Top Responses
Education and Training for Family Caregivers
7: I would use YouTube. Wikipedia. To learn about Lewy body dementia.
Awareness
1: That there is no cure. We want dignified care.
Caregiver Counseling, Support Groups and Services
6: Alzheimer’s Association, respite care. In home care and adult day care. It’s difficult for him using the respite care. Picking him up, it was difficult and he’s always glad to come home. I would take the medication list and sometimes they do not follow it.

25. 9. Mesquite
Participants: TBD

26. 5/5/2017
10. Pahrump
Participants: 7

27. 10. Pahrump

28. 10. Pahrump: Top Responses
Awareness
3: I came from a generation that we did not discuss these things. My father was very secretive about medical issues. I personally believe these issues need to be on the table and discussed. We need a judgment free zone. It’s a lack of education and knowledge.
Caregiver Counseling, Support Groups and Services
5: Augusts Service. RSVP. Hospice. Church, Alzheimer's group does not meet anymore.
Education and Training for Family Caregivers
7: Sometimes we read things to hear things we want to hear. I see fliers, etc. I just keep learning to keep up.

29. 11. Paradise
Participants: TBD

30. 12. Pahrump
Participants: TBD

31. 5/5/2017
Next Steps: ?

33. Next Steps: Prioritizing Goals
5/5/2017
Next Steps: Prioritizing Goals
Create a list of priority goals generated from community engagement process.
Next to each goal, list possible responses/actions/programs the community might consider to take action.
At next meeting, community members will self-select into goal areas, review possible actions listed, and pic their top 1-2 actions using the prioritization criteria (handout).
Bring everyone back together to report on the top 1-2 actions for the goal areas. Then have the full group identify 2-3 that “rise to top” again using the prioritization criteria (handout).
continue...

34. Next Steps: Prioritizing Goals
The highest priority actions agreed upon by the group will be the foundational to a work plan and budget used to seek funding. Your community might take on more than one priority action, depending on size, scope, and resources.

35. Goal Area Small Group Discussions
Review the priority goal area.
Review and discuss possible actions and resources listed for your priority area.
Discuss additional action and resources.
Add selections of additional actions and resources to the flip chart.
Using the prioritization criteria, identify the top 1-2 priority actions that your group feels best meet the criteria; select someone in your group to present them to the full group.

36. Prioritization Criteria
The idea seems doable (we have the right people and resources to make it work in a year or less)
It is a good fit for the Southern Nevada community
It would make a meaningful difference for the community
It is affordable (can be done on a limited budget)

37. Potential Options for Action Plan Development
Awareness
Education and training for family caregivers
Caregiver counseling, support groups, and services
Wellness
Meaningful engagement activities
Independence at home services
Residential settings
Government: Disaster planning
Transportation
Health Care: Cognitive Impairment Identification, Assessment and Management
Health Care: Staff Training

38. Homework:
Read the following Dementia Friendly Communities Toolkit